{"id":1503,"date":"2017-07-11T11:52:08","date_gmt":"2017-07-11T16:52:08","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1503"},"modified":"2017-07-11T11:52:08","modified_gmt":"2017-07-11T16:52:08","slug":"ralph","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2017\/07\/11\/ralph\/","title":{"rendered":"INDIVIDUO CON LGMD: Ralph"},"content":{"rendered":"

Nombre<\/strong>: Ralph\u00a0 Edad<\/strong>24 a\u00f1os<\/p>\n

Pa\u00eds<\/strong>: Sud\u00e1frica<\/p>\n

Subtipo LGMD<\/strong>: LGMD2B\"\"<\/a><\/p>\n

 <\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Me lo diagnosticaron a los 23 a\u00f1os, justo despu\u00e9s de terminar mi curso de buceo de rescate.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

Llevo un estilo de vida muy activo y lleno de adrenalina, y cuando me di cuenta de que corr\u00eda cada vez m\u00e1s despacio, empec\u00e9 a entrenar cada vez m\u00e1s duro. Pero al final mi cuerpo se debilitaba cada vez m\u00e1s. Despu\u00e9s de terminar mis inmersiones decid\u00ed buscar ayuda.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD?<\/strong><\/p>\n

No, soy el \u00fanico y mi familia se llev\u00f3 un buen golpe cuando se enteraron de mi diagn\u00f3stico. En realidad no me afect\u00f3. Lo vi como un reto m\u00e1s. Pero despu\u00e9s de un tiempo, la realidad se hizo realidad... si sabes a lo que me refiero.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

Aceptaci\u00f3n. El hecho de no poder realizar todas las actividades que sol\u00eda hacer es todo un reto. Me cost\u00f3 renunciar al paracaidismo, al rafting en aguas bravas y a los todoterrenos porque me exig\u00edan demasiado a los brazos y las piernas.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

Vivir la vida que la mayor\u00eda de la gente sue\u00f1a y ser una inspiraci\u00f3n para todos los que me rodean. Cuando tienes la mentalidad adecuada y una voluntad firme, no hay nada que no puedas lograr.<\/p>\n

Hay una historia que me inspira a vivir una vida plena. Publio Horacio Cocles fue un oficial del ej\u00e9rcito de la antigua Rep\u00fablica Romana que defendi\u00f3 el famoso Pons Sublicius durante la guerra entre Roma y Clusium. El poema dice: Entonces habl\u00f3 el valiente Horacio, el capit\u00e1n de la puerta: \"A todo hombre sobre esta tierra. La muerte llega pronto o tarde. Y c\u00f3mo puede el hombre morir mejor que enfrent\u00e1ndose a temibles adversidades\".<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

Siempre cre\u00ed que era inquebrantable. Desde mi diagn\u00f3stico, me he dado cuenta de que soy imparable. S\u00f3lo hay vida y muerte, y al elegir la vida, mis sue\u00f1os est\u00e1n a un suspiro. Y tengo la intenci\u00f3n de cerrar esa brecha.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

Nunca desprecies a las personas que padecen alg\u00fan tipo de enfermedad. La mentalidad que necesitas para vivir con un obst\u00e1culo as\u00ed y superarlo podr\u00eda ser demasiado para ti.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

Empezar\u00eda a correr y no parar\u00eda hasta que se me rompieran las piernas porque de momento... \u00a1ser\u00e9 libre!<\/p>\n

Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Name:\u00a0 Ralph\u00a0 Age: 24 yrs. old Country: South Africa LGMD […]<\/p>","protected":false},"author":1,"featured_media":1502,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[77],"class_list":["post-1503","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-south-africa"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Ralph - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2017\/07\/11\/ralph\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Ralph - 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