{"id":2615,"date":"2019-01-27T15:17:42","date_gmt":"2019-01-27T21:17:42","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2615"},"modified":"2019-01-27T15:17:42","modified_gmt":"2019-01-27T21:17:42","slug":"conquistando-escalones","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/organization-interview\/2019\/01\/27\/conquistando-escalones\/","title":{"rendered":"ORGANIZACI\u00d3N: Conquistando Escalones"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

NOMBRE DE LA ORGANIZACI\u00d3N<\/strong>: CONQUISTANDO ESCALONES<\/p>\n\n\n\n

P\u00c1GINA WEB:<\/strong>              www.conquistandoescalones.org<\/a><\/p>\n\n\n\n

FACEBOOK:        <\/strong> www.facebook.com\/conquistandoescalones<\/a><\/p>\n\n\n\n

TWITTER:             <\/strong>@AceDistrofia<\/a><\/p>\n\n\n\n

EN QU\u00c9 SUBTIPO DE LGMD SE CENTRA SU ORGANIZACI\u00d3N:  <\/strong> <\/p>\n\n\n\n

Nos centramos en la distrofia muscular de cinturas tipo 1F (LGMD1F)  <\/strong><\/p>\n\n\n\n

SI SE CENTRA EN UN SUBTIPO, \u00bfEXISTE\n\u00bfEXISTE UN REGISTRO Y C\u00d3MO PUEDEN INSCRIBIRSE LOS PACIENTES? <\/strong><\/p>\n\n\n\n

S\u00ed, hemos creado un registro de pacientes y los pacientes pueden ponerse en contacto con us<\/g> enviando un correo electr\u00f3nico a conquistandoescalones@gmail.com<\/a> <\/p>\n\n\n\n

\u00bfES SU ORGANIZACI\u00d3N UNA ORGANIZACI\u00d3N SIN \u00c1NIMO DE LUCRO? EN CASO AFIRMATIVO, \u00bfDE QU\u00c9 TIPO?         <\/strong><\/p>\n\n\n\n

S\u00ed, estamos registrados en\nEspa\u00f1a y en Italia. <\/p>\n\n\n\n

QU\u00c9 INSPIR\u00d3 LA\nCREACI\u00d3N DE SU ORGANIZACI\u00d3N<\/strong>:<\/p>\n\n\n\n

La Asociaci\u00f3n se\ncreada por la necesidad de dar a conocer nuestra enfermedad y de\nencontrar los fondos necesarios para llevar a cabo la investigaci\u00f3n.\nFue fundada por personas afectadas por distrofia muscular de cinturas de extremidades\n1F (LGMD-1F) en 2015 porque en este a\u00f1o se ha descubierto que la\nmutaci\u00f3n en el gen que causa la LGMD1F, hace que los afectados sean inmunes al sida y\nles convierte en la puerta de entrada a una posible cura de esta pandemia mundial.<\/p>\n\n\n\n

CU\u00c1L ES LA MISI\u00d3N DE SU ORGANIZACI\u00d3N:<\/strong><\/p>\n\n\n\n

Nuestra misi\u00f3n es concienciar sobre las enfermedades raras y la importancia de estudiarlas. Adem\u00e1s, creamos una base de datos de pacientes de LGMD1F para la investigaci\u00f3n cient\u00edfica que estamos financiando. Ponemos en contacto a los laboratorios de investigaci\u00f3n que est\u00e1n estudiando la LGMD1F. Buscamos constantemente dinero para financiar la investigaci\u00f3n. Ay\u00fadanos a caminar, \u00a1ay\u00fadanos a vivir! Juntos podemos hacerlo. \u00a0<\/p>\n\n\n\n

QU\u00c9 SERVICIOS PRESTA\nPRESTA SU ORGANIZACI\u00d3N:<\/strong><\/p>\n\n\n\n

Ofrecemos apoyo a\npacientes con LGMD1F y otros subtipos de LGMD y mantenemos el Registro de Pacientes con LGMD1F.\nLGMD1F. Adem\u00e1s, estamos constantemente en\ncon los laboratorios de investigaci\u00f3n. <\/p>\n\n\n\n

Nos centramos principalmente\nen la investigaci\u00f3n y el desarrollo de tratamientos, m\u00e1s que en los servicios a los pacientes.  <\/p>\n\n\n\n

DE QU\u00c9\nORGANIZACI\u00d3N M\u00c1S ORGULLOSA:<\/strong><\/p>\n\n\n\n

 En 3 a\u00f1os hemos podido financiar nuevos\nestudios de investigaci\u00f3n sobre LGMD1F, que antes estaban parados. <\/strong><\/p>\n\n\n\n

\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA DE SU ORGANIZACI\u00d3N?<\/strong>:<\/p>\n\n\n\n

