{"id":158,"date":"2015-02-06T22:26:15","date_gmt":"2015-02-07T04:26:15","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=158"},"modified":"2015-02-06T22:26:15","modified_gmt":"2015-02-07T04:26:15","slug":"jose-antonio","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/","title":{"rendered":"INDIVIDUO CON LGMD: Jos\u00e9 Antonio"},"content":{"rendered":"

02\/06\/2015:\"LGMD2B<\/a><\/p>\n

NOMBRE<\/strong>: Jos\u00e9 Antonio<\/p>\n

EDAD:<\/strong> 48<\/p>\n

PA\u00cdS:<\/strong> M\u00e9xico<\/p>\n

Subtipo LGMD:<\/strong> LGMD 2B\/Disferlinopat\u00eda<\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron la enfermedad?<\/strong> a los 46 a\u00f1os<\/p>\n

CU\u00c1LES FUERON SUS PRIMEROS S\u00cdNTOMAS:<\/strong>
\nLa primera vez que not\u00e9 debilidad muscular fue a los 30 a\u00f1os. Me detectaron un problema card\u00edaco en la aorta y el cardi\u00f3logo pens\u00f3 que mi debilidad muscular se deb\u00eda a ello. Me hicieron un electromiograma y los resultados fueron buenos, pero segu\u00eda cay\u00e9ndome, chocando con cosas, sin fuerza en las piernas para subir escaleras ni en los brazos para levantar objetos pesados. Creo que el s\u00edntoma m\u00e1s alarmante fue cuando descubr\u00ed que no pod\u00eda saltar, entonces supe que algo iba mal.<\/p>\n

\u00bfTiene otros familiares con LGMD? <\/strong>
\n\u00bfCU\u00c1LES CREE QUE SON LOS MAYORES RETOS DE VIVIR CON LA VGMD:<\/strong>
\nTodo. Una vez que me ayudan a levantarme de la cama, tengo que sentarme en una silla especial para ir al ba\u00f1o y luego me levantan para subirme a una silla de ruedas. De lunes a viernes hago fisioterapia. El fisioterapeuta me levanta con un cintur\u00f3n y camino con \u00e9l unos 10 metros varias veces. Me hace flexionar los brazos con pesas de 1 kg, luego me suben a mi veh\u00edculo y me llevan a mi lugar de trabajo, donde me quedo en mi veh\u00edculo. Lo m\u00e1s triste es que veo crecer a mis hijos y no puedo ir con ellos a disfrutar de cosas sencillas: playa, cine, parques, etc. Mi mujer es la que lo hace, se desvive por m\u00ed y me ayuda mucho.<\/p>\n

\u00bfCU\u00c1L ES SU MAYOR LOGRO?<\/strong>
\nPoder estar en contacto con mis clientes y seguir trabajando a mi manera.<\/p>\n

\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY?<\/strong>:
\nHe aprendido a apreciar a la gente que me ayuda, a tener paciencia, a mantener la esperanza y evitar sentirme deprimida, a dar gracias por todo, a comprender a la gente que no est\u00e1 en mi misma situaci\u00f3n y que se encuentra en una situaci\u00f3n dif\u00edcil, a valorar lo que tengo y a ser ahorradora, a dar m\u00e1s amor a mi familia cada d\u00eda como si fuera el \u00faltimo.
\n\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGM?<\/strong>
\nQu\u00e9 dif\u00edcil es conseguir peque\u00f1as cosas que son insignificantes para otras personas, que conozcan estas enfermedades raras y que haya m\u00e1s inter\u00e9s en estudiar por qu\u00e9 se producen y c\u00f3mo se pueden evitar. Tambi\u00e9n un diagn\u00f3stico precoz para que los pacientes puedan tomar vitaminas para evitar problemas de salud, porque cuando nos volvemos menos m\u00f3viles nuestro cuerpo se debilita y nuestro sistema inmunol\u00f3gico se debilita. Por \u00faltimo, y lo m\u00e1s importante, \u00a1encontrar un tratamiento o cura para esta enfermedad!<\/p>\n

SI SU ALGMD PUDIERA \"CURARSE\" MA\u00d1ANA, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER?<\/strong>
\nCaminar\u00eda por la playa, correr\u00eda, subir\u00eda escaleras, viajar\u00eda por lugares con mis hijos sin que ellos tuvieran que preocuparse por m\u00ed. Llevar\u00eda a mi mujer a comer a un sitio bonito y le dar\u00eda las gracias por todo el amor que me tiene al poder ayudarme y cuidarme. Abrazar a mis hijos para agradecerles todo el apoyo que me dan cada d\u00eda.<\/p>","protected":false},"excerpt":{"rendered":"

02\/06\/2015: NAME: Jos\u00e9 Antonio AGE: 48 COUNTRY: M\u00e9xico LGMD Sub-Type: […]<\/p>","protected":false},"author":1,"featured_media":159,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[21,23,24],"class_list":["post-158","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-dysferlinopathy","tag-lgmd2b","tag-mexico"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Jos\u00e9<\/title>\n<meta name=\"description\" content=\"Jos\u00e9, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - Jos\u00e9\" \/>\n<meta property=\"og:description\" content=\"Jos\u00e9, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta property=\"og:url\" content=\"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2015-02-07T04:26:15+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#article\",\"isPartOf\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Jos\u00e9 Antonio\",\"datePublished\":\"2015-02-07T04:26:15+00:00\",\"dateModified\":\"2015-02-07T04:26:15+00:00\",\"mainEntityOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/\"},\"wordCount\":549,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"Dysferlinopathy\",\"LGMD2B\",\"M\u00e9xico\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2B\"],\"inLanguage\":\"es-MX\"},{\"@type\":\"WebPage\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/\",\"url\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/\",\"name\":\"LGMD Spotlight Interview - Jos\u00e9\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#primaryimage\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2015-02-07T04:26:15+00:00\",\"dateModified\":\"2015-02-07T04:26:15+00:00\",\"description\":\"Jos\u00e9, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\",\"breadcrumb\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#breadcrumb\"},\"inLanguage\":\"es-MX\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Jos\u00e9 Antonio\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es-MX\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"LGMD Spotlight Interview - Jos\u00e9","description":"Jos\u00e9, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/","og_locale":"es_MX","og_type":"article","og_title":"LGMD Spotlight Interview - Jos\u00e9","og_description":"Jos\u00e9, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","og_url":"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2015-02-07T04:26:15+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#article","isPartOf":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Jos\u00e9 Antonio","datePublished":"2015-02-07T04:26:15+00:00","dateModified":"2015-02-07T04:26:15+00:00","mainEntityOfPage":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/"},"wordCount":549,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#primaryimage"},"thumbnailUrl":"","keywords":["Dysferlinopathy","LGMD2B","M\u00e9xico"],"articleSection":["Individuals with LGMD - Interviews","LGMD2B"],"inLanguage":"es-MX"},{"@type":"WebPage","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/","url":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/","name":"LGMD Spotlight Interview - Jos\u00e9","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#primaryimage"},"image":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#primaryimage"},"thumbnailUrl":"","datePublished":"2015-02-07T04:26:15+00:00","dateModified":"2015-02-07T04:26:15+00:00","description":"Jos\u00e9, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","breadcrumb":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#breadcrumb"},"inLanguage":"es-MX","potentialAction":[{"@type":"ReadAction","target":["http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/"]}]},{"@type":"ImageObject","inLanguage":"es-MX","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Jos\u00e9 Antonio"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es-MX"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"es-MX","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"es-MX","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts\/158","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/comments?post=158"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts\/158\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/media?parent=158"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/categories?post=158"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/tags?post=158"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}