{"id":4578,"date":"2021-02-23T19:26:04","date_gmt":"2021-02-23T19:26:04","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?page_id=4578"},"modified":"2026-03-27T20:57:21","modified_gmt":"2026-03-27T20:57:21","slug":"on-line-lgmd-support-groups-on-facebook","status":"publish","type":"page","link":"https:\/\/www.lgmd-info.org\/fr\/knowledge-base\/community-network\/on-line-lgmd-support-groups-on-facebook\/","title":{"rendered":"Groupes de soutien en ligne sur Facebook :"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1456px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p>Le parcours de la dystrophie musculaire des ceintures (DMG) peut \u00eatre difficile, mais personne ne doit y faire face seul. La page \"Groupes de soutien en ligne sur Facebook\" propose une liste de groupes Facebook priv\u00e9s et publics, chacun adapt\u00e9 \u00e0 des besoins sp\u00e9cifiques et \u00e0 des sujets li\u00e9s \u00e0 la dystrophie musculaire des ceintures. Des groupes d\u00e9di\u00e9s aux sous-types non diagnostiqu\u00e9s aux forums pour les aidants, les m\u00e8res et m\u00eame les discussions sur la sant\u00e9 mentale, ces plateformes favorisent un sentiment de communaut\u00e9, de compr\u00e9hension et d'exp\u00e9riences partag\u00e9es. Que vous soyez \u00e0 la recherche de conseils, que vous cherchiez \u00e0 partager votre histoire ou que vous souhaitiez simplement entrer en contact avec d'autres personnes qui vous comprennent, ces groupes offrent un espace de s\u00e9curit\u00e9 et de soutien \u00e0 toutes les personnes touch\u00e9es par la LGMD.<\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1456px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-overflow:hidden;--awb-bg-color:var(--awb-color4);--awb-bg-color-hover:var(--awb-color4);--awb-bg-size:cover;--awb-box-shadow:0px 0px 4px 0px var(--awb-color2);;--awb-border-radius:5px 5px 5px 5px;--awb-width-large:100%;--awb-margin-top-large:20px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-text fusion-title-size-three\" style=\"--awb-text-color:var(--awb-color1);--awb-margin-right:10px;--awb-margin-bottom:10px;--awb-margin-left:15px;--awb-font-size:var(--awb-custom_typography_3-font-size);\"><h3 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"font-family:var(--awb-custom_typography_3-font-family);font-weight:var(--awb-custom_typography_3-font-weight);font-style:var(--awb-custom_typography_3-font-style);margin:0;font-size:1em;letter-spacing:var(--awb-custom_typography_3-letter-spacing);text-transform:var(--awb-custom_typography_3-text-transform);--fontSize:26;--minFontSize:26;line-height:var(--awb-custom_typography_3-line-height);\">Groupes de soutien LGMD sur Facebook<\/h3><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;width:100%;\"><div class=\"fusion-separator-border sep-shadow\" style=\"--awb-height:20px;--awb-amount:20px;--awb-sep-color:var(--awb-color1);background:radial-gradient(ellipse at 50% -50% , var(--awb-color1) 0px, rgba(255, 255, 255, 0) 80%) repeat scroll 0 0 rgba(0, 0, 0, 0);background:-webkit-radial-gradient(ellipse at 50% -50% , var(--awb-color1) 0px, rgba(255, 255, 255, 0) 80%) repeat scroll 0 0 rgba(0, 0, 0, 0);background:-moz-radial-gradient(ellipse at 50% -50% , var(--awb-color1) 0px, rgba(255, 255, 255, 0) 80%) repeat scroll 0 0 rgba(0, 0, 0, 0);background:-o-radial-gradient(ellipse at 50% -50% , var(--awb-color1) 0px, rgba(255, 255, 255, 0) 80%) repeat scroll 0 0 rgba(0, 0, 0, 0);\"><\/div><\/div><div class=\"fusion-builder-row fusion-builder-row-inner fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"width:104% !important;max-width:104% !important;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column_inner fusion-builder-nested-column-0 fusion_builder_column_inner_1_1 1_1 fusion-flex-column\" style=\"--awb-padding-top:15px;--awb-padding-right:15px;--awb-padding-bottom:15px;--awb-padding-left:15px;--awb-bg-color:#f2f2f2;--awb-bg-color-hover:#f2f2f2;--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-2 fusion-sep-none fusion-title-text fusion-title-size-paragraph\" style=\"--awb-font-size:var(--awb-custom_typography_6-font-size);\"><p class=\"fusion-title-heading title-heading-left title-heading-tag fusion-responsive-typography-calculated\" style=\"font-family:var(--awb-custom_typography_6-font-family);font-weight:var(--awb-custom_typography_6-font-weight);font-style:var(--awb-custom_typography_6-font-style);margin:0;font-size:1em;letter-spacing:var(--awb-custom_typography_6-letter-spacing);text-transform:var(--awb-custom_typography_6-text-transform);--fontSize:16;--minFontSize:16;line-height:var(--awb-custom_typography_6-line-height);\"><p>Personne ne devrait avoir \u00e0 naviguer seul dans l'aventure du LGMD et les exp\u00e9riences partag\u00e9es peuvent \u00eatre d'une grande force.