\n
A QU\u00c9 EDAD LE DIAGNOSTICARON:
\nEmpec\u00e9 a tener s\u00edntomas a los 16 a\u00f1os, pero no me lo diagnosticaron hasta los 22 aproximadamente.<\/p>\n
CU\u00c1LES FUERON SUS PRIMEROS S\u00cdNTOMAS:
\nMi primer s\u00edntoma fueron los tendones tensos. Mi m\u00e9dico me envi\u00f3 a fisioterapia, pero no me ayud\u00f3 mucho. Despu\u00e9s de eso, descubrimos que lo mejor ser\u00eda alargar los tendones de Aquiles. Me operaron y estuve escayolada durante dos meses en cada pierna, una a la vez. Mientras me recuperaba y empezaba de nuevo la fisioterapia, mi fisioterapeuta se dio cuenta de que no recuperaba fuerza. Me envi\u00f3 a un neur\u00f3logo para que me hiciera m\u00e1s pruebas.<\/p>\n
TIENE OTROS FAMILIARES CON LGMD: no<\/p>\n
\u00bfCU\u00c1LES CREE QUE SON LOS MAYORES RETOS DE VIVIR CON LA VGMD:
\nCreo que el mayor reto de vivir con LGMD es que a la gente le cuesta entenderlo. No es f\u00e1cil describir la LGMD a alguien. Mucha gente cree que exagero o incluso que miento sobre mi enfermedad. Sigo teniendo movilidad, por lo que no creen que tenga ning\u00fan problema. Me gustar\u00eda que la gente estuviera m\u00e1s abierta a conocer estas enfermedades y comprendiera lo dif\u00edcil que es.<\/p>\n
\u00bfCU\u00c1L ES SU MAYOR LOGRO?
\nMi mayor logro fue graduarme en la universidad. Compaginaba los estudios con las pruebas m\u00e9dicas que me hac\u00edan. A veces era dif\u00edcil seguir el ritmo, pero me las arregl\u00e9 para salir adelante y participar en organizaciones escolares. Me un\u00ed a Gamma Sigma Sigma (una hermandad de servicio) y fui presidenta del consejo de eventos del Gobierno Unido de Estudiantes. Tuve la oportunidad de planificar eventos como un prestigioso orador y un concierto. La faja de extremidades no me impidi\u00f3 perseguir lo que realmente quer\u00eda. Cruzar el escenario con el diploma en la mano fue una sensaci\u00f3n que nunca olvidar\u00e9.<\/p>\n
\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY?
\nLa LGMD me ha ense\u00f1ado a ser m\u00e1s comprensiva con los dem\u00e1s y sus historias. Todo el mundo tiene una historia que desconocemos. Tambi\u00e9n me ha ense\u00f1ado mucho sobre m\u00ed misma. He aprendido lo que puedo conseguir a pesar de peque\u00f1os contratiempos. El sentido del humor es imprescindible para superar los momentos dif\u00edciles. He aprendido a ser paciente y a aceptar que todo el mundo necesita ayuda.<\/p>\n
\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGM?
\nQuiero que la gente sepa que el hecho de que no se vea no significa que no est\u00e9 ah\u00ed. Intenta ser paciente y comprensivo con las personas que te explican esta enfermedad. Para nosotros es tan dif\u00edcil explicarla como para ti entenderla.<\/p>\n
SI SU ALGMD PUDIERA \"CURARSE\" MA\u00d1ANA, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER?
\nLo primero que me gustar\u00eda hacer es viajar sin todas las dificultades que ello conlleva. Me gustar\u00eda ir a la playa y ba\u00f1arme sin necesidad de ayuda. Estar\u00eda bien poder ir a donde quisiera sin tener que planificar cada peque\u00f1o detalle con antelaci\u00f3n; \u00a1simplemente despreocuparme y pas\u00e1rmelo bien!<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"
03\/01\/2015: NAME: Julianna AGE: 24 COUNTRY: United States LGMD Sub-Type: […]<\/p>","protected":false},"author":1,"featured_media":304,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[23,16],"class_list":["post-418","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b","tag-united-states"],"acf":[],"yoast_head":"\n
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