{"id":5884,"date":"2022-09-14T01:28:29","date_gmt":"2022-09-14T01:28:29","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5884"},"modified":"2024-02-09T14:23:51","modified_gmt":"2024-02-09T14:23:51","slug":"individual-with-lgmd-boonsub","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/lgmd2a\/2022\/09\/14\/individual-with-lgmd-boonsub\/","title":{"rendered":"INDIVIDUO CON LGMD: Boonsub"},"content":{"rendered":"

\"<\/p>\n

Nombre<\/strong>: Boonsub<\/p>\n

Edad<\/strong>: \u00a031<\/p>\n

Pa\u00eds<\/strong>: TAILANDIA<\/p>\n

Subtipo LGMD<\/strong>: LGMD 2A\/R1 relacionado con la calpa\u00edna3<\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>?<\/p>\n

Me lo diagnosticaron a los 20 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong><\/p>\n

Rabdomi\u00f3lisis (dolor muscular y orina oscura) debida a un ejercicio intenso.<\/p>\n

\u00bfTiene otros familiares con LGMD?<\/strong><\/p>\n

No, no tengo ning\u00fan familiar con LGMD.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>?<\/p>\n

Desde que me diagnosticaron la enfermedad, correr y subir escaleras es todo un reto. Por lo tanto, no tengo oportunidad de participar con otras personas en actividades de aventura.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong><\/p>\n

En la actualidad, mi mayor logro es la educaci\u00f3n.\u00a0<\/strong>Soy m\u00e9dico y profesor de la Facultad de Medicina. Tambi\u00e9n me gradu\u00e9 en el programa de Maestr\u00eda en Salud P\u00fablica de la Escuela de Salud P\u00fablica T.H. Chan de Harvard. Adem\u00e1s, estoy estudiando en el programa de doctorado (Epidemiolog\u00eda) de la Universidad de Minnesota.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

Me doy cuenta de que tengo que vivir con LGMD. Creo que no hay nada peor que esto. Aunque la LGMD afecta a mis m\u00fasculos, mi cerebro sigue estando bien. En cuanto a mi capacidad, estoy dispuesto a ayudar a los dem\u00e1s, especialmente a mis colegas, estudiantes de medicina y amigos. La LGMD me ha ense\u00f1ado que la vida es demasiado corta para desperdiciarla. No s\u00e9 cu\u00e1nto tiempo podr\u00e9 vivir en el mundo. Por lo tanto, hago todo lo que puedo.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>?<\/p>\n

La LGMD es una enfermedad gen\u00e9tica que afecta a los m\u00fasculos y la mente de las personas que la padecen. Sin embargo, cada persona tiene potencial; por tanto, puede utilizarlo para crear un mundo maravilloso.<\/p>\n

Doy las gracias a mi instituto, a mis profesores, a mis amigos y a mi madre por haberme apoyado a lo largo del tiempo en todas las dimensiones.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>?<\/p>\n

\u00a1Correr\u00e9!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5885,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[111],"class_list":["post-5884","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-thailand"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Boonsub - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/lgmd2a\/2022\/09\/14\/individual-with-lgmd-boonsub\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Boonsub - 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