<\/p>\n<p>Les m\u00e9dias sociaux ont profond\u00e9ment chang\u00e9 la fa\u00e7on dont les personnes atteintes de LGMD se connectent aux autres - au coin de la rue et dans le monde entier. Heureusement, les patients atteints de LGMD et les membres de leur famille peuvent d\u00e9sormais b\u00e9n\u00e9ficier du soutien de leurs pairs via Internet. Les personnes atteintes de LGMD, les membres de leur famille et\/ou les soignants n'ont plus \u00e0 se sentir seuls face \u00e0 cette maladie rare. Par l'interm\u00e9diaire de\u00a0<strong><a href=\"https:\/\/www.facebook.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Facebook<\/a><\/strong>En outre, un certain nombre de groupes d'entraide en ligne li\u00e9s au LGMD ont \u00e9t\u00e9 mis en place. ** Un compte Facebook actif est n\u00e9cessaire **<\/p><\/p><\/div><div class=\"accordian fusion-accordian\" style=\"margin-top:10px;margin-bottom:10px;--awb-margin-top:10px;--awb-margin-bottom:10px;--awb-border-size:1px;--awb-icon-size:16px;--awb-content-font-size:var(--awb-custom_typography_6-font-size);--awb-content-letter-spacing:var(--awb-custom_typography_6-letter-spacing);--awb-content-text-transform:var(--awb-custom_typography_6-text-transform);--awb-content-line-height:var(--awb-custom_typography_6-line-height);--awb-icon-alignment:left;--awb-hover-color:var(--awb-color1);--awb-border-color:#e2e2e2;--awb-background-color:#ffffff;--awb-divider-color:#031698;--awb-divider-hover-color:#031698;--awb-icon-color:var(--awb-color4);--awb-title-color:var(--awb-color4);--awb-content-color:#575757;--awb-icon-box-color:#212934;--awb-toggle-hover-accent-color:var(--awb-color3);--awb-toggle-active-accent-color:var(--awb-color3);--awb-title-font-family:var(--awb-typography3-font-family);--awb-title-font-weight:var(--awb-typography3-font-weight);--awb-title-font-style:var(--awb-typography3-font-style);--awb-title-font-size:18px;--awb-title-letter-spacing:var(--awb-typography3-letter-spacing);--awb-title-line-height:var(--awb-typography3-line-height);--awb-title-text-transform:capitalize;--awb-content-font-family:var(--awb-custom_typography_6-font-family);--awb-content-font-weight:var(--awb-custom_typography_6-font-weight);--awb-content-font-style:var(--awb-custom_typography_6-font-style);\"><div class=\"panel-group fusion-toggle-icon-unboxed\" id=\"accordion-4578-1\"><div class=\"fusion-panel panel-default panel-70e2eb6418866b1ed fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_70e2eb6418866b1ed\"><a aria-expanded=\"false\" aria-controls=\"70e2eb6418866b1ed\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#70e2eb6418866b1ed\" href=\"#70e2eb6418866b1ed\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Forums de partage de soutien, d'exp\u00e9riences et de r\u00e9flexions sur la vie avec le LGMD<\/span><\/a><\/h5><\/div><div id=\"70e2eb6418866b1ed\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_70e2eb6418866b1ed\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<p>La plupart sont des groupes Facebook \"priv\u00e9s\" pour des raisons de confidentialit\u00e9... les personnes doivent demander \u00e0 en faire partie.<\/p>\n<ul>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/29111827568\/\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD : Au-del\u00e0 des \u00e9tiquettes et des limites<\/a>\u00a0-\u00a0<\/strong>pour TOUTES les formes de LGMD<\/li>\n<li><b><a href=\"https:\/\/www.facebook.com\/groups\/923541374864577\" target=\"_blank\" rel=\"noopener noreferrer\">Guerriers de la gaine des membres<\/a><\/b>\u00a0- pour TOUTES les formes de LGMD<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/29111827568\/\" target=\"_blank\" rel=\"noopener noreferrer\">Vivre avec une dystrophie musculaire des ceintures<\/a><\/strong>\u00a0- pour TOUTES les formes de LGMD<\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-5f33ae51578d98948 fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_5f33ae51578d98948\"><a aria-expanded=\"false\" aria-controls=\"5f33ae51578d98948\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#5f33ae51578d98948\" href=\"#5f33ae51578d98948\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">For LGMD1B \/ Emery-Dreifuss <\/span><\/a><\/h5><\/div><div id=\"5f33ae51578d98948\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_5f33ae51578d98948\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><strong><a href=\"http:\/\/www.facebook.com\/groups\/693741110762395\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD1B<\/a><\/strong>&nbsp;- pour