{"id":8593,"date":"2024-09-27T17:23:35","date_gmt":"2024-09-27T17:23:35","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=8593"},"modified":"2024-09-27T17:25:03","modified_gmt":"2024-09-27T17:25:03","slug":"individual-with-lgmd-dilek","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2024\/09\/27\/individual-with-lgmd-dilek\/","title":{"rendered":"INDIVIDUO CON LGMD: Dilek"},"content":{"rendered":"

\"\"<\/p>\n

Nombre<\/strong>: Dilek<\/p>\n

Edad<\/strong>: \u00a039<\/p>\n

Pa\u00eds<\/strong>: Turqu\u00eda<\/p>\n

Subtipo LGMD<\/strong>: LGMD 2D \/ R3<\/p>\n

 <\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>?<\/p>\n

Me lo diagnosticaron a los 21 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong><\/p>\n

Al principio, not\u00e9 que me costaba subir escaleras.<\/p>\n

\u00bfTiene otros familiares con LGMD?<\/strong><\/p>\n

Mi hermano tiene 35 a\u00f1os<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>?<\/p>\n

No puedo levantarme cuando me caigo. Puedo caerme al menor tropiezo. Tengo dificultades para levantar los brazos. No puedo subir ni bajar escaleras. Mi vida social es limitada.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong><\/p>\n

Mi psicolog\u00eda es fuerte y veo la vida con esperanza. Lucho para apoyar los esfuerzos de tratamiento. Porque soy madre, esposa y trabajadora de la educaci\u00f3n.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

Por supuesto, hay lugares en los que tiene un efecto negativo, mi vida social podr\u00eda ser m\u00e1s activa y concurrida. Por desgracia, no puedo participar en todos los ambientes.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>?<\/p>\n

En cuanto a la accesibilidad, espero que los espacios p\u00fablicos (carreteras, aseos, cafeter\u00edas, restaurantes, etc.) sean accesibles para nosotros, que los m\u00e9dicos, los cient\u00edficos, las asociaciones y, lo que es m\u00e1s importante, los gobiernos apoyen los estudios sobre terapia g\u00e9nica y medicamentos, y que se encuentren soluciones permanentes para nosotros.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>?<\/p>\n

Tengo muchos sue\u00f1os, como nadar en el mar con mi hija sin miedo, hacer un curso para tocar un instrumento musical, correr, jugar a las bolas de nieve y mucho m\u00e1s. Quiero revivir la vida que tuve que posponer.<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

Name:\u00a0 Dilek Age: \u00a039 Country: \u00a0Turkey LGMD Sub-Type: \u00a0LGMD 2D […]<\/p>","protected":false},"author":3,"featured_media":8594,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[108],"class_list":["post-8593","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d-turkey"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Dilek - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2024\/09\/27\/individual-with-lgmd-dilek\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Dilek - 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