{"id":945,"date":"2015-07-06T10:35:46","date_gmt":"2015-07-06T15:35:46","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=945"},"modified":"2015-07-06T10:35:46","modified_gmt":"2015-07-06T15:35:46","slug":"ramesh","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","title":{"rendered":"INDIVIDUO CON LGMD: Ramesh"},"content":{"rendered":"

07\/06\/2015:<\/strong>\u00a0<\/strong><\/p>\n

NOMBRE<\/strong>: Ramesh \u00a0EDAD<\/strong>28 a\u00f1os\"LGMD2B<\/a>
\nPA\u00cdS<\/strong>: India
\nSubtipo LGMD<\/strong>: LGMD2B \/ Disferlinopat\u00eda<\/p>\n

A QU\u00c9 EDAD LE DIAGNOSTICARON<\/strong>:
\nEmpec\u00e9 a tener s\u00edntomas a los 19 a\u00f1os, pero no me lo diagnosticaron hasta los 22 aproximadamente.<\/p>\n

\u00bfCU\u00c1LES FUERON SUS PRIMEROS S\u00cdNTOMAS?<\/strong>:
\nMi primer s\u00edntoma fue que, cuando iba a la oficina, de repente me ca\u00ed. Consult\u00e9 a mi m\u00e9dico y me sugiri\u00f3 fisioterapia, pero no me sirvi\u00f3 de mucho. Despu\u00e9s de eso, nos dimos cuenta de que lo mejor ser\u00eda consultar a un m\u00e9dico de Bangalore (India). Me hicieron una biopsia de m\u00fasculo y nervio y estuve escayolada dos meses en cada pierna, una a la vez. Me envi\u00f3 a un neur\u00f3logo para que me hiciera m\u00e1s pruebas.<\/p>\n

\u00bfTIENE OTROS FAMILIARES CON ALGMD?<\/strong>: No<\/p>\n

\u00bfCU\u00c1LES CREE QUE SON LOS MAYORES RETOS DE VIVIR CON LGMD?<\/strong>:
\nCreo que el mayor reto de vivir con LGMD es que a la gente le cuesta entenderlo. No es f\u00e1cil describir la LGMD a alguien. Mucha gente cree que exagero o incluso que miento por padecer esta enfermedad. Adem\u00e1s de la enfermedad, considero que la falta de accesibilidad y las actitudes sociales hacia las personas discapacitadas son muy limitantes. Me gustar\u00eda que la gente estuviera m\u00e1s abierta a aprender sobre estas enfermedades y a entender c\u00f3mo librarse de esta enfermedad.<\/p>\n

\u00bfCU\u00c1L ES SU MAYOR LOGRO?<\/strong>:
\nMi mayor logro es conseguir trabajar y seguir trabajando a mi manera.<\/p>\n

\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY?<\/strong>:
\nHe aprendido a apreciar a la gente que me ayuda, a tener paciencia, a mantener la esperanza y evitar sentirme deprimida, a dar gracias por todo, a comprender a la gente que no est\u00e1 en la misma situaci\u00f3n que yo y que se encuentra en una situaci\u00f3n dif\u00edcil, a valorar lo que tengo y a ser ahorradora, a dar m\u00e1s amor a mi familia cada d\u00eda como si fuera el \u00faltimo.... He aprendido a ser paciente y a aceptar el hecho de que todo el mundo necesita que le echen una mano.<\/p>\n

\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGML?<\/strong>:
\nIncluso la mayor\u00eda de los profesionales de la medicina desconocen esta enfermedad, por lo que deben ser conscientes de ello y ense\u00f1ar a los pacientes a afrontar la vida de forma segura y desafiante.<\/p>\n

SI MA\u00d1ANA SE PUDIERA \"CURAR\" SU DGML, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER?<\/strong>:
\nEn primer lugar, me gustar\u00eda felicitar a todos y cada uno de los m\u00e9dicos que me ayudaron en persona. Lo m\u00e1s importante es que me gustar\u00eda abrir un blog sobre esta enfermedad y guiar y ayudar a los pacientes a superar la enfermedad. S\u00e9 lo que estoy sufriendo con esta enfermedad. No dar\u00e9 a otros la oportunidad de volver a sufrir.<\/p>","protected":false},"excerpt":{"rendered":"

07\/06\/2015:\u00a0 NAME: Ramesh \u00a0AGE: 28 yrs. old COUNTRY: India LGMD […]<\/p>","protected":false},"author":1,"featured_media":946,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[21,30,23],"class_list":["post-945","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-dysferlinopathy","tag-india","tag-lgmd2b"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Ramesh<\/title>\n<meta name=\"description\" content=\"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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