{"id":2231,"date":"2018-09-07T08:45:25","date_gmt":"2018-09-07T13:45:25","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2231"},"modified":"2018-09-07T08:45:25","modified_gmt":"2018-09-07T13:45:25","slug":"mackenzie","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2018\/09\/07\/mackenzie\/","title":{"rendered":"INDIVIDUO CON LGMD: Mackenzie"},"content":{"rendered":"

LGMD \"Entrevista en primer plano\"<\/p>\n

NOMBRE:<\/strong> Mackenzie \u00a0\u00a0EDAD<\/strong>22 a\u00f1os\"\"<\/a><\/p>\n

Pa\u00eds<\/strong>:<\/strong> EE.UU.<\/p>\n

Subtipo LGMD:<\/strong> Desconocido<\/p>\n

A QU\u00c9 EDAD LE DIAGNOSTICARON: <\/strong><\/p>\n

Me lo diagnosticaron el a\u00f1o pasado, a los 21 a\u00f1os.<\/p>\n

CU\u00c1LES FUERON SUS PRIMEROS S\u00cdNTOMAS:<\/strong><\/p>\n

Mis primeros s\u00edntomas fueron dolor de pies y piernas, deslizamiento de los pies al caminar, fatiga y dificultad para levantar objetos que deber\u00edan ser f\u00e1ciles de levantar para una persona de mi edad y estatura.<\/p>\n

\u00bfTIENE OTROS MIEMBROS DE LA FAMILIA QUE PADEZCAN ALGODISTROFIA?<\/strong><\/p>\n

No, soy el \u00fanico.<\/p>\n

\u00bfCU\u00c1LES CREE QUE SON LOS MAYORES RETOS DE VIVIR CON LA VGMD: <\/strong><\/p>\n

Las cosas m\u00e1s sencillas pueden hacer que me duela el cuerpo (limpiar, probarme ropa, ir de compras, etc.). La fatiga constante es siempre una lucha. Estoy aprendiendo a priorizar mis actividades diarias y a aceptar que no siempre puedo hacer lo que quiero.<\/p>\n

\u00bfCU\u00c1L ES SU MAYOR LOGRO?<\/strong>:<\/p>\n

Estoy terminando la universidad para ser profesora de educaci\u00f3n primaria\/especial.<\/p>\n

\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY? <\/strong><\/p>\n

Hace menos de un a\u00f1o que me diagnosticaron la enfermedad, pero he notado que alcanzar mis objetivos es m\u00e1s importante para m\u00ed. Tambi\u00e9n me he prometido este a\u00f1o, \u00a1y estoy tan contenta de que estuvi\u00e9ramos juntos antes del diagn\u00f3stico y aun as\u00ed me pidiera que me casara con \u00e9l! Sigo teniendo objetivos.<\/p>\n

\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGM? <\/strong><\/p>\n

Quiero que el mundo sepa que no somos perezosos. Nos gustar\u00eda ser m\u00e1s activos. Todos los d\u00edas pensamos en lo que queremos hacer pero no tenemos la energ\u00eda o la tolerancia al dolor para hacerlo. Quiero que el mundo sepa que somos personas con esperanzas y sue\u00f1os, igual que ellos.<\/p>\n

SI SU ALGMD PUDIERA \"CURARSE\" MA\u00d1ANA, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER? <\/strong><\/p>\n

Si la LGMD se curara ma\u00f1ana, \u00a1me gustar\u00eda vivir sin dolor y tener la energ\u00eda que deber\u00eda tener una persona de 22 a\u00f1os!<\/p>\n

Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d NAME: Mackenzie \u00a0\u00a0AGE: 22 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":2232,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[99],"class_list":["post-2231","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-united-states-sub-type-unknown"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Mackenzie - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2018\/09\/07\/mackenzie\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Mackenzie - 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