{"id":3506,"date":"2020-08-30T20:36:00","date_gmt":"2020-08-31T01:36:00","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3506"},"modified":"2025-02-28T20:15:47","modified_gmt":"2025-02-28T20:15:47","slug":"girdie","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/clinic-staff\/2020\/08\/30\/girdie\/","title":{"rendered":"Girdie: Nuestra mascota y embajadora de la LGMD"},"content":{"rendered":"
\"\"<\/figure>\r\n\r\n\r\n\r\n

LGMD \"Entrevista en primer plano\"<\/strong><\/h3>\r\n\r\n\r\n\r\n

Embajador de la LGMD<\/strong>: Girdie<\/p>\r\n\r\n\r\n\r\n

Afiliaci\u00f3n<\/strong>: LGMD Awareness Foundation, Inc.<\/p>\r\n\r\n\r\n\r\n

PAPEL:<\/strong> \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Embajador de la Abogac\u00eda<\/p>\r\n\r\n\r\n\r\n

\u00bfQU\u00c9 LE INSPIR\u00d3 PARA DEDICARSE A LA DEFENSA DE LA DISTROFIA MUSCULAR DE CINTURAS?<\/strong><\/p>\r\n\r\n\r\n\r\n

Como LIMEmoji de LGMD, conoc\u00ed a un grupo de gente incre\u00edble, con talento, divertida y atractiva. Me llamaron la atenci\u00f3n porque todos vest\u00edan de verde lima. Descubr\u00ed que todos tienen algo en com\u00fan: padecen la rara enfermedad neuromuscular distrofia muscular de cinturas (LGMD). Descubr\u00ed c\u00f3mo trabajan juntos para conectar a la comunidad LGMD entre s\u00ed. Unen a familias con LGMD con personas que trabajan para desarrollar tratamientos para la LGMD.\u00a0<\/p>\r\n\r\n\r\n\r\n

\u00bfCU\u00c1LES SON SUS OBJETIVOS COMO EMBAJADOR DE SENSIBILIZACI\u00d3N SOBRE LA LGMD?<\/strong><\/p>\r\n\r\n\r\n\r\n

Como nueva embajadora de la LGMD, utilizar\u00e9 mi alegre personalidad para informar a los dem\u00e1s sobre la LGMD. Me dedicar\u00e9 sobre todo a las redes sociales y a la divulgaci\u00f3n educativa. Eso significa que podr\u00e9 explorar el mundo y concienciar a los dem\u00e1s sobre la LGMD anim\u00e1ndoles a visitar www.lgmd-info.org<\/a> para encontrar datos sobre la LGMD, recursos disponibles y pr\u00f3ximos actos educativos.\u00a0\u00a0<\/p>\r\n\r\n\r\n\r\n

\u00bfC\u00d3MO AYUDAR\u00c1N SUS ESFUERZOS A LOS AFECTADOS POR LA DGML?<\/strong><\/p>\r\n\r\n\r\n\r\n

Llevando mi esp\u00edritu sabroso y divertido a mi viaje por el mundo, despertar\u00e9 el inter\u00e9s por la LGMD. Les har\u00e9 saber que se est\u00e1 investigando para encontrar una cura para muchas formas de LGMD y les dar\u00e9 esperanza. Les ense\u00f1ar\u00e9 que la concienciaci\u00f3n es poder, y que el poder trae curas, tratamientos y cambios en las pol\u00edticas. Demostrar\u00e9 que juntos somos m\u00e1s fuertes.<\/p>\r\n\r\n\r\n\r\n

\u00bfQU\u00c9 LE GUSTAR\u00cdA QUE SUPIERAN LOS DEM\u00c1S SOBRE LA CAMPA\u00d1A DE SENSIBILIZACI\u00d3N DE LA DGML?<\/strong><\/p>\r\n\r\n\r\n\r\n

La sensibilizaci\u00f3n puede llevarse a cabo de muchas maneras diferentes y es muy divertida. No s\u00f3lo se conoce a gente de todo el mundo, sino que se plantan semillas para que crezcan en su comprensi\u00f3n de la LGMD. Al igual que las limas, la concienciaci\u00f3n pasa de ser una semilla, a un brote, \u00a1y a reverdecer superr\u00e1pido! Es muy satisfactorio.\u00a0\u00a0<\/p>\r\n\r\n\r\n\r\n

\u00bfQU\u00c9 ES LO QUE M\u00c1S LE GUSTA DE SER EMBAJADOR DE LA LGMD?<\/strong><\/p>\r\n\r\n\r\n\r\n

Ser Girdie, la embajadora de concienciaci\u00f3n sobre la LGMD, ha hecho que mi vida como LIMEmoji sea m\u00e1s dulce. Me siento inmensamente orgullosa de formar parte de la misi\u00f3n de empoderar a las personas que viven con distrofia muscular de cinturas y a quienes trabajan para encontrar una cura. Adem\u00e1s, me encanta hacerme fotos con gente guay.<\/p>\r\n\r\n\r\n\r\n

\u00bfCU\u00c1L ES EL MAYOR RETO DE SER \"GIRDIE EL LIMEmoji\" Y \"GIRDIE LA EMBAJADORA DE LA CONCIENCIACI\u00d3N SOBRE LA LGMD\"?<\/strong><\/p>\r\n\r\n\r\n\r\n

En serio, el mayor reto es estar listo para la c\u00e1mara para todos los selfies.<\/p>\r\n\r\n\r\n\r\n

\u00bfQU\u00c9 ES LO QUE LE HACE \u00daNICO Y QUE LOS DEM\u00c1S DEBER\u00cdAN CONOCER?<\/strong><\/p>\r\n\r\n\r\n\r\n

Como me llamo Girdie (\u00bflo pillas? \u00bfGirdle?) y el color oficial de LGMD Awareness es el verde lima, me sent\u00ed obligada a formar parte de sus esfuerzos de promoci\u00f3n. Decid\u00ed llevar mi identidad lima natural m\u00e1s all\u00e1 del placer culinario y marcar la diferencia en el mundo.\u00a0<\/p>\r\n\r\n\r\n\r\n\r\n\r\n

Estoy impaciente por compartir los lugares del mundo en los que conozca a otros Embajadores LGMD.\u00a0<\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” LGMD Ambassador:\u00a0 Girdie Affliation:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 LGMD Awareness Foundation, […]<\/p>","protected":false},"author":1,"featured_media":3516,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[105],"tags":[],"class_list":["post-3506","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-clinic-staff"],"acf":[],"yoast_head":"\nGirdie: Our LGMD Ambassador and Mascot - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/clinic-staff\/2020\/08\/30\/girdie\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Girdie: Our LGMD Ambassador and Mascot - 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