{"id":6061,"date":"2023-01-24T20:35:20","date_gmt":"2023-01-24T20:35:20","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=6061"},"modified":"2024-02-09T14:23:50","modified_gmt":"2024-02-09T14:23:50","slug":"individual-with-lgmd-heather","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/","title":{"rendered":"INDIVIDUO CON LGMD: Heather"},"content":{"rendered":"

\"<\/p>\n

Nombre<\/strong>: Heather<\/p>\n

Edad<\/strong>60 a\u00f1os<\/p>\n

Pa\u00eds<\/strong>: EE.UU.<\/p>\n

Subtipo LGMD<\/strong>: LGMD2A\/R1 relacionado con la calpa\u00edna 3<\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>?<\/p>\n

Me lo diagnosticaron a los 30 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros S\u00cdNTOMAS?<\/strong><\/p>\n

Mis primeros s\u00edntomas fueron caminar de lado a lado, tener dificultades para subir escaleras y sufrir ca\u00eddas.<\/p>\n

\u00bfTiene otros familiares con LGMD?<\/strong><\/p>\n

No, soy el \u00fanico de mi familia con LGMD.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>?<\/p>\n

El mayor reto para m\u00ed es seguir siendo lo m\u00e1s independiente posible sin ayuda. Hasta ahora, he podido hacerlo.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong><\/p>\n

Mis mayores logros son mis dos hijos, seguir viviendo de forma independiente y conducir mi furgoneta sentado en mi silla de ruedas el\u00e9ctrica.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

La LGMD ha influido en m\u00ed convirti\u00e9ndome en una persona m\u00e1s independiente y positiva.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>?<\/p>\n

Quiero que el mundo sepa que se puede llevar un estilo de vida feliz y \"normal\" si te lo propones, aunque est\u00e9s en silla de ruedas. Tambi\u00e9n quiero que el mundo sepa que no he dejado que la LGMD me deprima. Vivo cada d\u00eda al m\u00e1ximo con una sonrisa en la cara.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>?<\/p>\n

Si me curara ma\u00f1ana, lo primero que har\u00eda ser\u00eda correr una marat\u00f3n con mi hijo y mi hija. \u00a1Ellos son mi mundo!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":6062,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[82,70],"class_list":["post-6061","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Heather - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Heather - 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