{"id":3156,"date":"2019-11-21T20:23:42","date_gmt":"2019-11-22T02:23:42","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3156"},"modified":"2019-11-21T20:23:42","modified_gmt":"2019-11-22T02:23:42","slug":"patrick","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/","title":{"rendered":"INDIVIDUO CON LGMD: Patrick"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"ENTREVISTA EN PRIMER PLANO\"<\/h2>\n\n\n\n

NOMBRE<\/strong>: Patrick   EDAD<\/strong>:\n46 a\u00f1os<\/p>\n\n\n\n

PA\u00cdS<\/strong>: EE.UU.<\/p>\n\n\n\n

Subtipo LGMD<\/strong>: LGMD 2E\/R4 B\u00e8ta-sarcoglycan-related<\/p>\n\n\n\n

\u00bfA qu\u00e9 edad le\nle diagnosticaron<\/strong>:<\/p>\n\n\n\n

Ten\u00eda 12 a\u00f1os y corr\u00eda el a\u00f1o 1985. Al principio me diagnosticaron distrofia muscular de Becker.\nmuscular de Becker.<\/p>\n\n\n\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:\n<\/p>\n\n\n\n

Mis primeros s\u00edntomas fueron problemas para correr en clase de gimnasia, quedarme sin aliento al subir\nescaleras, caminar y correr de puntillas.<\/p>\n\n\n\n

\u00bfTiene otros familiares\nfamiliares con LGMD: <\/strong><\/p>\n\n\n\n

N<\/strong>o, soy la \u00fanica persona de mi familia con LGMD.<\/p>\n\n\n\n

\u00bfCu\u00e1les cree que son los\nmayores retos de vivir con LGMD<\/strong>:<\/p>\n\n\n\n

Uno de los mayores retos es vivir sabiendo que esta enfermedad es\ncondici\u00f3n es progresiva y no saber cu\u00e1nto tiempo tendr\u00e9 funciones y\ncapacidades. Por eso aprovecho al m\u00e1ximo cada d\u00eda.<\/p>\n\n\n\n

\u00bfCu\u00e1l es su mayor\nlogro<\/strong>:<\/p>\n\n\n\n

Tengo muchos. El principal de ellos es haber conocido a mi mujer Vanessa y haber criado a mis dos hijos.\nni\u00f1os, as\u00ed como ser un profesor de m\u00fasica a tiempo completo durante los \u00faltimos 25 a\u00f1os en una\nescuela media.<\/p>\n\n\n\n

\u00bfC\u00f3mo te ha influido la LGMD\npara convertirte en la persona que eres hoy:<\/strong><\/p>\n\n\n\n

Me ha ense\u00f1ado que la vida es preciosa y que todos debemos tomarnos tiempo para respirar y buscar lo mejor en todas las personas y en todas nuestras relaciones.\nrespirar y buscar lo mejor en todas las personas y en todas nuestras relaciones. I\nHe aprendido a ser paciente y a no preocuparme por las cosas peque\u00f1as. Todos los problemas\nproblema puede solucionarse y mejorarse trabajando juntos.<\/p>\n\n\n\n

\u00bfQu\u00e9 quiere que el mundo\nsepa sobre la LGMD<\/strong>:<\/p>\n\n\n\n

Que las personas con LGMD, y cualquier enfermedad cr\u00f3nica tienen d\u00edas buenos y malos, como\ncomo cualquier otra persona, y que llevamos vidas felices y plenas. Somos\npositivos y trabajamos duro.<\/p>\n\n\n\n

Si su LGMD pudiera \"curarse\"\nma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que querr\u00edas hacer<\/strong>:<\/p>\n\n\n\n

Soy percusionista y bater\u00eda de coraz\u00f3n. Con los a\u00f1os, he perdido casi toda la capacidad de tocar. Cuando me cure, me unir\u00e9 a una banda y tocar\u00e9 rock, \u00a1como hac\u00eda en mi juventud! Ja, ja. Paz a TODOS.<\/p>","protected":false},"excerpt":{"rendered":"

LGMD “SPOTLIGHT INTERVIEW” NAME: Patrick   AGE: 46 yrs. old COUNTRY: […]<\/p>","protected":false},"author":1,"featured_media":3157,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,62],"tags":[],"class_list":["post-3156","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2e"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Patrick - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Patrick - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD “SPOTLIGHT INTERVIEW” NAME: Patrick   AGE: 46 yrs. old COUNTRY: […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2019-11-22T02:23:42+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Patrick\",\"datePublished\":\"2019-11-22T02:23:42+00:00\",\"dateModified\":\"2019-11-22T02:23:42+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\"},\"wordCount\":338,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/#primaryimage\"},\"thumbnailUrl\":\"\",\"articleSection\":[\"Individuals with LGMD - 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