LGMD1B<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/466309723452570\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Dystrophie musculaire des ceintures de type 1b<\/strong>&nbsp;<\/a>- pour LGMD1B<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/525788290817620\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Dystrophie musculaire des ceintures de type 1b<\/strong><\/a>&nbsp;- pour LGMD1B&nbsp;<em>(un groupe Facebook \"public\")<\/em><\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-85cae02e8c8970bdb fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_85cae02e8c8970bdb\"><a aria-expanded=\"false\" aria-controls=\"85cae02e8c8970bdb\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#85cae02e8c8970bdb\" href=\"#85cae02e8c8970bdb\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Pour LGMD1D et toutes les formes dominantes de LGMD\t\t <\/span><\/a><\/h5><\/div><div id=\"85cae02e8c8970bdb\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_85cae02e8c8970bdb\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/LGMD.1D\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Dystrophie musculaire des ceintures de type 1D et sous-groupe Dnajb6<\/strong>&nbsp;<\/a>- pour LGMD1D et toutes les formes dominantes de LGMD<\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-63b136bc5d4bd27a2 fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_63b136bc5d4bd27a2\"><a aria-expanded=\"false\" aria-controls=\"63b136bc5d4bd27a2\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#63b136bc5d4bd27a2\" href=\"#63b136bc5d4bd27a2\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">For LGMDD2 \/ LGMD1F<\/span><\/a><\/h5><\/div><div id=\"63b136bc5d4bd27a2\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_63b136bc5d4bd27a2\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/lgmd1f\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Distrofia Muscular de Cinturas (LGMD1F)<\/strong>&nbsp;<\/a>\u2013 Portuguese group for LGMD1F\/D2<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/Lgmd1f-367580580336650\/\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD1F<\/a><\/strong> \u2013 Hungary Page For LGMD1F\/D2<\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-7fb8e7f91f96224c8 fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_7fb8e7f91f96224c8\"><a aria-expanded=\"false\" aria-controls=\"7fb8e7f91f96224c8\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#7fb8e7f91f96224c8\" href=\"#7fb8e7f91f96224c8\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">For LGMDR1 \/ LGMD2A  <\/span><\/a><\/h5><\/div><div id=\"7fb8e7f91f96224c8\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_7fb8e7f91f96224c8\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/LGMD2A\">Communaut\u00e9 C3<\/a><\/strong> \u2013 for LGMD2A\/R1 a form of Calpainopathy<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/1625939610961262\/\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD 2A - La muskeldystrophie de l'\u00e9pith\u00e9lium de Gliederg\u00fcrtel<\/a>&nbsp;<\/strong>\u2013 German group for LGMD2A \/ R1 Calpainopathy<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/2358487431058344\/\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD2A - \u043f\u043e\u0431\u0435\u0434\u0438\u043c \u0432\u043c\u0435\u0441\u0442\u0435 !<\/a><\/strong>\u2013 Russian group for LGMD2A\/R1<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/224375359030\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Limb Girdle Muscular Dystrophy 2A\/R1 (CALPAINOPATHY)<\/strong><\/a> \u2013 for LGMD2A\/R1<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/139575366945760\"><strong>M\u00fcsk\u00fcler&nbsp;<\/strong>distrofi<strong>&nbsp;(lgmd2a)<\/strong><\/a> \u2013 for LGMD2A\/R1 <em>(un groupe Facebook \"public\")<\/em><\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-f9dc30a08e3471a7a fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_f9dc30a08e3471a7a\"><a aria-expanded=\"false\" aria-controls=\"f9dc30a08e3471a7a\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#f9dc30a08e3471a7a\" href=\"#f9dc30a08e3471a7a\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">For LGMDR2 \/ LGMD2B<\/span><\/a><\/h5><\/div><div id=\"f9dc30a08e3471a7a\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_f9dc30a08e3471a7a\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/DiscoveringDysferlinopathy\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>\u00c0 la d\u00e9couverte de la dysferlinopathie&nbsp;<\/strong><\/a>\u2013 for LGMD2B\/ R2&nbsp; Dysferlinopathy<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/719544678217474\/\" target=\"_blank\" rel=\"noopener noreferrer\">Lgmd2B - Dysferlinopathie<\/a>&nbsp;<\/strong>\u2013 German group for LGMD2B\/R2 Dysferlinopathy<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/1032297643521886\/\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD 2B\/R2 Muskeldystrophie des Gliedergelenkg\u00fcrtels<\/a>&nbsp;<\/strong>\u2013 German group for LGMD2B\/R2 Dysferlinopathy<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/326582430862463\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Dystrophie musculaire des ceintures 2b - pour LGMD2B<\/strong><\/a>&nbsp;\/ Dysferlinopathie<\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-92a6cc102b2122dda fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_92a6cc102b2122dda\"><a aria-expanded=\"false\" aria-controls=\"92a6cc102b2122dda\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#92a6cc102b2122dda\" href=\"#92a6cc102b2122dda\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">For LGMDR3 \/ LGMD2D<\/span><\/a><\/h5><\/div><div id=\"92a6cc102b2122dda\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_92a6cc102b2122dda\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/lgmd2d\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>LGMD2D<\/strong><\/a> \u2013 for LGMD2D\/R3<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/744995948932417\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong><span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"LGMD2D Patients, Parents, and Caregivers\" data-text=\"LGMD2D Patients, Parents, and Caregivers\" data-type=\"ent:group\" data-uid=\"744995948932417\" data-si=\"true\">LGMD2D Patients, parents et soignants&nbsp;<\/span><\/strong><\/a><span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"LGMD2D Patients, Parents, and Caregivers\" data-text=\"LGMD2D Patients, Parents, and Caregivers\" data-type=\"ent:group\" data-uid=\"744995948932417\" data-si=\"true\">\u2013 for LGMD2D\/R3<\/span><\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-f99fe039a1b6a300b fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_f99fe039a1b6a300b\"><a aria-expanded=\"false\" aria-controls=\"f99fe039a1b6a300b\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#f99fe039a1b6a300b\" href=\"#f99fe039a1b6a300b\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">ForLGMDR4 \/ LGMD2E<\/span><\/a><\/h5><\/div><div id=\"f99fe039a1b6a300b\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_f99fe039a1b6a300b\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/400800083288042\/\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD2E<\/a>&nbsp;<\/strong>\u2013 for LGMD2E\/R4 <em>(un groupe Facebook \"public\")<\/em><\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-a789c56f03a8dd685 fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_a789c56f03a8dd685\"><a aria-expanded=\"false\" aria-controls=\"a789c56f03a8dd685\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#a789c56f03a8dd685\" href=\"#a789c56f03a8dd685\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">For LGMDR7 \/ LGMD2G<\/span><\/a><\/h5><\/div><div id=\"a789c56f03a8dd685\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_a789c56f03a8dd685\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/219813934705590\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Dystrophie musculaire des ceintures de type 2G<\/strong><\/a> \u2013 for LGMD2G\/R7 <em>(un groupe Facebook \"public\")<\/em><\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-066c401b36689cc20 fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_066c401b36689cc20\"><a aria-expanded=\"false\" aria-controls=\"066c401b36689cc20\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#066c401b36689cc20\" href=\"#066c401b36689cc20\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">For LGMDR9 \/ LGMD2I<\/span><\/a><\/h5><\/div><div id=\"066c401b36689cc20\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_066c401b36689cc20\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/LGMD2I\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>LGMD2I&nbsp;<\/strong><\/a>\u2013 for LGMD2I\/R9<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/1734475583518465\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>LGMD2i (Su\u00e8de)<\/strong><\/a>&nbsp;- Groupe su\u00e9dois pour le LGMD2i<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/460327480975091\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Page communautaire sur la dystrophie musculaire des ceintures 2i (LGMD2i)<\/strong><\/a> \u2013 for