{"id":5855,"date":"2022-08-13T22:20:30","date_gmt":"2022-08-13T22:20:30","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5855"},"modified":"2024-02-09T14:23:52","modified_gmt":"2024-02-09T14:23:52","slug":"5855","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2022\/08\/13\/5855\/","title":{"rendered":"INDIVIDUO CON LGMD: Arthur"},"content":{"rendered":"

\"<\/p>\n

Nombre<\/strong>: Arthur<\/p>\n

Edad<\/strong>: \u00a013<\/p>\n

Pa\u00eds<\/strong>: Francia<\/p>\n

Subtipo LGMD<\/strong>: LGMD 2C\/R5 Gamma Sarcoglycan-related<\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>?<\/p>\n

Me diagnosticaron cuando ten\u00eda 9 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong><\/p>\n

Desde peque\u00f1a he tenido problemas para correr y levantarme del suelo, pero tambi\u00e9n para subir escaleras.<\/p>\n

\u00a0<\/strong>\u00bfTiene otros familiares con LGMD?<\/strong><\/p>\n

No, tengo una hermana, pero no tiene LGMD.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>?<\/p>\n

No es f\u00e1cil hacer entender nuestras dificultades cuando somos ni\u00f1os, a menudo la gente cree que no queremos hacer cosas cuando no podemos porque nuestro cuerpo funciona de otra manera.<\/p>\n

A pesar de la enfermedad, siempre sigo siendo feliz y ambicioso. Espero seguir en pie el mayor tiempo posible.<\/p>\n

\u00bfCu\u00e1l es su mayor LOGRO?<\/strong><\/p>\n

Intento hacer deporte a mi nivel y a mi ritmo, sobre todo f\u00fatbol, me encanta la selecci\u00f3n francesa y especialmente Par\u00eds. Por desgracia no puedo correr. Mientras mis m\u00fasculos me aguanten seguir\u00e9 adelante.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

Soy una persona luchadora, no quiero rendirme ante la enfermedad, quiero superarla. Por eso siempre me mantengo positiva.Me parece que las personas enfermas tienen una gran fuerza interior que es importante mantener para no debilitarse. He conocido a otras personas con LGMD y todas tienen esta fuerza interior y me gusta.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>?<\/p>\n

Me gustar\u00eda que la gente conociera y entendiera la gravedad de la enfermedad y los riesgos que puede haber aunque actualmente no sea muy visible cuando somos ni\u00f1os. Es dif\u00edcil explicarlo porque los dem\u00e1s piensan que no queremos hacer cosas y puede doler mucho mentalmente.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>?<\/p>\n

Si me curo, quiero correr en l\u00ednea recta el mayor tiempo posible. Tambi\u00e9n quiero convertirme en un gran futbolista y ser el m\u00e1s r\u00e1pido del campo. Pero tambi\u00e9n quiero seguir luchando por otros ni\u00f1os con enfermedades raras. Espero que los tratamientos lleguen pronto.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5856,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[110],"class_list":["post-5855","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-france"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Arthur - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2022\/08\/13\/5855\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Arthur - 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