{"id":615,"date":"2015-04-29T08:06:42","date_gmt":"2015-04-29T13:06:42","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=615"},"modified":"2015-04-29T08:06:42","modified_gmt":"2015-04-29T13:06:42","slug":"alicia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/04\/29\/alicia\/","title":{"rendered":"INDIVIDUO CON LGMD: Alicia"},"content":{"rendered":"

04\/29\/2015<\/p>\n

Nombre:<\/strong>\u00a0 Alicia<\/p>\n

Edad<\/strong>: 38 a\u00f1os\"LGMD2A<\/a><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/p>\n

Subtipo LGMD<\/strong>: LGMD2A \/ Calpainopat\u00eda<\/p>\n

 <\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Me lo diagnosticaron a los 35 a\u00f1os despu\u00e9s de a\u00f1os y a\u00f1os de diagn\u00f3sticos err\u00f3neos.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

Caminar y correr de puntillas y subir escaleras fueron los primeros s\u00edntomas.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD?<\/strong><\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

Uno de los mayores retos para m\u00ed ha sido encontrar m\u00e9dicos con formaci\u00f3n sobre la LGMD y los retos y s\u00edntomas que conlleva la enfermedad. Muchos m\u00e9dicos no se tomaron en serio mis problemas (dolores musculares, p\u00e9rdida de fuerza, problemas para caminar\/escalar) o pensaron que ten\u00eda una enfermedad autoinmune antes de que encontrara un m\u00e9dico que finalmente me envi\u00f3 a la Cl\u00ednica Mayo. Despu\u00e9s de un EMG, an\u00e1lisis de sangre y una biopsia muscular finalmente me diagnosticaron, pero me llev\u00f3 muchos a\u00f1os y muchos m\u00e9dicos llegar a donde estoy.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

Criar a dos hijas incre\u00edbles con mi marido de 14 a\u00f1os ha sido un logro y una bendici\u00f3n. Ense\u00f1arles a ser amables y a ser m\u00e1s emp\u00e1ticos con la gente, ya que nunca conocemos realmente las dificultades de los que nos rodean.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy? \u00a0<\/strong><\/p>\n

Me ha ense\u00f1ado a ser m\u00e1s amable, a escuchar m\u00e1s y a re\u00edr cada d\u00eda. A veces lo \u00fanico que puedes hacer es re\u00edr.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

Que actualmente no existen tratamientos ni cura para la LGMD y si tiene un familiar o incluso un amigo que haya sido diagnosticado, inf\u00f3rmese sobre la enfermedad. Podr\u00eda significar mucho para alguien.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

\u00a1Baila toda la noche!<\/p>","protected":false},"excerpt":{"rendered":"

04\/29\/2015 Name:\u00a0 Alicia Age:\u00a0 38 yrs. old Country: United States […]<\/p>","protected":false},"author":1,"featured_media":616,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,16],"class_list":["post-615","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Alicia<\/title>\n<meta name=\"description\" content=\"Alicia, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/04\/29\/alicia\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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