{"id":2722,"date":"2019-04-29T10:19:08","date_gmt":"2019-04-29T15:19:08","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2722"},"modified":"2019-04-29T10:19:08","modified_gmt":"2019-04-29T15:19:08","slug":"individual-with-lgmd-hasan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/04\/29\/individual-with-lgmd-hasan\/","title":{"rendered":"INDIVIDUO CON LGMD: Hasan"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"ENTREVISTA EN PRIMER PLANO\"<\/strong><\/p>\n\n\n\n

Nombre<\/strong>: Hasan \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0EDAD<\/strong>: 34 a\u00f1os<\/p>\n\n\n\n

Pa\u00eds<\/strong>: Pakist\u00e1n<\/p>\n\n\n\n

Subtipo LGMD<\/strong>:\nDesconocido<\/p>\n\n\n\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n\n\n\n

Me diagnosticaron a los 19 a\u00f1os<\/p>\n\n\n\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n\n\n\n

Empez\u00f3 a sentir dolor y calambres, caminar de guata, la columna vertebral\ncurvatura ....<\/p>\n\n\n\n

\u00bfTiene otros familiares que padezcan LGMD?<\/strong><\/p>\n\n\n\n

S\u00ed, dos hermanas y un hermano tambi\u00e9n padecen esta enfermedad.<\/p>\n\n\n\n

\u00bfCu\u00e1les cree que son los mayores retos\nde vivir con LGMD<\/strong>:<\/p>\n\n\n\n

Bueno, perder la vida independiente creo que es el mayor\ndesaf\u00edos en mi vida. Lo principal es que los lugares de mi pa\u00eds no son\ny la gente siempre piensa que tengo polio. Aun as\u00ed\nen los viejos tiempos, cuando sol\u00eda hacer muchas cosas que ahora no puedo hacer.\nrealmente me apesta. <\/p>\n\n\n\n

La gente no entiende sus necesidades y requisitos en mi\nvida cotidiana. Por lo tanto, tenemos que orientarles.<\/p>\n\n\n\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n\n\n\n

Desde mi punto de vista, ahora tengo un trabajo de ensue\u00f1o que quiero\nhacer en mi vida y ahora me encanta mi trabajo tanto. He empezado con los s\u00edntomas casi\ncerca de la finalizaci\u00f3n de mis estudios. As\u00ed que creo que este es uno de los\nlogro en mi vida.<\/p>\n\n\n\n

\u00bfC\u00f3mo ha influido la LGMD en la persona\npersona que eres hoy:<\/strong><\/p>\n\n\n\n

Para ser honesto hablando, me hizo cambiar tanto mi\nvida entera. Aprend\u00ed mucho despu\u00e9s del diagn\u00f3stico de esta enfermedad y tengo que\naceptarlo. Uno de los elementos principales de mi vida ahora es tener paciencia. <\/p>\n\n\n\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n\n\n\n

Por favor, intenten comprender nuestra enfermedad en lugar de juzgarnos.\nLa vida es bella y s\u00f3lo se vive una vez. As\u00ed que disfruta de cada d\u00eda y no te sientas mal\no deprimido por lo que eres. <\/p>\n\n\n\n

No dude en hacer preguntas sobre nosotros.<\/p>\n\n\n\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana mismo, \u00bfqu\u00e9\nser\u00eda lo primero que querr\u00edas hacer<\/strong>:<\/p>\n\n\n\n

Quiero ir a ver a mis familiares directos para darles la sorpresa\nque puedo volver a caminar. <\/p>\n\n\n\n

Para leer m\u00e1s \"LGMD Spotlight\no para ofrecerse voluntario para una pr\u00f3xima entrevista,\nvisite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

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