{"id":898,"date":"2015-06-25T11:14:20","date_gmt":"2015-06-25T16:14:20","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=898"},"modified":"2015-06-25T11:14:20","modified_gmt":"2015-06-25T16:14:20","slug":"rod","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/06\/25\/rod\/","title":{"rendered":"INDIVIDUO CON LGMD: Rod"},"content":{"rendered":"

06\/25\/2015:<\/strong><\/p>\n

Nombre<\/strong>: Vara\u00a0\u00a0 Edad<\/strong>65 a\u00f1os Old\"LGMD2L<\/a><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/p>\n

Subtipo LGMD<\/strong>: LGMD2L \/ Anoctaminopat\u00eda<\/p>\n

\u00a0<\/strong><\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Me lo diagnosticaron a los 49 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

Mis primeros s\u00edntomas fueron dificultad para subir escaleras y debilidad en las pantorrillas.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD?<\/strong><\/p>\n

No, soy el \u00fanico familiar diagnosticado de LGMD.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

Los mayores retos que presenta mi LGMD2L son: 1) movilidad reducida y 2) no poder practicar deportes que me encantan como el surf, el esqu\u00ed en la nieve y el esqu\u00ed acu\u00e1tico.<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

Mi mayor logro son mis dos maravillosas, maduras y hermosas hijas.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

Vivir con LGMD me ha mostrado el camino de la fortaleza, la paciencia y la empat\u00eda.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

Quiero que el mundo sepa que la LGMD existe y lo que es. La mayor\u00eda de la gente nunca ha o\u00eddo hablar de ella.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

Lo primero que har\u00eda si mi LGMD se curara ma\u00f1ana ser\u00eda ir a la regi\u00f3n de Slick Rock en Utah y hacer una larga caminata... \u00a1con algo de pesca con mosca en el r\u00edo al final!<\/p>","protected":false},"excerpt":{"rendered":"

06\/25\/2015: Name:\u00a0 Rod\u00a0\u00a0 Age: 65 Yrs. Old Country: United States […]<\/p>","protected":false},"author":1,"featured_media":899,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,49],"tags":[48,50,16],"class_list":["post-898","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2l","tag-anoctaminopathy","tag-lgmd2l","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Rod<\/title>\n<meta name=\"description\" content=\"Rod, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/06\/25\/rod\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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