{"id":1403,"date":"2017-01-28T09:30:12","date_gmt":"2017-01-28T15:30:12","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1403"},"modified":"2017-01-28T09:30:12","modified_gmt":"2017-01-28T15:30:12","slug":"brenda","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2017\/01\/28\/brenda\/","title":{"rendered":"INDIVIDUO CON LGMD: Brenda"},"content":{"rendered":"

LGMD \"Entrevista en primer plano\"<\/p>\n

Nombre<\/strong>: Brenda\u00a0 Edad<\/strong>: 55 a\u00f1os\"\"<\/a><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/p>\n

Subtipo LGMD<\/strong>: LGMD2A - tambi\u00e9n conocida como Calpainopat\u00eda<\/p>\n

 <\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Me lo diagnosticaron cuando ten\u00eda 50 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

Mis primeros s\u00edntomas fueron: ca\u00eddas, mu\u00f1ecas ca\u00eddas, una marcha inusual al caminar con las caderas hacia delante, calambres en las piernas y p\u00e9rdida r\u00e1pida de peso.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD?<\/strong><\/p>\n

Ning\u00fan otro miembro de la familia tiene LGMD.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

El mayor reto de vivir con LGMD es que parezco normal y la enfermedad si es para siempre.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

Algunos de mis mayores logros son: esquiar en los Alpes, hacer kayak de mar en la costa atl\u00e1ntica, hacer kayak de mar en el lago Champlain y patinar por el estado de Vermont. Adem\u00e1s, he criado a una hija sana de 17 a\u00f1os y estoy casada desde hace 25 a\u00f1os con un marido excepcional que me quiere con locura pase lo que pase. Tambi\u00e9n he mantenido un trabajo como Directora de Recreaci\u00f3n del \u00fanico Resort de 5 estrellas de Vermont durante 22 a\u00f1os.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

Tengo una actitud positiva y me mantengo sano y feliz pase lo que pase.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

Quiero decirles a todos que sigo siendo la misma Brenda que sol\u00eda bailar cada vez que pod\u00eda y hacer volteretas y flexiones hacia atr\u00e1s en la playa de arena de Gay Head Cliffs, en Martha's Vineyard. La que fue la primera en subir a un slalom con esqu\u00eds acu\u00e1ticos, la primera en esquiar alpino, de fondo y telemark y la primera en esquiar en los Alpes europeos. El primero en esquiar la pared frontal del monte Washington, Tuckerman's Ravine. El primero en esquiar en todas las pistas de diamante negro y doble diamante negro de la estaci\u00f3n de esqu\u00ed de Killington, en Vermont, incluidas todas las pistas del bosque, durante 30 a\u00f1os. Nunca dejar\u00e9 que esta enfermedad me etiquete o me lleve a un estado de cama. El Dr. Anthony Amato dijo \"Buena vida larga\" por delante a los 50 cuando me diagnosticaron. Quiero que el mundo sepa que alguien con discapacidad es como t\u00fa.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

Bailar con mi marido sin fatiga. Esquiar en pistas de nieve polvo con giros perfectos. Caminar por una playa de arena sin fatiga. Volver a hacer senderismo a buen ritmo sin dolor en las articulaciones ni que se me caigan las mu\u00f1ecas. Ir en bici con las chicas y poder seguirles el ritmo. Pedalear sobre la nieve.<\/p>\n

Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” Name:\u00a0 Brenda\u00a0 Age:\u00a0 55 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1404,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-1403","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Brenda - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2017\/01\/28\/brenda\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Brenda - 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