{"id":1692,"date":"2018-02-13T09:31:28","date_gmt":"2018-02-13T15:31:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1692"},"modified":"2018-02-13T09:31:28","modified_gmt":"2018-02-13T15:31:28","slug":"younis","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/","title":{"rendered":"INDIVIDUO CON LGMD: Younis"},"content":{"rendered":"

NOMBRE<\/strong>: Younis\u00a0 EDAD<\/strong>: 14 a\u00f1os<\/span>
\n PA\u00cdS<\/strong>: Siria<\/span>
\n SUBTIPO LGMD<\/strong>: LGMD 2C\"\"<\/a><\/span><\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/strong><\/span><\/p>\n

Me lo diagnosticaron a los 7 a\u00f1os.<\/span><\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong><\/span><\/p>\n

Los s\u00edntomas empezaron a aparecer cuando ten\u00eda 5 a\u00f1os. De peque\u00f1o, caminaba de puntillas.<\/span><\/p>\n

\u00bfTiene otros familiares que padezcan LGMD?<\/strong><\/span><\/p>\n

S\u00ed, a mi hermano mayor y a dos de mis t\u00edos (hermanos de mi madre) tambi\u00e9n les han diagnosticado LGMD2C. (Mi hermano mayor ha emigrado a Alemania).<\/span><\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/span><\/p>\n

Para m\u00ed, ahora mismo los mayores retos son correr, subir escaleras e ir al ba\u00f1o de forma independiente.<\/span><\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/span><\/p>\n

No s\u00e9 cu\u00e1l ser\u00eda mi mayor logro, pero estoy orgullosa de poder caminar y de seguir siendo bastante independiente. Aunque uno de los retos m\u00e1s dif\u00edciles que he tenido que superar en la vida fue completar mis estudios a pesar de las \"circunstancias de guerra y desplazamiento\" en Siria.<\/span><\/p>\n

\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY?<\/strong><\/span><\/p>\n

La LGMD me ha ense\u00f1ado a ser paciente. Tambi\u00e9n me ha ense\u00f1ado a ser m\u00e1s consciente y abierta.<\/span><\/p>\n

\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGM?<\/strong><\/span><\/p>\n

Quiero que el mundo conozca mejor esta enfermedad y los distintos tipos de LGMD. Adem\u00e1s, quiero que la gente sepa que es vital que haya m\u00e1s investigaci\u00f3n centrada en la LGMD para ayudar a encontrar una cura y un tratamiento para estas enfermedades. Espero que los cient\u00edficos encuentren una cura para esta enfermedad. Tambi\u00e9n quiero que la gente tome medidas para prevenirla.<\/span><\/p>\n

SI SU ALGMD PUDIERA \"CURARSE\" MA\u00d1ANA, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER?<\/strong><\/span><\/p>\n

Si la LGMD se curara ma\u00f1ana, lo primero que har\u00eda ser\u00eda correr r\u00e1pido y luego jugar al f\u00fatbol con mis amigos.<\/span><\/p>\n

 <\/p>\n

* Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web en<\/span> https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0 <\/u><\/p>\n

* Por favor, dale al LIKE, COMENTA y COMPARTE este post para ayudar a concienciar sobre la LGMD.<\/span><\/p>","protected":false},"excerpt":{"rendered":"

NAME:\u00a0 Younis\u00a0 AGE:\u00a0 14 yrs. old COUNTRY:\u00a0 Syria LGMD SUB-TYPE:\u00a0 […]<\/p>","protected":false},"author":1,"featured_media":1690,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[89],"class_list":["post-1692","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-syria"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Younis - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Younis - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"NAME:\u00a0 Younis\u00a0 AGE:\u00a0 14 yrs. old COUNTRY:\u00a0 Syria LGMD SUB-TYPE:\u00a0 […]\" \/>\n<meta property=\"og:url\" content=\"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2018-02-13T15:31:28+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#article\",\"isPartOf\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Younis\",\"datePublished\":\"2018-02-13T15:31:28+00:00\",\"dateModified\":\"2018-02-13T15:31:28+00:00\",\"mainEntityOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/\"},\"wordCount\":357,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"LGMD2C; Syria\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2C\"],\"inLanguage\":\"es-MX\"},{\"@type\":\"WebPage\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/\",\"url\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/\",\"name\":\"INDIVIDUAL WITH LGMD: Younis - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#primaryimage\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2018-02-13T15:31:28+00:00\",\"dateModified\":\"2018-02-13T15:31:28+00:00\",\"breadcrumb\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#breadcrumb\"},\"inLanguage\":\"es-MX\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Younis\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es-MX\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Younis - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/","og_locale":"es_MX","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Younis - LGMD Awareness Foundation","og_description":"NAME:\u00a0 Younis\u00a0 AGE:\u00a0 14 yrs. old COUNTRY:\u00a0 Syria LGMD SUB-TYPE:\u00a0 […]","og_url":"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2018-02-13T15:31:28+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#article","isPartOf":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Younis","datePublished":"2018-02-13T15:31:28+00:00","dateModified":"2018-02-13T15:31:28+00:00","mainEntityOfPage":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/"},"wordCount":357,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#primaryimage"},"thumbnailUrl":"","keywords":["LGMD2C; Syria"],"articleSection":["Individuals with LGMD - Interviews","LGMD2C"],"inLanguage":"es-MX"},{"@type":"WebPage","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/","url":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/","name":"INDIVIDUAL WITH LGMD: Younis - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#primaryimage"},"image":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#primaryimage"},"thumbnailUrl":"","datePublished":"2018-02-13T15:31:28+00:00","dateModified":"2018-02-13T15:31:28+00:00","breadcrumb":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#breadcrumb"},"inLanguage":"es-MX","potentialAction":[{"@type":"ReadAction","target":["http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/"]}]},{"@type":"ImageObject","inLanguage":"es-MX","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Younis"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es-MX"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"es-MX","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"es-MX","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts\/1692","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/comments?post=1692"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts\/1692\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/media?parent=1692"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/categories?post=1692"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/tags?post=1692"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}