\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\nEl mayor problema que tuve fue explicar mi distrofia muscular a la gente (familiares, amigos y desconocidos) y que no me creyeran del todo. Pensaban que estaba cansada porque era perezosa.<\/p>\n
Pas\u00e9 una noche en el hospital con fuertes calambres en la pierna que no pod\u00eda calmar. No pude andar bien durante tres semanas y segu\u00ed trabajando con dolor. Siempre he tenido problemas con las escaleras y para cargar cosas pesadas durante mucho tiempo.<\/p>\n
\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\nMi mayor logro es haberme casado en febrero con mi esposa Rebecca. Ella se ha convertido en mi fuerza y mi motivaci\u00f3n para seguir adelante. Soy la segunda generaci\u00f3n de camioneros de Australia y estoy muy orgulloso de ello. Aunque, a veces, mi trabajo puede llegar a ser bastante f\u00edsico y me pasa factura. Mi mujer, Rebecca, me ayuda con todo. Es mi mujer maravilla.<\/p>\n
\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\nHe aprendido a escuchar a la gente hablar de su enfermedad. He hecho un mont\u00f3n de grandes amigos en Facebook con los que mantengo el contacto. Escucho sus preocupaciones y problemas y tambi\u00e9n les pido consejo. Sobre todo, he aprendido que est\u00e1 bien pedir ayuda cuando la necesito, en lugar de intentar hacerlo todo yo sola.<\/p>\n
\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\nQuiero que el mundo sepa que la distrofia muscular de cinturas existe. Es incre\u00edble la cantidad de veces que he tenido que explicar mi enfermedad a la gente y casi no me creen. No entienden que mi LGMD no se arregla ni se cura yendo al gimnasio. No existen curas ni tratamientos para la LGMD. No tenemos ning\u00fan control sobre nuestra enfermedad, es una parte de nosotros ...., una parte con la que luchamos, pero que nos hace ser quienes somos.<\/p>\n
Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\nMi objetivo personal, aparte de tener una familia...., ser\u00eda volver a jugar al baloncesto. Me encantaba cuando era peque\u00f1o. Volver\u00eda a la cancha y correr\u00eda todo el tiempo que pudiera.<\/p>\n
<\/p>\n
Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>","protected":false},"excerpt":{"rendered":"
05\/14\/2016: LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Dave\u00a0\u00a0\u00a0 Age: \u00a027 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1196,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[51,12,15],"class_list":["post-1195","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-australia","tag-calpainopathy","tag-lgmd2a"],"acf":[],"yoast_head":"\n
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![\"LGMD2A](\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/05\/LGMD2A-Dave-H.png\")
<\/a><\/p>\n