{"id":701,"date":"2015-05-21T11:57:37","date_gmt":"2015-05-21T16:57:37","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=701"},"modified":"2015-05-21T11:57:37","modified_gmt":"2015-05-21T16:57:37","slug":"andrea","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/05\/21\/andrea\/","title":{"rendered":"INDIVIDUO CON LGMD: Andrea"},"content":{"rendered":"

05\/21\/2015:<\/p>\n

 <\/p>\n

Nombre:<\/strong>\u00a0 Andrea \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Edad<\/strong>: 17 a\u00f1os\"LGMD1B<\/a><\/p>\n

Pa\u00eds<\/strong>: Noruega<\/p>\n

Subtipo LGMD<\/strong>: LGMD 1B \/ Laminopat\u00eda<\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Ten\u00eda unos 6 meses cuando descubrieron que algo iba mal, pero no fue hasta que ten\u00eda unos 2 a\u00f1os cuando decidieron que era distrofia muscular. Probablemente he padecido la enfermedad toda mi vida. Ten\u00eda 7 a\u00f1os cuando me diagnosticaron LGMD 1B.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

No pod\u00eda sostener la cabeza cuando empec\u00e9 a sentarme sola.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD?<\/strong><\/p>\n

No, soy la \u00fanica con LGMD en mi familia. Mis dos padres se han sometido a las pruebas y los resultados han demostrado que no la he heredado, sino que se trata de una mutaci\u00f3n.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

Los mayores retos son que no puedo hacer nada sola. Necesito ayuda para pr\u00e1cticamente todo, como vestirme, acostarme y levantarme de la cama y recoger cosas.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

Mi mayor logro es mi mente. C\u00f3mo veo todo de forma positiva.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

Me ha hecho apreciar los peque\u00f1os placeres y me ha convertido en una persona muy positiva.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

Quiero que el mundo sepa que no estoy encadenado a mi silla de ruedas, la silla de ruedas es la ayuda m\u00e1s \u00fatil que tengo. Sin ella estar\u00eda encadenado, es mi libertad. Cuando algunas personas me ven, s\u00f3lo ven la silla de ruedas, el ruido que me rodea, y no a m\u00ed. La enfermedad solo afecta a mis m\u00fasculos y no a mi cerebro, soy una chica normal de 17 a\u00f1os.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

Saltaba, corr\u00eda escaleras arriba y abajo, cog\u00eda cosas, \u00a1hac\u00eda todas las cosas normales que nunca hab\u00eda podido hacer!<\/p>","protected":false},"excerpt":{"rendered":"

05\/21\/2015:   Name:\u00a0 Andrea \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Age: 17 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":702,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,44],"tags":[42,43,45],"class_list":["post-701","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd1b","tag-laminopathy","tag-lgmd1b","tag-norway"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Andrea<\/title>\n<meta name=\"description\" content=\"Andrea who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/05\/21\/andrea\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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