{"id":974,"date":"2015-08-07T09:25:46","date_gmt":"2015-08-07T14:25:46","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=974"},"modified":"2015-08-07T09:25:46","modified_gmt":"2015-08-07T14:25:46","slug":"samantha","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/08\/07\/samantha\/","title":{"rendered":"EINZELPERSON MIT LGMD: Samantha"},"content":{"rendered":"

08\/07\/2015:<\/p>\n

Name<\/strong>: Samantha\u00a0 AGE<\/strong>: 7 Jahre alt\"LGMD2i<\/a><\/p>\n

LAND: USA<\/p>\n

LGMD Unter-Typ: LGMD2i<\/p>\n

\u00a0<\/strong><\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Die Diagnose wurde bei mir im Alter von 2 Jahren gestellt.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Meine Mutter und mein Vater sahen mich oft fallen, und ich hatte Schwierigkeiten, mit meinen Freunden mitzuhalten.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n

Nein, ich bin die einzige Person in meiner Familie mit LGMD.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Ich mag es nicht, dass ich nicht so schnell laufen kann wie meine Freunde in der Schule. Turnen f\u00e4llt mir schwer, aber es macht mir trotzdem Spa\u00df. Meine Eltern zwingen mich, ein Vitamin namens \"CoQ10\" einzunehmen, und ich mag nicht, wie es schmeckt. Ich mag es auch nicht, nachts meine Stretching-Stiefel zu tragen. Ich mag es nicht, wenn die Leute wissen, dass ich LGMD habe, weil es irgendwie peinlich ist.<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

Ich bin stolz darauf, dass ich jetzt Kapitel lesen kann und dass ich reiten kann. Ich freue mich auch, dass ich vom Sprungbrett springen und im Schwimmbad im tiefen Wasser schwimmen kann. Ich treffe den Ball gut, wenn ich Softball spiele, und ich freue mich, wenn ich die Base erreiche.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Ich mache Limonadenst\u00e4nde und verkaufe mit meinen Cousins Armb\u00e4nder, um Geld f\u00fcr LGMD zu sammeln. Ich habe Gl\u00fcck, dass ich auf einer Konferenz in Iowa andere Menschen mit LGMD kennengelernt habe. Sie sind jetzt meine Freunde.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

Es ist schwer, LGMD zu haben, aber manchmal treffe ich andere Menschen, deren Behinderungen schlimmer sind als meine, und mir wird klar, dass LGMD gar nicht so schlimm ist.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

Ich w\u00fcrde meine Stretching-Stiefel aus dem Fenster werfen und in den Hershey Park gehen, um zu feiern!<\/p>","protected":false},"excerpt":{"rendered":"

08\/07\/2015: Name:\u00a0 Samantha\u00a0 AGE: 7 yrs. old COUNTRY: USA LGMD […]<\/p>","protected":false},"author":1,"featured_media":975,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-974","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Samantha<\/title>\n<meta name=\"description\" content=\"Samantha, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/08\/07\/samantha\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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