{"id":1915,"date":"2018-04-27T10:04:04","date_gmt":"2018-04-27T15:04:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1915"},"modified":"2018-04-27T10:04:04","modified_gmt":"2018-04-27T15:04:04","slug":"zia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","title":{"rendered":"INDIVIDUO CON LGMD: Zia"},"content":{"rendered":"

ENTREVISTA DE LGMD SPOTLIGHT<\/strong><\/p>\n

Nombre<\/strong>: Zia \u00a0\u00a0Edad<\/strong>: 26\"\"<\/a><\/p>\n

Pa\u00eds<\/strong>: Australia<\/p>\n

Subtipo LGMD:<\/strong> Distrofia muscular de cinturas tipo 2i<\/p>\n

 <\/p>\n

A QU\u00c9 EDAD LE DIAGNOSTICARON<\/strong>:<\/p>\n

Me diagnosticaron distrofia muscular a los dos a\u00f1os. Tras muchas pruebas y visitas al m\u00e9dico, me diagnosticaron distrofia muscular de cinturas tipo 2i a los 22 a\u00f1os.<\/p>\n

\u00bfCU\u00c1LES FUERON SUS PRIMEROS S\u00cdNTOMAS?<\/strong>:<\/p>\n

A la edad de un a\u00f1o, mi madre se dio cuenta de que mi hermana gemela y yo no camin\u00e1bamos, ni siquiera gate\u00e1bamos correctamente, sino que arrastr\u00e1bamos los pies. Fue entonces cuando nuestra madre supo que algo no iba bien.<\/p>\n

\u00bfTIENE OTROS MIEMBROS DE LA FAMILIA QUE PADEZCAN ALGODISTROFIA?<\/strong><\/p>\n

S\u00f3lo mi hermana gemela Cyanne tiene distrofia muscular de cinturas tipo 2i.<\/p>\n

\u00bfCU\u00c1LES CREE QUE SON LOS MAYORES RETOS DE VIVIR CON LGMD?<\/strong>:<\/p>\n

Cada d\u00eda es un gran reto para m\u00ed, ya que tengo que confiar plenamente en mi madre y en mis cuidadores para levantarme de la cama por las ma\u00f1anas y hacer todo lo necesario para poder vivir mi vida.<\/p>\n

\u00bfCU\u00c1L ES SU MAYOR LOGRO?<\/strong>:<\/p>\n

Oh, \u00a1tengo muchos logros en mi vida y muchos m\u00e1s por venir! Mi mayor logro ser\u00eda poder estudiar. Actualmente estoy estudiando un Certificado IV en Servicios Jur\u00eddicos. En 2016 obtuve el Certificado IV en Gesti\u00f3n de Peque\u00f1as Empresas y puse en marcha mi propio negocio de edici\u00f3n y correcci\u00f3n de textos llamado Wondrous Words with Zia. Tambi\u00e9n tengo un Diploma Avanzado en Artes (Escritura Profesional), un Certificado en Edici\u00f3n y Correcci\u00f3n Profesional, as\u00ed como un Premio de la Sociedad de Editores (SA) al Mayor Logro en Edici\u00f3n. Tambi\u00e9n tuve el placer de trabajar en la biblioteca durante 6 meses con gente incre\u00edble. Tambi\u00e9n participo activamente en la comunidad. Yo y otras 15 personas formamos parte del Comit\u00e9 Consultivo Juvenil. Colaboramos estrechamente con los miembros del Consejo, asistimos a sus reuniones, expresamos nuestras preocupaciones y opiniones en favor de los j\u00f3venes de Whyalla y planificamos y organizamos actos.<\/p>\n

\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY?<\/strong><\/p>\n

Me centro en lo que puedo hacer y no en lo que no puedo hacer. Mi lema es: \"\u00a1Hago lo que puedo y amo lo que puedo hacer!\".<\/p>\n

\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGML?<\/strong>:<\/p>\n

Me gustar\u00eda que el mundo supiera que vivir con LGMD es un reto. La LGMD afecta a<\/p>\n

m\u00fasculos no tu mente y que a\u00fan soy capaz de formar parte de la vida cotidiana.<\/p>\n

SI MA\u00d1ANA SE PUDIERA \"CURAR\" SU DGML, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER?<\/strong>:<\/p>\n

Corr\u00eda y corr\u00eda y corr\u00eda y corr\u00eda y... bueno, creo que te haces una idea lol ?<\/p>\n

 <\/p>\n

* Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews.<\/p>\n

* Por favor, dale al LIKE, COMENTA y COMPARTE este post para ayudar a concienciar sobre la LGMD.<\/p>","protected":false},"excerpt":{"rendered":"

LGMD SPOTLIGHT INTERVIEW Name: Zia \u00a0\u00a0Age: 26 Country: Australia LGMD […]<\/p>","protected":false},"author":1,"featured_media":1913,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[96],"class_list":["post-1915","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-australia"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Zia - 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