Estamos financiando muchos\nCRISPR y la reutilizaci\u00f3n de f\u00e1rmacos ya comercializados para otras enfermedades.\notras enfermedades. <\/p>\n\n\n\n

C\u00d3MO PUEDE LA GENTE\nPARTICIPAR EN EL APOYO A SU ORGANIZACI\u00d3N:<\/strong><\/p>\n\n\n\n

La gente puede ayudarnos\na recaudar fondos para la investigaci\u00f3n organizando eventos, haciendo una donaci\u00f3n o de\notras formas (consulte este enlace a nuestro sitio web\nhttp:\/\/www.conquistandoescalones.org\/web\/en\/how-to-help-us\/)<\/p>\n\n\n\n

CU\u00c1L ES LA MEJOR MANERA\nPONERSE EN CONTACTO CON SU ORGANIZACI\u00d3N:<\/strong><\/p>\n\n\n\n

Puede ponerse en contacto con nosotros en\nconquistandoescalones@gmail.com o tambi\u00e9n pueden enviarnos un mensaje a trav\u00e9s de Facebook.\n<\/p>\n\n\n\n

\u00bfLE GUSTAR\u00cdA A\u00d1ADIR ALGO M\u00c1S?<\/strong><\/p>\n\n\n\n

\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nSi tiene un diagn\u00f3stico de LGMD1F, \u00a1\u00a1\u00a1p\u00f3ngase en contacto con nosotros!!!\n\n\n\n<\/p>","protected":false},"excerpt":{"rendered":"

NAME OF ORGANIZATION:          CONQUISTANDO ESCALONES WEBSITE:              www.conquistandoescalones.org FACEBOOK:        […]<\/p>","protected":false},"author":1,"featured_media":2614,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[94,101,95],"tags":[],"class_list":["post-2615","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-organization-interview","category-lgmd1f","category-organization"],"acf":[],"yoast_head":"\nORGANIZATION: Conquistando Escalones - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/organization-interview\/2019\/01\/27\/conquistando-escalones\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ORGANIZATION: Conquistando Escalones - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"NAME OF ORGANIZATION:          CONQUISTANDO ESCALONES WEBSITE:              www.conquistandoescalones.org FACEBOOK:        […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/es\/organization-interview\/2019\/01\/27\/conquistando-escalones\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2019-01-27T21:17:42+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"ORGANIZATION: Conquistando Escalones\",\"datePublished\":\"2019-01-27T21:17:42+00:00\",\"dateModified\":\"2019-01-27T21:17:42+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/\"},\"wordCount\":495,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#primaryimage\"},\"thumbnailUrl\":\"\",\"articleSection\":[\"LGMD Organization - Interviews\",\"LGMD1F\",\"ORGANIZATION\"],\"inLanguage\":\"es-MX\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/\",\"url\":\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/\",\"name\":\"ORGANIZATION: Conquistando Escalones - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2019-01-27T21:17:42+00:00\",\"dateModified\":\"2019-01-27T21:17:42+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#breadcrumb\"},\"inLanguage\":\"es-MX\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"ORGANIZATION: Conquistando Escalones\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es-MX\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"ORGANIZATION: Conquistando Escalones - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/es\/organization-interview\/2019\/01\/27\/conquistando-escalones\/","og_locale":"es_MX","og_type":"article","og_title":"ORGANIZATION: Conquistando Escalones - LGMD Awareness Foundation","og_description":"NAME OF ORGANIZATION:          CONQUISTANDO ESCALONES WEBSITE:              www.conquistandoescalones.org FACEBOOK:        […]","og_url":"https:\/\/www.lgmd-info.org\/es\/organization-interview\/2019\/01\/27\/conquistando-escalones\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2019-01-27T21:17:42+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"ORGANIZATION: Conquistando Escalones","datePublished":"2019-01-27T21:17:42+00:00","dateModified":"2019-01-27T21:17:42+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/"},"wordCount":495,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#primaryimage"},"thumbnailUrl":"","articleSection":["LGMD Organization - Interviews","LGMD1F","ORGANIZATION"],"inLanguage":"es-MX"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/","url":"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/","name":"ORGANIZATION: Conquistando Escalones - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#primaryimage"},"thumbnailUrl":"","datePublished":"2019-01-27T21:17:42+00:00","dateModified":"2019-01-27T21:17:42+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#breadcrumb"},"inLanguage":"es-MX","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/"]}]},{"@type":"ImageObject","inLanguage":"es-MX","@id":"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/organization-interview\/2019\/01\/27\/conquistando-escalones\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"ORGANIZATION: Conquistando Escalones"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es-MX"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"es-MX","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"es-MX","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts\/2615","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/comments?post=2615"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts\/2615\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/media?parent=2615"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/categories?post=2615"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/tags?post=2615"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}