{"id":1564,"date":"2017-09-11T15:56:15","date_gmt":"2017-09-11T20:56:15","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1564"},"modified":"2017-09-11T15:56:15","modified_gmt":"2017-09-11T20:56:15","slug":"karen-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2017\/09\/11\/karen-2\/","title":{"rendered":"INDIVIDUO CON LGMD: Karen"},"content":{"rendered":"

LGMD \"Entrevista en primer plano\"<\/strong><\/p>\n

Nombre<\/strong>: Karen \u00a0Edad<\/strong>: 54 A\u00f1os\"\"<\/a><\/p>\n

Pa\u00eds<\/strong>: EE.UU.<\/p>\n

Subtipo LGMD<\/strong>: LGMD 2I<\/p>\n

 <\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron la enfermedad?<\/strong><\/p>\n

Me lo diagnosticaron a los 33 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros S\u00cdNTOMAS?<\/strong><\/p>\n

Mi primer s\u00edntoma fue una debilidad general en comparaci\u00f3n con otros ni\u00f1os en la clase de gimnasia en la escuela primaria. La clase de gimnasia del instituto fue a\u00fan peor. Se me tensaban los m\u00fasculos isquiotibiales y de la pantorrilla. Mis pantorrillas eran grandes. Lo siguiente fue un cambio notable en mi forma de andar.<\/p>\n

\u00bfTiene otros familiares con LGMD?<\/strong><\/p>\n

No, soy el \u00fanico familiar diagnosticado de LGMD.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

Los mayores retos de vivir con LGMD son completar las tareas diarias personales y dom\u00e9sticas, gestionar la actividad y el descanso, estar preparado para acceder a espacios p\u00fablicos y planificar las necesidades futuras.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

Con el amor y el apoyo de mi familia y mis amigos, abrazo y experimento la vida a pesar de las limitaciones y los obst\u00e1culos siempre cambiantes. Ese es mi mayor logro.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es HOY?<\/strong><\/p>\n

Vivir con LGMD me ha convertido en una persona tolerante, decidida, ingeniosa, humilde y agradecida. He aprendido a aceptar mi diagn\u00f3stico y a darme cuenta de que, a medida que avanza, me brinda la oportunidad de crecer como persona.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>?<\/p>\n

La LGMD es una enfermedad progresiva. Afecta a todos los pensamientos y movimientos de cada d\u00eda. Es esencial seguir investigando y desarrollando una cura, un tratamiento y dispositivos de asistencia.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

Si me curara ma\u00f1ana, \u00a1patinar\u00eda!<\/p>\n

 <\/p>\n

* Si desea leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Karen \u00a0Age: 54 Yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1562,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[83],"class_list":["post-1564","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Karen - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2017\/09\/11\/karen-2\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Karen - 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