A QU\u00c9 EDAD LE DIAGNOSTICARON<\/strong>:<\/p>\nMe diagnosticaron distrofia muscular a los 16 a\u00f1os y LGMD2i a los 34 a\u00f1os. Ambos diagn\u00f3sticos me los dieron por tel\u00e9fono. En retrospectiva, me hubiera gustado que los m\u00e9dicos me lo hubieran dicho en persona, porque ten\u00eda muchas preguntas y miedo.<\/p>\n
\u00bfCU\u00c1LES FUERON SUS PRIMEROS S\u00cdNTOMAS?<\/strong>:<\/p>\nLos primeros s\u00edntomas que not\u00e9 fueron calambres dolorosos en las piernas al correr y no poder seguir el ritmo de los dem\u00e1s ni\u00f1os. Me dec\u00edan que era un vago y que me esforzara m\u00e1s en educaci\u00f3n f\u00edsica y en softball. Recuerdo que pens\u00e9: \"Me esfuerzo todo lo que puedo, \u00bfc\u00f3mo hago para ir m\u00e1s r\u00e1pido como los otros ni\u00f1os?\".<\/p>\n
\u00bfTIENE OTROS FAMILIARES CON ALGMD?<\/strong>:<\/p>\nNo, no tengo ning\u00fan otro familiar con LGMD.<\/p>\n
\u00bfCU\u00c1LES CREE QUE SON LOS MAYORES RETOS DE VIVIR CON LGMD?<\/strong>:<\/p>\nLos cambios constantes y tratar de encontrar formas de adaptarme a mi nueva normalidad.<\/p>\n
\u00bfCU\u00c1L ES SU MAYOR LOGRO?<\/strong>:<\/p>\nMi mayor logro es vivir cada d\u00eda con compasi\u00f3n y valent\u00eda, ser esposa de un marido que me apoya y madre de nuestras queridas hijas.<\/p>\n
\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY?<\/strong>:<\/p>\nLa LGMD me ha obligado a bajar el ritmo, a estar presente y consciente. Soy una persona m\u00e1s fuerte y emp\u00e1tica gracias a esta enfermedad. He aprendido a llorar y a re\u00edr al mismo tiempo.<\/p>\n
\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGML?<\/strong>:<\/p>\nMe gustar\u00eda que el mundo conociera mejor la LGMD, especialmente los m\u00e9dicos. S\u00e9 que para muchos de nosotros el camino hasta el diagn\u00f3stico es largo, pero no tiene por qu\u00e9 serlo. Algunas personas con LGMD tienen problemas cardiacos y pulmonares, y creo que es esencial contar con m\u00e9dicos bien informados que controlen y presten apoyo.<\/p>\n
SI MA\u00d1ANA SE PUDIERA \"CURAR\" SU DGML, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER?<\/strong>: Lo primero que me gustar\u00eda hacer es correr; ojal\u00e1 pudiera recordar lo que se siente. A veces, cuando conduzco mi scooter, cierro los ojos y hago como que corro... es un poco peligroso \ud83d\ude42 ....<\/p>","protected":false},"excerpt":{"rendered":"04\/03\/2015 NAME: \u00a0Lacey \u00a0\u00a0\u00a0AGE:\u00a042 COUNTRY:\u00a0United States LGMD Sub-Type:\u00a0LGMD2i AT […]<\/p>","protected":false},"author":1,"featured_media":542,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-544","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\n
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<\/a><\/p>\n