{"id":1013,"date":"2015-09-17T10:34:31","date_gmt":"2015-09-17T15:34:31","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1013"},"modified":"2015-09-17T10:34:31","modified_gmt":"2015-09-17T15:34:31","slug":"gitika-gopika","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/09\/17\/gitika-gopika\/","title":{"rendered":"INDIVIDUOS CON LGMD: Gitika & Gopika"},"content":{"rendered":"

09\/17\/2015<\/p>\n

NOMBRE: Gitika & Gopika EDAD: 38 a\u00f1os\"LGMD2B<\/a><\/p>\n

PA\u00cdS: India<\/p>\n

Subtipo LGMD (si se conoce): LGMD2B<\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Nos lo diagnosticaron a los 21 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

Nuestros primeros s\u00edntomas fueron dificultad para mantenernos de puntillas y necesidad de agarrarnos a un pasamanos tras subir 2 plantas.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD?<\/strong><\/p>\n

Somos un par de gemelos id\u00e9nticos que padecen distrofia muscular de cinturas. No hay antecedentes familiares en las \u00faltimas 5 generaciones.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

Nuestro mayor reto es superar nuestros engranajes, crecer con esta enfermedad progresiva y seguir siendo positivos. Gitika tuvo que dejar su exitosa carrera y convertirse en ama de casa. Gopika sigue impartiendo clases en un centro educativo. Antes daba clases en un reputado colegio.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

Nuestro mayor logro ha sido aceptar vivir con esta enfermedad y trabajar en nuestros quehaceres diarios con entusiasmo continuado, a pesar de varias decepciones.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

Ambos nos hemos vuelto m\u00e1s tolerantes con las personas y las situaciones, ya que hemos tenido que desinhibirnos y pedir apoyo varias veces.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

A menudo, en ausencia de cualquier informaci\u00f3n visual externa, resulta dif\u00edcil para la gente comprender el nivel de discapacidad (a menos que se utilice una silla de ruedas el\u00e9ctrica) con esta enfermedad. Queremos que el mundo se apasione por igual por los pacientes de LGMD y les proporcione algunas ventajas como las que se dan a los enfermos de otras enfermedades.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

A Gitika le gustar\u00eda retomar su carrera e irse a un destino de playa.<\/p>\n

Gopika desea correr en una cinta y volver a hacer ejercicio en el gimnasio.<\/p>\n

Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>","protected":false},"excerpt":{"rendered":"

09\/17\/2015 NAME:\u00a0 Gitika & Gopika \u00a0\u00a0AGE: \u00a0\u00a038 yrs old COUNTRY:\u00a0 […]<\/p>","protected":false},"author":1,"featured_media":1014,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[30,23],"class_list":["post-1013","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-india","tag-lgmd2b"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Gitika & Gopika<\/title>\n<meta name=\"description\" content=\"Twin sisters diagnosed with Limb Girdle Muscular Dystrophy (LGMD), share their experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/09\/17\/gitika-gopika\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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