{"id":2303,"date":"2018-10-08T09:01:34","date_gmt":"2018-10-08T14:01:34","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2303"},"modified":"2018-10-08T09:01:34","modified_gmt":"2018-10-08T14:01:34","slug":"dan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2018\/10\/08\/dan\/","title":{"rendered":"INDIVIDUO CON LGMD: Dan"},"content":{"rendered":"

LGMD \"Primer plano\"<\/strong><\/p>\n

Nombre<\/strong>: Dan \u00a0Edad<\/strong>: 40 Yrs. Antiguo\u00a0\u00a0\"\"<\/a><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/p>\n

Subtipo LGMD<\/strong>: LGMD2i<\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Me lo diagnosticaron a los 30 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

Mi primer s\u00edntoma fue debilidad en las piernas. Recuerdo que pis\u00e9 una alfombra y me ca\u00ed porque me fall\u00f3 la pierna. Caminaba de forma inusual. Y no era capaz de sentarme sin agarrarme las piernas para levantarme.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD? <\/strong><\/p>\n

No, soy el \u00fanico de mi familia con LGMD.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

Definitivamente, las escaleras son mi mayor reto en este momento. De hecho, cualquier escal\u00f3n con una contrahuella de m\u00e1s de 3\u2033 es extremadamente dif\u00edcil o imposible. Al principio, compensaba la debilidad de mis piernas usando los brazos en la barandilla para subir las escaleras, pero en los \u00faltimos a\u00f1os mi fuerza en los brazos se ha visto comprometida.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

He conseguido muchos peque\u00f1os triunfos. Uno de ellos es haber podido cruzar andando el puente de Brooklyn en Nueva York. Sin embargo, mi mayor logro ha sido aceptar y asumir mi enfermedad (LGMD), lo que me ha abierto muchas m\u00e1s puertas y posibilidades en mi vida. He aprendido que mi enfermedad no define qui\u00e9n soy como persona.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy? <\/strong><\/p>\n

La LGMD me ha ense\u00f1ado muchas cosas en la vida, pero la m\u00e1s importante es la paciencia. Siempre he sido una persona paciente, pero he aprendido que las cosas no me suceden cuando yo quiero, sino cuando estoy preparado para ellas.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

    \n
  1. Que la distrofia muscular de cinturas no es una prenda de vestir.<\/li>\n
  2. Que la LGMD es simplemente una prueba, todos pasamos por alg\u00fan tipo de prueba en la vida, la m\u00eda es la LGMD. Es una cuesti\u00f3n de \"elecci\u00f3n\" de c\u00f3mo voy a reaccionar y qu\u00e9 voy a hacer al respecto. No tengo derecho a hacer menos que nadie. S\u00ed, tengo distrofia muscular de cinturas, pero ella nunca me tendr\u00e1 a m\u00ed.<\/li>\n<\/ol>\n

    Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

    \u00a1Ir\u00eda a correr!<\/p>\n

    Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

    LGMD \u201cSpotlight interview\u201d Name:\u00a0 Dan \u00a0Age:\u00a0 40 Yrs. 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