{"id":1633,"date":"2017-11-06T10:00:14","date_gmt":"2017-11-06T16:00:14","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1633"},"modified":"2017-11-06T10:00:14","modified_gmt":"2017-11-06T16:00:14","slug":"fred","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/","title":{"rendered":"INDIVIDUO CON LGMD: Fred"},"content":{"rendered":"

LGMD \"ENTREVISTA EN PRIMER PLANO\"<\/strong><\/p>\n

Nombre<\/strong>: Fred \u00a0\u00a0Edad<\/strong>: 36 a\u00f1os\"\"<\/a><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/p>\n

Subtipo LGMD<\/strong>: LGMD2A \/ Calpainopat\u00eda<\/p>\n

 <\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Me lo diagnosticaron a los 13 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

Mirando hacia atr\u00e1s, siempre fui ligeramente m\u00e1s lento que los dem\u00e1s ni\u00f1os, pero no puedo decir que hubiera un s\u00edntoma que mis padres o yo not\u00e1ramos. Me diagnosticaron por casualidad. Hab\u00eda ido a esquiar con un grupo de la iglesia y al final me romp\u00ed una pierna. Cuando fui al servicio de urgencias del hospital por la pierna rota, un doctor se dio cuenta de que no era tan fuerte como deber\u00eda haber sido a esa edad. Me hicieron una biopsia muscular. Inicialmente, me diagnosticaron DM de Becker, todo esto fue antes de las pruebas de ADN.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD? <\/strong><\/p>\n

No, soy el \u00fanico.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

El mayor reto para m\u00ed es no poder sostener a mi hijo de 7 meses sin ayuda. Tener que abogar constantemente por m\u00ed en lo que respecta a esta enfermedad. Nunca me hab\u00eda dado cuenta de cu\u00e1nta gente tiene actitudes \"capacitistas\". Lo \u00faltimo para m\u00ed ser\u00eda no poder visitar libremente a amigos y familiares.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

Tengo muchos logros, pero si s\u00f3lo pudiera elegir uno, dir\u00eda que trabajar para salir de la Seguridad Social. Despu\u00e9s de mi diagn\u00f3stico, hab\u00eda perdido la esperanza de tener un trabajo, un coche, una casa, una familia propia, etc. Hoy en d\u00eda, soy despachador de la polic\u00eda estatal, conduzco, tengo una hermosa familia, actualmente estoy buscando comprar mi primera casa, y soy optimista de que cuando llegue el momento y ya no pueda f\u00edsicamente hacer el trabajo que tengo que Dios proporcionar\u00e1 otra oportunidad.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy? <\/strong><\/p>\n

La LGMD me ha ense\u00f1ado a luchar por lo que quiero. Me ha ense\u00f1ado que nunca estoy tan limitado como pueda pensar. Todo es posible.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

Esa LGMD a\u00fan no se ha curado pero, con su ayuda, puede hacerlo.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

Levantar a mi peque\u00f1o, darle un fuerte abrazo, lanzarlo al aire y atraparlo.<\/p>\n

 <\/p>\n

* Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web en https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/u><\/p>","protected":false},"excerpt":{"rendered":"

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