{"id":990,"date":"2015-08-18T11:15:27","date_gmt":"2015-08-18T16:15:27","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=990"},"modified":"2015-08-18T11:15:27","modified_gmt":"2015-08-18T16:15:27","slug":"martin","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/08\/18\/martin\/","title":{"rendered":"EINZELPERSON MIT LGMD: Martin"},"content":{"rendered":"

08\/18\/2015<\/strong><\/p>\n

Name<\/strong>: Martin \u00a0AGE<\/strong>: 42 Jahre alt\"LGMD2A<\/a><\/p>\n

Land<\/strong>: Vereinigtes K\u00f6nigreich<\/p>\n

LGMD Unter-Typ<\/strong>: LGMD2A \/ Kalpainopathie<\/p>\n

 <\/p>\n

In welchem Alter wurde bei Ihnen die Diagnose gestellt?<\/strong>:<\/p>\n

Die Diagnose wurde bei mir im Alter von 23 Jahren gestellt.<\/p>\n

Was waren Ihre ersten Symptome?<\/strong>:<\/p>\n

Ich bin in einer Garage gest\u00fcrzt, habe mir das Knie ausgekugelt, und das hat sich nicht in der erwarteten Zeit von selbst repariert.<\/p>\n

Haben Sie andere Familienmitglieder, die LGMD haben?<\/strong><\/p>\n

Ja, mein \u00e4lterer Bruder hat auch LGMD.<\/p>\n

Was sind f\u00fcr Sie die gr\u00f6\u00dften Herausforderungen im Leben mit LGMD?<\/strong>:<\/p>\n

Meine gr\u00f6\u00dften Herausforderungen sind das Treppensteigen und der Versuch, den Leuten klarzumachen, wie schwer es ist, ein behinderter Mensch zu sein, der so lange wie m\u00f6glich auf den Beinen bleiben will. (und ein bisschen wackelt)<\/p>\n

Was ist Ihre gr\u00f6\u00dfte Errungenschaft?<\/strong>:<\/p>\n

Ich erkannte, dass ich \u00fcber Muskeldystrophie schreiben konnte und die Leute auch zuh\u00f6rten! Seitdem habe ich das Bewusstsein f\u00fcr die Krankheit gesch\u00e4rft und wichtige Gelder f\u00fcr die Forschung gesammelt. Ich habe das Parlament besucht, Sport- und Fernsehpers\u00f6nlichkeiten \u00fcber die sozialen Medien auf die Krankheit aufmerksam gemacht, wurde von MDUK f\u00fcr meine Bem\u00fchungen, das Bewusstsein f\u00fcr die Krankheit zu sch\u00e4rfen und Gelder f\u00fcr die Forschung zu sammeln, anerkannt und belohnt, habe meinen Beruf gewechselt, um anderen zu helfen, bin Vater von drei tollen M\u00e4dchen und versuche, ein gutes Vorbild zu sein und immer positiv zu bleiben.<\/p>\n

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?<\/strong><\/p>\n

Ironischerweise denke ich, dass LGMD mich st\u00e4rker gemacht hat, als ich jemals gedacht h\u00e4tte. Ich bin fest entschlossen, alle \u00fcber diese Krankheit aufzukl\u00e4ren und vielen anderen das Leben in Zukunft zu erleichtern.<\/p>\n

Was m\u00f6chten Sie der Welt \u00fcber LGMD mitteilen?<\/strong>:<\/p>\n

Dass es sie gibt, w\u00e4re ein guter Anfang! Erst nach meiner Diagnose und Jahre sp\u00e4ter, als ich anfing, \u00fcber die Krankheit zu sprechen, wurde mir klar, dass meine Familie, meine Freunde und die Gesellschaft im Allgemeinen noch nie von irgendeiner Art oder Auspr\u00e4gung von Muskeldystrophie geh\u00f6rt hatten, und das muss sich \u00e4ndern; die Menschen m\u00fcssen unbedingt \u00fcber diese Krankheiten Bescheid wissen.<\/p>\n

Wenn Ihre LGMD morgen \"geheilt\" werden k\u00f6nnte, was w\u00fcrden Sie als Erstes tun wollen?<\/strong>:<\/p>\n

So schnell wie m\u00f6glich \u00fcber einen Strand zu rennen (denken Sie an den Film 'Chariots of fire' und an den Soundtrack von Vangelis!) und dann alle meine M\u00e4dchen und meine Frau in die Arme zu schlie\u00dfen.<\/p>\n

Wenn Sie weitere \"LGMD Spotlight Interviews\" lesen oder sich f\u00fcr ein Interview zur Verf\u00fcgung stellen m\u00f6chten, besuchen Sie bitte unsere Website: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

08\/18\/2015 Name: Martin \u00a0AGE: 42 yrs. old Country: United Kingdom […]<\/p>","protected":false},"author":1,"featured_media":991,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,20],"class_list":["post-990","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-kingdom"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Martin<\/title>\n<meta name=\"description\" content=\"Martin, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2015\/08\/18\/martin\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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