{"id":961,"date":"2015-07-22T13:35:05","date_gmt":"2015-07-22T18:35:05","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=961"},"modified":"2015-07-22T13:35:05","modified_gmt":"2015-07-22T18:35:05","slug":"leanne","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/07\/22\/leanne\/","title":{"rendered":"INDIVIDUO CON LGMD: Leanne"},"content":{"rendered":"

07\/22\/2015:<\/p>\n

NOMBRE<\/strong>: Leanne EDAD<\/strong>: 50 a\u00f1os\"LGMD2A<\/a>
\nPA\u00cdS<\/strong>: Australia
\nSubtipo LGMD<\/strong>: LGMD2A \/ Calpainopat\u00eda<\/p>\n

A QU\u00c9 EDAD LE DIAGNOSTICARON<\/strong>:
\nMe lo diagnosticaron a los 42 a\u00f1os mediante una biopsia muscular.<\/p>\n

\u00bfCU\u00c1LES FUERON SUS PRIMEROS S\u00cdNTOMAS?<\/strong>:
\nEstaba perdiendo peso en las caderas y los gl\u00fateos. Tras el diagn\u00f3stico, otras cosas encajaron, como la mayor dificultad para levantarme de una sentadilla, la falta de energ\u00eda tras el trabajo en el gimnasio y la dificultad para subir escaleras.<\/p>\n

\u00bfTIENE OTROS FAMILIARES CON ALGMD?<\/strong>:
\nNo, soy el \u00fanico familiar diagnosticado de LGMD.<\/p>\n

\u00bfCU\u00c1LES CREE QUE SON LOS MAYORES RETOS DE VIVIR CON LGMD?<\/strong>:
\nFalta de espontaneidad en las actividades, especialmente en los viajes en solitario, es decir, \"tiempo de juego\" con la c\u00e1mara, compras...<\/p>\n

Tener que empezar a pedir que se hagan las cosas cuando siempre me he sentido m\u00e1s c\u00f3modo siendo el que ayuda\/hace.<\/p>\n

Tener que reevaluar y redefinir mis objetivos y esperanzas de futuro para ajustarlos a las limitaciones que existen ahora y que seguir\u00e1n existiendo sin unas directrices claras sobre c\u00f3mo y cu\u00e1ndo progresar\u00e1 el LMGD debido a su naturaleza incoherente.<\/p>\n

\u00bfCU\u00c1L ES SU MAYOR LOGRO?<\/strong>:
\nEspero ser una persona buena y cari\u00f1osa en todas mis relaciones y haber contribuido a inculcar a mis hijos adultos una buena moral y valores .<\/p>\n

\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY?<\/strong>:
\nDefinitivamente soy m\u00e1s emp\u00e1tica y tengo menos prisa (jajaja) y acepto m\u00e1s que la vida no siempre es un \"camino de rosas\"<\/p>\n

\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGML?<\/strong>:
\nMe gustar\u00eda que fuera tan f\u00e1cilmente identificable entre el p\u00fablico como otras enfermedades, como la ELA, que siguen luchando por ser reconocidas, pero que tienen un perfil posiblemente m\u00e1s alto que la DM, el c\u00e1ncer, la esclerosis m\u00faltiple y muchas otras, para ayudar a la gente a comprender y conocer las necesidades.<\/p>\n

SI MA\u00d1ANA SE PUDIERA \"CURAR\" SU DGML, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER?<\/strong>:
\nTodos tienen la misma factura: dar un gran paseo en familia, llevar mi c\u00e1mara a la playa, viajar a todas partes sin planificaci\u00f3n previa, redecorar y \u00a1\u00a1\u00a1jardinar!!!<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

07\/22\/2015: NAME: Leanne AGE: 50 yrs. old COUNTRY: Australia LGMD […]<\/p>","protected":false},"author":1,"featured_media":962,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[51,12,19],"class_list":["post-961","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-australia","tag-calpainopathy","tag-lgmd-2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Leanne<\/title>\n<meta name=\"description\" content=\"Leanne who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/07\/22\/leanne\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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