{"id":412,"date":"2015-01-06T21:59:11","date_gmt":"2015-01-07T03:59:11","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=138"},"modified":"2015-01-06T21:59:11","modified_gmt":"2015-01-07T03:59:11","slug":"138","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/","title":{"rendered":"INDIVIDUO CON LGMD: Martijn"},"content":{"rendered":"

01\/06\/2015:<\/p>\n

NOMBRE:<\/strong> Martijn\u00a0\"LGMD2A<\/a>\u00a0\u00a0\u00a0 <\/span><\/p>\n

EDAD:<\/strong> 23
\n<\/span><\/p>\n

PA\u00cdS:<\/strong> Pa\u00edses Bajos
\n<\/span><\/p>\n

Subtipo LGMD<\/strong>: LGMD 2A \/ Calpainopat\u00eda
\n<\/span><\/p>\n

A QU\u00c9 EDAD LE DIAGNOSTICARON:<\/strong>\u00a0 Aproximadamente cuando cumpl\u00ed 15 a\u00f1os.<\/span><\/span><\/p>\n

CU\u00c1LES FUERON SUS PRIMEROS S\u00cdNTOMAS:<\/strong>
\nLos primeros s\u00edntomas fueron visibles desde que era un beb\u00e9. Me arrastraba como un cangrejo y era f\u00edsicamente \"diferente\" de mis compa\u00f1eros. Practicaba varios deportes, como gimnasia, voleibol, judo y tenis. Pero mi rendimiento iba disminuyendo debido a la progresi\u00f3n de la debilidad muscular de mi cuerpo.<\/p>\n

\u00bfTIENE OTROS MIEMBROS DE LA FAMILIA QUE PADEZCAN ALGODISTROFIA? \u00a0 <\/strong>No.<\/p>\n

\u00bfCU\u00c1LES CREE QUE SON LOS MAYORES RETOS DE VIVIR CON LA VGMD:<\/strong>
\nLos problemas m\u00e1s pr\u00e1cticos son peores para m\u00ed. Por ejemplo, caminar por mi cuenta por una calle con baldosas torcidas es todo un reto. Requiere mucha atenci\u00f3n y me cansa. En la mayor\u00eda de los casos decido utilizar una silla de ruedas si tengo que caminar largas distancias. Adem\u00e1s, explicar mi enfermedad muscular a desconocidos no es mi pasatiempo favorito. No estoy seguro de cu\u00e1nta informaci\u00f3n debo dar. Algunos me preguntan sobre \"todo el proceso\" y las cosas m\u00e1s personales. Y a otros les da miedo preguntarme cualquier detalle. Hablar de mi enfermedad no es un problema para m\u00ed, pero determinar cu\u00e1nta informaci\u00f3n compartir es el reto.<\/p>\n

\u00bfCU\u00c1L ES SU MAYOR LOGRO?<\/strong>
\n\u00bfTiene unos segundos? Uno de mis mayores logros es el paracaidismo, estudiar y hacer todo lo que la gente sana considera \"imposible\" para los discapacitados. Me gusta cruzar las fronteras en mi vida. Siempre busco aventuras, como viajar con amigos (de hecho, tenemos programado un viaje a Islandia en febrero de 2015), etc\u00e9tera. Adem\u00e1s, un logro personal para m\u00ed es una presentaci\u00f3n sobre mi enfermedad muscular y la forma en que la afronto ante unos 500 estudiantes de medicina.<\/p>\n

\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY?<\/strong>
\nSin duda, la LGMD ha influido en mi vida. Me ha hecho madurar en muchos aspectos. La forma en que afronto los problemas y disfruto de la vida ha cambiado significativamente desde mi diagn\u00f3stico.<\/p>\n

\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGM?<\/strong>
\nLas personas con LGMD o cualquier otra enfermedad muscular no son diferentes de las personas sanas, simplemente pueden necesitar un poco de ayuda, a veces. Adem\u00e1s, no hables a la persona que est\u00e1 detr\u00e1s de la silla de ruedas, sino directamente a la persona en silla de ruedas.<\/p>\n

SI SU ALGMD PUDIERA \"CURARSE\" MA\u00d1ANA, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER?<\/strong>
\nMe gustar\u00eda hacer paracaidismo en solitario.<\/p>","protected":false},"excerpt":{"rendered":"

01\/06\/2015: NAME: Martijn\u00a0\u00a0\u00a0\u00a0 AGE: 23 COUNTRY: The Netherlands LGMD Sub-Type: […]<\/p>","protected":false},"author":1,"featured_media":146,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,17],"class_list":["post-412","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-netherlands"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Martijn<\/title>\n<meta name=\"description\" content=\"Martijn, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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