{"id":3220,"date":"2020-02-26T12:54:04","date_gmt":"2020-02-26T18:54:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3220"},"modified":"2024-02-09T14:24:40","modified_gmt":"2024-02-09T14:24:40","slug":"chuck","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/","title":{"rendered":"INDIVIDUO CON LGMD: Chuck"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"Entrevista en primer plano\"<\/h2>\n\n\n\n

Nombre<\/strong>: Chuck\n                 Edad<\/strong>: 63 a\u00f1os<\/p>\n\n\n\n

Pa\u00eds<\/strong>: Canad\u00e1<\/p>\n\n\n\n

Subtipo LGMD<\/strong>: LGMD\n2L\/R12 Relacionado con la anoctamina5<\/p>\n\n\n\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>?  <\/p>\n\n\n\n

 Me diagnosticaron\na los 50 a\u00f1os.<\/p>\n\n\n\n

\u00bfCu\u00e1les fueron sus primeros S\u00cdNTOMAS?<\/strong>   <\/p>\n\n\n\n

Cuando fui al hospital debido a un derrame cerebral los m\u00e9dicos\nnotaron que todos los m\u00fasculos de mi espalda hab\u00edan desaparecido y que los huesos sobresal\u00edan.<\/p>\n\n\n\n

\u00bfTiene otros familiares con LGMD?   <\/strong><\/p>\n\n\n\n

No, soy el \u00fanico con LGMD en mi familia.<\/p>\n\n\n\n

\u00bfCu\u00e1les cree que son los mayores retos\nde vivir con LGMD<\/strong>?  <\/p>\n\n\n\n

El mayor reto es verme debilitado y tener que hacer menos\nactividades.<\/strong><\/p>\n\n\n\n

\u00bfCu\u00e1l es su mayor LOGRO?<\/strong>   <\/p>\n\n\n\n

Adem\u00e1s de mis nietos, era experto en revestimientos y dise\u00f1\u00e9 una\nuna gu\u00eda de medici\u00f3n para la instalaci\u00f3n de revestimientos\nNorteam\u00e9rica. Adem\u00e1s, en todos los Home Depot de\nque dise\u00f1\u00e9 y constru\u00ed se instal\u00f3 en todos los Home Depot de Norteam\u00e9rica.\nAm\u00e9rica del Norte.  <\/p>\n\n\n\n

Recaudo dinero y conciencio sobre la DM con mis mesas\nmesas. Cada a\u00f1o suelo recaudar unos\n$12.000,00<\/p>\n\n\n\n

Tambi\u00e9n fui presidente de la secci\u00f3n de London, Ontario, de la\nDistrofia Muscular durante 4 a\u00f1os. <\/p>\n\n\n\n

\u00bfC\u00f3mo te ha influido la LGMD para convertirte en la persona que eres hoy?\npersona que es hoy?   <\/strong><\/p>\n\n\n\n

Al no poder participar en cosas que sol\u00eda hacer, tuve que reinventarme.\nhacer, tuve que reinventarme. Vi una utilidad\nmis habilidades de dise\u00f1o y marketing y ahora recaudo $12.000 cada a\u00f1o para MDC.\ny sensibilizar a la opini\u00f3n p\u00fablica sobre la MD. \n<\/p>\n\n\n\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>?<\/p>\n\n\n\n

Que ataca los m\u00fasculos de tus piernas 1st<\/sup>. Que es una enfermedad muscular hereditaria. <\/p>\n\n\n\n

Que he descubierto lo inaccesibles que son muchos lugares para\npara m\u00ed porque tienen escalones.<\/p>\n\n\n\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9\nser\u00eda lo primero que querr\u00eda hacer?<\/strong><\/p>\n\n\n\n

Si me curara ma\u00f1ana, reservar\u00eda un viaje de submarinismo a\nAustralia.<\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” Name:     Chuck                  Age:  63 years old […]<\/p>","protected":false},"author":1,"featured_media":3221,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,49],"tags":[],"class_list":["post-3220","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2l"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Chuck - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Chuck - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD “Spotlight Interview” Name:     Chuck                  Age:  63 years old […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2020-02-26T18:54:04+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:24:40+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Chuck\",\"datePublished\":\"2020-02-26T18:54:04+00:00\",\"dateModified\":\"2024-02-09T14:24:40+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\"},\"wordCount\":378,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/#primaryimage\"},\"thumbnailUrl\":\"\",\"articleSection\":[\"Individuals with LGMD - 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