{"id":1591,"date":"2017-09-27T13:12:40","date_gmt":"2017-09-27T18:12:40","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1591"},"modified":"2017-09-27T13:12:40","modified_gmt":"2017-09-27T18:12:40","slug":"becky","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","title":{"rendered":"INDIVIDUO CON LGMD: Becky"},"content":{"rendered":"

LGMD \"Entrevista en primer plano\" \u00a0<\/strong><\/p>\n

Nombre<\/strong>: Becky \u00a0\u00a0Edad<\/strong>: 35 a\u00f1os\"\"<\/a><\/p>\n

Pa\u00eds:<\/strong> EE.UU.<\/p>\n

Subtipo LGMD<\/strong>: LGMD2B<\/p>\n

 <\/p>\n

A QU\u00c9 EDAD LE DIAGNOSTICARON: <\/strong><\/p>\n

Me lo diagnosticaron en 2009, a los 27 a\u00f1os.<\/p>\n

CU\u00c1LES FUERON SUS PRIMEROS S\u00cdNTOMAS: <\/strong><\/p>\n

Mis primeros s\u00edntomas fueron dificultad para subir escalones, levantarme del suelo o levantarme de un asiento\/aseo.<\/p>\n

\u00bfTIENE OTROS MIEMBROS DE LA FAMILIA QUE PADEZCAN ALGODISTROFIA? <\/strong><\/p>\n

Ning\u00fan otro miembro de la familia tiene LGMD.<\/p>\n

\u00bfCU\u00c1LES CREE QUE SON LOS MAYORES RETOS DE VIVIR CON LA VGMD: <\/strong><\/p>\n

El mayor reto para m\u00ed es la parte mental de comprender mis limitaciones. Saber que mi vida no es como la hab\u00eda imaginado. Saber las cosas que mi marido y yo tuvimos que cambiar para sobrellevar y hacer frente a esta enfermedad que progresa continuamente.<\/p>\n

\u00bfCU\u00c1L ES SU MAYOR LOGRO? <\/strong><\/p>\n

Creo que mi mayor logro despu\u00e9s de que me diagnosticaran esta enfermedad es mi matrimonio. Nos casamos dos meses antes de que empezaran a hacerme todas las pruebas para determinar qu\u00e9 me pasaba. En la salud y en la enfermedad lleg\u00f3 mucho antes de lo que jam\u00e1s hubi\u00e9ramos imaginado, pero hoy somos m\u00e1s fuertes gracias a ello.<\/p>\n

\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY? <\/strong><\/p>\n

Esta enfermedad me cambia la vida. A pesar de lo dependiente que soy de mi familia y mis amigos, sigo siendo bastante independiente. Conduzco con mandos manuales, soy ingeniosa en las formas que encuentro para seguir haciendo cosas por m\u00ed misma y, en cierto modo, aunque mis m\u00fasculos est\u00e1n m\u00e1s d\u00e9biles, soy m\u00e1s fuerte. Esto no ocurri\u00f3 de repente. Me llev\u00f3 tiempo darme cuenta de que soy una persona fuerte aunque mis m\u00fasculos sean d\u00e9biles.<\/p>\n

\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGM? <\/strong><\/p>\n

Quiero que el mundo sepa y entienda que esta enfermedad es todo un reto. A veces mi cerebro no recuerda que no puedo hacer algo y empiezo a hacerlo para darme cuenta de que no puedo. Quiero que sepan que desde el momento en que alguien con LGMD se despierta tiene que pensar inmediatamente en c\u00f3mo va a afrontar el d\u00eda. El mundo debe saber que esta enfermedad, aunque en cierto modo invisible, es real y extremadamente dif\u00edcil de afrontar. Que el hecho de que alguien salga a la calle con esta enfermedad no significa que est\u00e9 bien o curado. Tenemos que seguir viviendo nuestras vidas, aunque detr\u00e1s de nuestra sonrisa estemos agotados o sufriendo. El mundo tambi\u00e9n debe saber que HABR\u00c1 UNA CURA. Hay mucha gente trabajando en ello y los avances logrados en los pocos a\u00f1os que llevo diagnosticada han sido enormes.<\/p>\n

SI SU ALGMD PUDIERA \"CURARSE\" MA\u00d1ANA, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER? <\/strong><\/p>\n

Esta lista es LARGA....pero primero correr\u00eda. Mis piernas no se han movido as\u00ed en mucho tiempo.<\/p>\n

 <\/p>\n

* Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d \u00a0 Name: Becky \u00a0\u00a0Age:\u00a0 35 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1590,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[87],"class_list":["post-1591","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Becky - 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