{"id":7660,"date":"2023-09-18T16:17:41","date_gmt":"2023-09-18T16:17:41","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=7660"},"modified":"2024-02-09T14:23:47","modified_gmt":"2024-02-09T14:23:47","slug":"individual-with-lgmd-victoria","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/","title":{"rendered":"INDIVIDUO CON LGMD: Victoria"},"content":{"rendered":"

\"<\/p>\n

Nombre<\/strong>: Victoria<\/p>\n

Edad<\/strong>: \u00a038<\/p>\n

Pa\u00eds<\/strong>: EE.UU.<\/p>\n

Subtipo LGMD<\/strong>: Relacionado con LGMD D1 DNAJB6<\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>?<\/p>\n

A los 37 a\u00f1os recib\u00ed un diagn\u00f3stico oficial, aunque se sospechaba que ten\u00eda DM (tipo desconocido) desde los 14 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong><\/p>\n

Mis primeros s\u00edntomas fueron dificultad para correr, subir escaleras y levantarme de una posici\u00f3n sentada. En general, ten\u00eda debilidad general en brazos y piernas.<\/p>\n

\u00bfTiene otros familiares con LGMD?<\/strong><\/p>\n

No, soy la \u00fanica persona de mi familia que tiene LGMD.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>?<\/p>\n

El mayor reto en la disminuci\u00f3n en la realizaci\u00f3n de las tareas diarias de forma independiente, tales como vestirse, conducir, retos ba\u00f1o, hacer la cena, etc. \u00a1Aceptaci\u00f3n!<\/p>\n

\u00bfCu\u00e1les son sus mayores logros?<\/strong><\/p>\n

Mantener una actitud positiva sobre la enfermedad ante mi hijo, y no mostrarle nunca lo deprimida que me siento ni esas luchas diarias.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

Me he vuelto m\u00e1s expresiva y me siento m\u00e1s c\u00f3moda hablando de la enfermedad. He pasado de la autocompasi\u00f3n a educar sobre el capacitismo, la concienciaci\u00f3n y la empat\u00eda.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>?<\/p>\n

Como comunidad, no somos diferentes de los dem\u00e1s. Todos somos seres humanos que merecemos el mismo respeto, amor y aceptaci\u00f3n.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>?<\/p>\n

Volar\u00eda a Par\u00eds.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":7661,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,102],"tags":[103],"class_list":["post-7660","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd-d1-dnajb6-related","tag-lgmd-d1-dnajb6-related-united-states-lgmd1d"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Victoria - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta 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