{"id":990,"date":"2015-08-18T11:15:27","date_gmt":"2015-08-18T16:15:27","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=990"},"modified":"2015-08-18T11:15:27","modified_gmt":"2015-08-18T16:15:27","slug":"martin","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/08\/18\/martin\/","title":{"rendered":"INDIVIDUO CON LGMD: Martin"},"content":{"rendered":"

08\/18\/2015<\/strong><\/p>\n

Nombre<\/strong>: Martin \u00a0EDAD<\/strong>: 42 a\u00f1os\"LGMD2A<\/a><\/p>\n

Pa\u00eds<\/strong>: Reino Unido<\/p>\n

Subtipo LGMD<\/strong>: LGMD2A \/ Calpainopat\u00eda<\/p>\n

 <\/p>\n

\u00bfA qu\u00e9 edad le diagnosticaron<\/strong>:<\/p>\n

Me lo diagnosticaron cuando ten\u00eda 23 a\u00f1os.<\/p>\n

\u00bfCu\u00e1les fueron sus primeros s\u00edntomas?<\/strong>:<\/p>\n

Tuve una ca\u00edda en un garaje, me disloqu\u00e9 la rodilla y eso no se repar\u00f3 en el tiempo previsto.<\/p>\n

\u00bfTiene otros familiares que padezcan LGMD?<\/strong><\/p>\n

S\u00ed, mi hermano mayor tambi\u00e9n tiene LGMD.<\/p>\n

\u00bfCu\u00e1les crees que son los mayores retos de vivir con LGMD?<\/strong>:<\/p>\n

Mis mayores retos son subir escaleras e intentar que la gente entienda lo dif\u00edcil que es ser una persona discapacitada ambulante que est\u00e1 decidida a permanecer de pie el mayor tiempo posible. (y se tambalea un poco)<\/p>\n

\u00bfCu\u00e1l es su mayor logro?<\/strong>:<\/p>\n

Me di cuenta de que pod\u00eda escribir sobre la distrofia muscular y que la gente me escuchaba. He continuado sensibilizando y recaudando fondos vitales para la investigaci\u00f3n, asistiendo a las c\u00e1maras del Parlamento, concienciando a deportistas y personalidades de la televisi\u00f3n sobre estas enfermedades a trav\u00e9s de las redes sociales, siendo reconocido y recompensado por MDUK por todos mis esfuerzos para sensibilizar y recaudar fondos para la investigaci\u00f3n, cambiando mi carrera para estar en posici\u00f3n de ayudar a los dem\u00e1s, siendo padre de tres ni\u00f1as estupendas, intentando ser un buen modelo a seguir y siendo positivo todo el tiempo.<\/p>\n

\u00bfC\u00f3mo le ha influido la LGMD para convertirse en la persona que es hoy?<\/strong><\/p>\n

Ir\u00f3nicamente, creo que la LGMD me ha hecho m\u00e1s fuerte de lo que nunca pens\u00e9 que ser\u00eda. Estoy decidida a que todo el mundo conozca estas enfermedades y a facilitar la vida de muchas otras personas en el futuro.<\/p>\n

\u00bfQu\u00e9 quiere que el mundo sepa sobre la LGMD?<\/strong>:<\/p>\n

Saber que existe ser\u00eda un buen comienzo. No fue hasta mi diagn\u00f3stico y a\u00f1os m\u00e1s tarde, cuando empec\u00e9 a hablar de la enfermedad, cuando me di cuenta de que mi familia, mis amigos y la sociedad en general no hab\u00edan o\u00eddo hablar de NING\u00daN tipo o variedad de distrofia muscular, y eso tiene que cambiar; es imperativo que la gente conozca estas enfermedades.<\/p>\n

Si su LGMD pudiera \"curarse\" ma\u00f1ana, \u00bfqu\u00e9 ser\u00eda lo primero que desear\u00eda hacer?<\/strong>:<\/p>\n

Correr por una playa lo m\u00e1s r\u00e1pido posible (pensando en la pel\u00edcula \"Carros de fuego\" y tambi\u00e9n con la banda sonora de Vangelis) y luego darme el mayor de los abrazos con todas mis hijas y mi mujer.<\/p>\n

Para leer m\u00e1s \"LGMD Spotlight Interviews\" o presentarse voluntario para una pr\u00f3xima entrevista, visite nuestro sitio web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

08\/18\/2015 Name: Martin \u00a0AGE: 42 yrs. old Country: United Kingdom […]<\/p>","protected":false},"author":1,"featured_media":991,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,20],"class_list":["post-990","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-kingdom"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Martin<\/title>\n<meta name=\"description\" content=\"Martin, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2015\/08\/18\/martin\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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