{"id":1004,"date":"2015-09-08T10:17:31","date_gmt":"2015-09-08T15:17:31","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1004"},"modified":"2015-09-08T10:17:31","modified_gmt":"2015-09-08T15:17:31","slug":"shelley","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/","title":{"rendered":"INDIVIDUO CON LGMD: Shelley"},"content":{"rendered":"

09\/08\/2015<\/p>\n

 <\/p>\n

Nombre<\/strong>: Shelley EDAD: 50\"LGMD2A<\/a><\/p>\n

PA\u00cdS<\/strong>: Canad\u00e1<\/p>\n

Subtipo LGMD<\/strong>: LGMD2A \/ Calpainopat\u00eda<\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Me lo diagnosticaron a los 11 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

Mis primeros s\u00edntomas fueron caminar de puntillas y tener dificultades para subir escaleras.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD?<\/strong><\/p>\n

S\u00ed, todos mis hermanos est\u00e1n afectados. Mi hermana Michele y mi hermano John tienen LGMD2A.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

Uno de los mayores retos de mis veinte a\u00f1os fue estar f\u00edsicamente m\u00e1s d\u00e9bil y no poder tener hijos, dar a luz y llevarlos en brazos.<\/p>\n

Tambi\u00e9n ha sido un reto encontrar un empleo significativo a pesar de tener un t\u00edtulo universitario. Los empresarios y los empleados que se niegan a entender las necesidades de las personas con discapacidad tambi\u00e9n han sido un reto.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

Uno de mis mayores logros ha sido escribir mis memorias sobre la vida con LGMD y ayudar a otros a superar sus diversidades. Graduarme en la universidad tambi\u00e9n fue un logro.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

No doy por sentadas las cosas que puedo hacer. Utilizo mi discapacidad para educar a los dem\u00e1s a trav\u00e9s de mis memorias y mis discursos inspiradores.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

La LGMD priva a las personas de la fuerza de sus m\u00fasculos voluntarios, pero no afecta a su intelecto. Tener una discapacidad f\u00edsica puede ser muy frustrante, pero que los dem\u00e1s te juzguen por ello puede ser mucho peor.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

Me pon\u00eda un par de patines art\u00edsticos y patinaba durante horas. Cuando me diagnosticaron la enfermedad, hace 39 a\u00f1os, se me alargaron los tendones de la cuerda del tal\u00f3n (debido al desarrollo de contracturas) y ya no pod\u00eda patinar. Se me rompi\u00f3 el coraz\u00f3n.<\/p>\n

Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

09\/08\/2015   Name:\u00a0 \u00a0 Shelley \u00a0\u00a0\u00a0AGE:\u00a0 50 COUNTRY: \u00a0\u00a0\u00a0Canada LGMD […]<\/p>","protected":false},"author":1,"featured_media":1005,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,38,15],"class_list":["post-1004","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-canada","tag-lgmd2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Shelley<\/title>\n<meta name=\"description\" content=\"Shelley, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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