{"id":967,"date":"2015-07-29T10:25:33","date_gmt":"2015-07-29T15:25:33","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=967"},"modified":"2015-07-29T10:25:33","modified_gmt":"2015-07-29T15:25:33","slug":"patricia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/07\/29\/patricia\/","title":{"rendered":"INDIVIDUO CON LGMD: Patricia"},"content":{"rendered":"

07\/29\/2015:<\/strong><\/p>\n

NOMBRE<\/strong>: Patricia \u00a0EDAD<\/strong>: 26 a\u00f1os\"LGMD2A<\/a><\/p>\n

PA\u00cdS<\/strong>: Estados Unidos<\/p>\n

Subtipo LGMD<\/strong>: LGMD2A \/ Calpainopat\u00eda<\/p>\n

 <\/p>\n

A QU\u00c9 EDAD LE DIAGNOSTICARON<\/strong>:<\/p>\n

Me diagnosticaron DM cuando ten\u00eda 12 a\u00f1os.<\/p>\n

\u00bfCU\u00c1LES FUERON SUS PRIMEROS S\u00cdNTOMAS?<\/strong>:<\/p>\n

Los primeros s\u00edntomas fueron que caminaba de puntillas, los brazos no iban rectos, cojeaba al andar y no ganaba peso.<\/p>\n

\u00bfTIENE OTROS MIEMBROS DE LA FAMILIA QUE PADEZCAN ALGODISTROFIA? <\/strong><\/p>\n

Nadie de mi familia tiene distrofia muscular o LGMD.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

El mayor reto es no poder hacer ciertas cosas como caminar, correr, levantarme de la cama por mi cuenta, ba\u00f1arme por mi cuenta, preparar la cena, jugar con mi sobrino en el suelo. Todo lo que hago es un reto.<\/p>\n

\u00bfCU\u00c1L ES SU MAYOR LOGRO?<\/strong>:<\/p>\n

Mi mayor logro ser\u00eda casarme con un hombre maravilloso y, con un poco de suerte, formar pronto una familia; tambi\u00e9n cuando consegu\u00ed mi silla el\u00e9ctrica y pude cocinar por primera vez en dos a\u00f1os, y poder salir a la calle con mi marido.<\/p>\n

\u00bfC\u00d3MO TE HA INFLUIDO LA ALGMD PARA CONVERTIRTE EN LA PERSONA QUE ERES HOY? <\/strong><\/p>\n

Me ha hecho darme cuenta de que, aunque estoy limitado en las cosas que puedo hacer, con las herramientas adecuadas a\u00fan puedo hacer algunas de esas cosas, s\u00f3lo que de una manera diferente.<\/p>\n

\u00bfQU\u00c9 QUIERE QUE EL MUNDO SEPA SOBRE LA DGML?<\/strong>:<\/p>\n

Inf\u00f3rmate sobre la LGMD y algunas de las luchas por las que pasa la gente. No juzgues a nadie por su aspecto. Cada forma de DM tiene un aspecto diferente, pero eso no hace a la persona, su personalidad hace a la persona. Si ves a alguien luchando, ya sea en una silla de ruedas o caminando, ofr\u00e9cete a ayudar, s\u00e9 que cuando alguien me pregunta si puede ayudarme, se lo agradezco mucho.<\/p>\n

SI MA\u00d1ANA SE PUDIERA \"CURAR\" SU DGML, \u00bfQU\u00c9 SER\u00cdA LO PRIMERO QUE DESEAR\u00cdA HACER?<\/strong>:<\/p>\n

Correr\u00eda tan r\u00e1pido como pudiera por la calle y dar\u00eda la vuelta a la manzana, dar\u00eda saltos e incluso volteretas. Sue\u00f1o con el d\u00eda en que pueda hacer esto.<\/p>","protected":false},"excerpt":{"rendered":"

07\/29\/2015: NAME: Patricia \u00a0AGE:\u00a0 26 yrs old COUNTRY: United States […]<\/p>","protected":false},"author":1,"featured_media":968,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,16],"class_list":["post-967","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Patricia<\/title>\n<meta name=\"description\" content=\"Patricia who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/07\/29\/patricia\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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