{"id":1325,"date":"2016-09-16T09:00:17","date_gmt":"2016-09-16T14:00:17","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1325"},"modified":"2016-09-16T09:00:17","modified_gmt":"2016-09-16T14:00:17","slug":"scott","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/","title":{"rendered":"INDIVIDUO CON LGMD: Scott"},"content":{"rendered":"

LGMD \"ENTREVISTA EN PRIMER PLANO\"<\/strong><\/p>\n

Nombre<\/strong>: Scott\u00a0 Edad<\/strong>: 48 a\u00f1os\"LGMD2L<\/a><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/p>\n

Subtipo LGMD<\/strong>: LGMD 2L - tambi\u00e9n conocida como Anoctaminopat\u00eda<\/p>\n

\u00a0<\/strong><\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Aunque mi DM empez\u00f3 hace unos 15 a\u00f1os, finalmente me diagnosticaron hace poco una DM de cinturas de extremidades de tipo 2L. Hasta ahora, los m\u00e9dicos solo me hab\u00edan informado de que se trataba de LGMD.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

Empec\u00e9 a tener dificultades para subir escaleras y correr.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD? <\/strong><\/p>\n

No<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

Siempre he sido una persona independiente. Como soy hija \u00fanica, siempre he hecho las cosas sola. \u00daltimamente, he tenido que depender cada vez m\u00e1s de la familia y los amigos. Adem\u00e1s, me vuelve loca el tiempo que tardo ahora en hacer las cosas.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

Estoy orgulloso de haber terminado la universidad y haber obtenido mi t\u00edtulo.<\/p>\n

Adem\u00e1s, me alegro de haber trabajado 30 a\u00f1os para la misma empresa antes de tener que dimitir debido a mi lucha contra la DM.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy? <\/strong><\/p>\n

Sigo intentando desarrollar la paciencia. Me enorgullece realizar tareas que antes daba por sentadas.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

Siga apoyando a las organizaciones ben\u00e9ficas locales y nacionales de MD, ya sea econ\u00f3micamente o dedicando tiempo voluntario a los necesitados. Se agradece enormemente.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

Caminar sin ayuda por el oc\u00e9ano en una de mis playas locales.<\/p>\n

 <\/p>\n

Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

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