{"id":5561,"date":"2021-11-07T23:51:06","date_gmt":"2021-11-07T23:51:06","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5561"},"modified":"2024-02-09T14:23:59","modified_gmt":"2024-02-09T14:23:59","slug":"individual-with-lgmd-osman","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/","title":{"rendered":"INDIVIDUO CON LGMD: Osman"},"content":{"rendered":"

\"\"<\/p>\n

LGMD \"ENTREVISTA EN PRIMER PLANO\"<\/p>\n

Nombre:<\/strong>\u00a0 Osman<\/p>\n

Edad<\/strong>: 30 a\u00f1os<\/p>\n

Pa\u00eds:<\/strong>\u00a0 Turqu\u00eda<\/p>\n

Subtipo LGMD:<\/strong>\u00a0 LGMD2D\/R3 Relacionado con el sarcoglicano alfa<\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron la enfermedad?<\/strong><\/p>\n

Me lo diagnosticaron a los 16 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong><\/p>\n

Los s\u00edntomas empezaron a manifestarse alrededor de los diecisiete a\u00f1os. Sent\u00eda la necesidad de descansar despu\u00e9s de correr un poco. Me cansaba al subir escaleras. Al cabo de unos a\u00f1os, empec\u00e9 a sujetarme al subir escaleras o al levantarme de una posici\u00f3n sentada. A los 25 a\u00f1os, empec\u00e9 a no poder inclinarme hacia delante y a caminar despacio para no caerme.<\/p>\n

\u00bfTiene otros familiares con LGMD?<\/strong><\/p>\n

S\u00ed, a mi hermana tambi\u00e9n le han diagnosticado LGMD2D\/R3.<\/p>\n

\u00bfCu\u00e1les cree que son los mayores retos de vivir con LGMD?<\/strong><\/p>\n

Los mayores retos tienen que ver con las actividades de la vida diaria. No poder ir donde quiero con mi familia y subir escaleras sin agarrarme a algo.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong><\/p>\n

Mi mayor logro ha sido ser ingeniero inform\u00e1tico y ayudar a crear la asociaci\u00f3n LGMD Turqu\u00eda<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

Me convert\u00ed en una persona muy consciente. Intento ayudar a otras personas en cualquier situaci\u00f3n, en la medida de mis posibilidades. Intento anunciar mi enfermedad y otras enfermedades a otras personas.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong><\/p>\n

Quiero que el mundo lo sepa todo sobre la LGMD: s\u00edntomas, retos, tratamiento, rehabilitaci\u00f3n, \u00faltimas investigaciones cient\u00edficas y la organizaci\u00f3n que trabaja para concienciar y aliviar a las personas y familias afectadas por esta enfermedad neuromuscular progresiva.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que le gustar\u00eda hacer?<\/strong><\/p>\n

Si me curo, quiero correr sin parar y subir escaleras en lugares que antes tem\u00eda.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5560,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[108],"class_list":["post-5561","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d-turkey"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Osman - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Osman - LGMD Awareness Foundation\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2021-11-07T23:51:06+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:23:59+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/11\/LGMD2D-Osman-C.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"720\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"aoss@charter.net\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"aoss@charter.net\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/\"},\"author\":{\"name\":\"aoss@charter.net\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511\"},\"headline\":\"INDIVIDUAL WITH LGMD: Osman\",\"datePublished\":\"2021-11-07T23:51:06+00:00\",\"dateModified\":\"2024-02-09T14:23:59+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/\"},\"wordCount\":568,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/11\/LGMD2D-Osman-C.png\",\"keywords\":[\"LGMD2D; Turkey\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2D\"],\"inLanguage\":\"es-MX\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/\",\"url\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/\",\"name\":\"INDIVIDUAL WITH LGMD: Osman - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/11\/LGMD2D-Osman-C.png\",\"datePublished\":\"2021-11-07T23:51:06+00:00\",\"dateModified\":\"2024-02-09T14:23:59+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#breadcrumb\"},\"inLanguage\":\"es-MX\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#primaryimage\",\"url\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/11\/LGMD2D-Osman-C.png\",\"contentUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/11\/LGMD2D-Osman-C.png\",\"width\":1280,\"height\":720,\"caption\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Osman\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es-MX\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511\",\"name\":\"aoss@charter.net\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es-MX\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g\",\"caption\":\"aoss@charter.net\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Osman - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/","og_locale":"es_MX","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Osman - LGMD Awareness Foundation","og_url":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2021-11-07T23:51:06+00:00","article_modified_time":"2024-02-09T14:23:59+00:00","og_image":[{"width":1280,"height":720,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/11\/LGMD2D-Osman-C.png","type":"image\/png"}],"author":"aoss@charter.net","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"aoss@charter.net","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/"},"author":{"name":"aoss@charter.net","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511"},"headline":"INDIVIDUAL WITH LGMD: Osman","datePublished":"2021-11-07T23:51:06+00:00","dateModified":"2024-02-09T14:23:59+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/"},"wordCount":568,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/11\/LGMD2D-Osman-C.png","keywords":["LGMD2D; Turkey"],"articleSection":["Individuals with LGMD - Interviews","LGMD2D"],"inLanguage":"es-MX"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/","url":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/","name":"INDIVIDUAL WITH LGMD: Osman - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/11\/LGMD2D-Osman-C.png","datePublished":"2021-11-07T23:51:06+00:00","dateModified":"2024-02-09T14:23:59+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#breadcrumb"},"inLanguage":"es-MX","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/"]}]},{"@type":"ImageObject","inLanguage":"es-MX","@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#primaryimage","url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/11\/LGMD2D-Osman-C.png","contentUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/11\/LGMD2D-Osman-C.png","width":1280,"height":720,"caption":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Osman"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es-MX"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"es-MX","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511","name":"aoss@charter.net","image":{"@type":"ImageObject","inLanguage":"es-MX","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g","caption":"aoss@charter.net"}}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts\/5561","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/comments?post=5561"}],"version-history":[{"count":1,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts\/5561\/revisions"}],"predecessor-version":[{"id":7462,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/posts\/5561\/revisions\/7462"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/media\/5560"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/media?parent=5561"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/categories?post=5561"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/es\/wp-json\/wp\/v2\/tags?post=5561"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}