{"id":3276,"date":"2020-06-16T14:26:06","date_gmt":"2020-06-16T19:26:06","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3276"},"modified":"2024-02-09T14:24:37","modified_gmt":"2024-02-09T14:24:37","slug":"ibrahim","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2020\/06\/16\/ibrahim\/","title":{"rendered":"INDIVIDUO CON LGMD: \u0130brahim"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"ENTREVISTA EN PRIMER PLANO\" <\/strong><\/p>\n\n\n\n

Nombre<\/strong>: \u0130brahim                                 Edad<\/strong>: 55 a\u00f1os<\/p>\n\n\n\n

Pa\u00eds<\/strong>: Turqu\u00eda  <\/p>\n\n\n\n

Subtipo LGMD<\/strong>: LGMD 2B\/R2 Relacionado con la disferlina<\/p>\n\n\n\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n\n\n\n

Me lo diagnosticaron a los 25 a\u00f1os.<\/p>\n\n\n\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n\n\n\n

Al principio, sent\u00eda cansancio en los movimientos repetitivos. La debilidad parec\u00eda empezar en los tobillos. Me afectaba m\u00e1s al pie izquierdo.<\/strong><\/p>\n\n\n\n

\u00bfTiene otros familiares que padezcan LGMD?<\/strong><\/p>\n\n\n\n

No, no hay nadie en mi familia que tenga este mismo diagn\u00f3stico.<\/p>\n\n\n\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong><\/p>\n\n\n\n

Al principio sent\u00eda una ligera fatiga. Como era profesor, los largos periodos de pie parec\u00edan afectar negativamente a mi rendimiento laboral. Empec\u00e9 a andar con un solo bast\u00f3n, pero ten\u00eda dificultades para ir a trabajar. Empec\u00e9 a utilizar sillas.<\/p>\n\n\n\n

Como se trata de una enfermedad muscular de progresi\u00f3n lenta, me resultaba dif\u00edcil explicarme a los que me rodeaban.<\/strong><\/p>\n\n\n\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n\n\n\n

Despu\u00e9s de dejar la docencia, pens\u00e9 que deb\u00eda cambiar la vida de los dem\u00e1s. Primero trabaj\u00e9 para T\u00fcrkiye Kas Hastal\u0131klar\u0131 Derne\u011fi (Organizaci\u00f3n de Trastornos Musculares de Turqu\u00eda, como la MDA). M\u00e1s tarde tambi\u00e9n trabaj\u00e9 para HASGAP (Red de Pacientes Voluntarios). Todav\u00eda trabajo para Izmir-Turqu\u00eda Enfermedades Musculares Branch voluntariamente. Me apasiona la poes\u00eda y la escritura desde mis a\u00f1os de secundaria. He escrito dos libros de poes\u00eda (Moon Blue Nights y a Shore-Free Sea).<\/p>\n\n\n\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n\n\n\n

Vivir con LGMD me ha permitido llevar la muerte en el bolsillo, permiti\u00e9ndome saborear m\u00e1s la vida. La hizo m\u00e1s productiva. Hizo que la vida tocara m\u00e1s.<\/p>\n\n\n\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n\n\n\n

La \u00fanica forma de que el mundo conozca nuestro mundo es marcando la diferencia. No podemos hablar de cambiar nuestra calidad de vida si no so\u00f1amos, producimos y compartimos lo que producimos. La mayor\u00eda de nosotros luchamos contra nuestras enfermedades. Si no hay sue\u00f1o y esfuerzo en este esfuerzo, no podemos cambiar nada. Las mentalidades que no sue\u00f1an y producen no pueden entender esto.<\/p>\n\n\n\n

Quiero que sepan que nuestro coraz\u00f3n y nuestro cerebro funcionan.<\/p>\n\n\n\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n\n\n\n

Har\u00eda cambios en mi imaginaci\u00f3n. Correr\u00eda entre las galaxias y jugar\u00eda en los parques infantiles de las galaxias. Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d  Name:  \u0130brahim                                 Age:  55 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":3277,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[],"class_list":["post-3276","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: \u0130brahim - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2020\/06\/16\/ibrahim\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: \u0130brahim - 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