{"id":1335,"date":"2016-09-27T10:02:53","date_gmt":"2016-09-27T15:02:53","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1335"},"modified":"2016-09-27T10:02:53","modified_gmt":"2016-09-27T15:02:53","slug":"kelci","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","title":{"rendered":"INDIVIDUO CON LGMD: Kelci"},"content":{"rendered":"

LGMD \"Primer plano\"<\/strong><\/p>\n

Nombre<\/strong>: Kelci \u00a0\u00a0Edad<\/strong>23 a\u00f1os\"lgmd2j-kelci\"<\/a><\/p>\n

Pa\u00eds<\/strong>: Australia<\/p>\n

Subtipo LGMD<\/strong> (si se conoce): LGMD2J - Titinopat\u00eda<\/p>\n

 <\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Me lo diagnosticaron hace poco, a los 23 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

Al principio me di cuenta de que ten\u00eda que pensar conscientemente en subir a la acera o a las cornisas. Luego me di cuenta de que subir escaleras era cada vez m\u00e1s dif\u00edcil, al igual que recorrer distancias.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD? <\/strong><\/p>\n

S\u00ed, un hermano lo hace.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

El mayor reto de vivir con LGMD es que me resultan dif\u00edciles actividades cotidianas como recorrer distancias o subir escaleras, ya que antes eran cosas que no me planteaba dos veces. Otro reto para m\u00ed es tener una forma rara de distrofia muscular, ya que apenas hay informaci\u00f3n con la que pueda relacionarme o predecir lo que puede ocurrir.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

La LGMD es todav\u00eda muy nueva para m\u00ed, ya que me la diagnosticaron hace s\u00f3lo 3 meses, y a\u00fan estoy intentando adaptarme y averiguar qu\u00e9 va a significar para mi futuro vivir con LGMD. Mi mayor logro es simplemente aprender a ser positiva e incorporar la distrofia muscular a mi vida.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy? <\/strong><\/p>\n

Creo que he aprendido a no dar nada por sentado y a apreciar lo que tienes, mientras lo tienes. Es muy importante ser positivo.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

Creo que es importante darse cuenta de que seguimos siendo la misma persona que \u00e9ramos antes. La gente tambi\u00e9n debe saber que no todos los d\u00edas son iguales para alguien con LGMD, unos d\u00edas estaremos mejor que otros y lo que podemos hacer un d\u00eda puede que no podamos hacerlo al siguiente.<\/p>\n

 <\/p>\n

 <\/p>\n

Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight interview\u201d Name:\u00a0 Kelci \u00a0\u00a0Age: 23 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1334,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,66],"tags":[51,67],"class_list":["post-1335","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2j","tag-australia","tag-lgmd2j"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Kelci - 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