{"id":3256,"date":"2020-05-07T19:03:28","date_gmt":"2020-05-08T00:03:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3256"},"modified":"2024-02-09T14:24:38","modified_gmt":"2024-02-09T14:24:38","slug":"denise","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2020\/05\/07\/denise\/","title":{"rendered":"INDIVIDUO CON LGMD: Denise"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"Entrevista en primer plano\"<\/strong><\/p>\n\n\n\n

NOMBRE<\/strong>: Denise                                  EDAD<\/strong>: 49<\/p>\n\n\n\n

PA\u00cdS<\/strong>: Nueva Zelanda<\/p>\n\n\n\n

SUBTIPO LGMD<\/strong>: LGMD 2A\/R1 Calpain3-related<\/p>\n\n\n\n

A QU\u00c9 EDAD LE DIAGNOSTICARON<\/strong>:<\/p>\n\n\n\n

 Me diagnosticaron LGMD cuando ten\u00eda 18 a\u00f1os y recib\u00ed un diagn\u00f3stico confirmado de LGMD 2A\/R1 cuando ten\u00eda 39 a\u00f1os.<\/p>\n\n\n\n

\u00bfCU\u00c1LES FUERON SUS PRIMEROS S\u00cdNTOMAS?<\/strong>:<\/p>\n\n\n\n

Mis s\u00edntomas iniciales eran dificultad para correr y subir escaleras.<\/p>\n\n\n\n

\u00bfTIENE OTROS FAMILIARES CON ALGMD?<\/strong>:<\/p>\n\n\n\n

No, soy el \u00fanico familiar con LGMD.<\/p>\n\n\n\n

\u00bfCU\u00c1LES CREE QUE SON LOS MAYORES RETOS DE VIVIR CON LGMD?<\/strong>:<\/p>\n\n\n\n

Mis mayores retos han sido perder fuerza en los brazos, que me quitaran opciones y la p\u00e9rdida de independencia, y tener que depender de otros para funciones b\u00e1sicas.<\/p>\n\n\n\n

\u00bfCU\u00c1L ES SU MAYOR LOGRO?<\/strong>:<\/p>\n\n\n\n

Mi mayor logro es tener dos hijas preciosas (20 y 16 a\u00f1os).<\/p>\n\n\n\n

\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY?<\/strong>:<\/p>\n\n\n\n

Llevo una vida plena a pesar de mi enfermedad. Sigo trabajando a tiempo completo, viajando y haciendo todo lo que puedo. Intento que esta enfermedad no afecte a lo que quiero conseguir en la vida. Siempre hay un camino si tienes la determinaci\u00f3n suficiente.<\/p>\n\n\n\n

\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGML?<\/strong>:<\/p>\n\n\n\n

La LGMD es una enfermedad progresiva y debilitante que te priva de tus funciones humanas b\u00e1sicas. Las personas con esta enfermedad son incre\u00edblemente fuertes frente a retos incre\u00edbles.<\/p>\n\n\n\n

SI MA\u00d1ANA SE PUDIERA \"CURAR\" SU DGML, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER?<\/strong>:<\/p>\n\n\n\n

Si mi LGMD se curara ma\u00f1ana, \u00a1me ba\u00f1ar\u00eda en la playa!<\/p>\n\n\n\n

* Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d NAME:  Denise                                  AGE: 49 COUNTRY: New […]<\/p>","protected":false},"author":1,"featured_media":3260,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[],"class_list":["post-3256","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Denise - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2020\/05\/07\/denise\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Denise - 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