LGMD2i\/R9<\/li>\n<li><strong><span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Parents and Family of LGMD2I\" data-text=\"Parents and Family of LGMD2I\" data-type=\"ent:group\" data-uid=\"1419906754916266\" data-si=\"true\"><a href=\"https:\/\/www.facebook.com\/groups\/1419906754916266\/\" target=\"_blank\" rel=\"noopener noreferrer\">Parents et famille du LGMD2I<\/a><\/span><\/strong><span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Parents and Family of LGMD2I\" data-text=\"Parents and Family of LGMD2I\" data-type=\"ent:group\" data-uid=\"1419906754916266\" data-si=\"true\"> \u2013 for LGMD2I\/R9<\/span><\/li>\n<li><strong>LGMD2I<\/strong>&nbsp;- Allemand \"<em>Groupe secret<\/em>\u201d for individuals with LGMD2I \/R9\u2013 must contact <strong><a href=\"https:\/\/www.facebook.com\/jan.bahlmann\" target=\"_blank\" rel=\"noopener noreferrer\">administrateur du groupe<\/a><\/strong>&nbsp;pour demander l'adh\u00e9sion<\/li>\n<li><span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Parents and Family of LGMD2I\" data-text=\"Parents and Family of LGMD2I\" data-type=\"ent:group\" data-uid=\"1419906754916266\" data-si=\"true\"><strong><a href=\"https:\/\/www.facebook.com\/groups\/186890368186410\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD2I \/ Limb Girdle 2I Dansk Gruppe<\/a><\/strong> \u2013 Danish group for LGMD2I\/R9<\/span><\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-fdd12bd1f8956f287 fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_fdd12bd1f8956f287\"><a aria-expanded=\"false\" aria-controls=\"fdd12bd1f8956f287\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#fdd12bd1f8956f287\" href=\"#fdd12bd1f8956f287\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">For LGMDR10 \/ LGMD2J<\/span><\/a><\/h5><\/div><div id=\"fdd12bd1f8956f287\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_fdd12bd1f8956f287\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/lgmd2j\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD2J<\/a>&nbsp;<\/strong>\u2013 for LGMD2J\/R10<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/1471318463176054\/\">Groupe de discussion sur les troubles musculaires et cardiaques li\u00e9s \u00e0 la titine<\/a>&nbsp;<\/strong>\u2013 for LGMD2J\/R10<\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-b000873bb7b7a06d5 fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_b000873bb7b7a06d5\"><a aria-expanded=\"false\" aria-controls=\"b000873bb7b7a06d5\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#b000873bb7b7a06d5\" href=\"#b000873bb7b7a06d5\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">For LGMDR12 \/ LGMD2L<\/span><\/a><\/h5><\/div><div id=\"b000873bb7b7a06d5\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_b000873bb7b7a06d5\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/191865624511825\/\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD2L<\/a><\/strong> \u2013 for LGMD2L\/2L<\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-15008fdff576ec02a fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_15008fdff576ec02a\"><a aria-expanded=\"false\" aria-controls=\"15008fdff576ec02a\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#15008fdff576ec02a\" href=\"#15008fdff576ec02a\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">For LGMDR18 \/ LGMD2S<\/span><\/a><\/h5><\/div><div id=\"15008fdff576ec02a\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_15008fdff576ec02a\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/LGMD2S\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Dystrophie musculaire des ceintures de type 2S&nbsp;<\/strong><\/a>\u2013 for LGMD2S\/R18<\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-13d741957e619c9ad fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_13d741957e619c9ad\"><a aria-expanded=\"false\" aria-controls=\"13d741957e619c9ad\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#13d741957e619c9ad\" href=\"#13d741957e619c9ad\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">For LGMDR19 \/ LGMD2T<\/span><\/a><\/h5><\/div><div id=\"13d741957e619c9ad\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_13d741957e619c9ad\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/LGMD2T\" target=\"_blank\" rel=\"noopener\"><strong>Dystrophie musculaire des ceintures de type 2T&nbsp;<\/strong><\/a>\u2013 for LGMD2TR19<\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-0b8f012729ea0c2f4 fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_0b8f012729ea0c2f4\"><a aria-expanded=\"false\" aria-controls=\"0b8f012729ea0c2f4\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#0b8f012729ea0c2f4\" href=\"#0b8f012729ea0c2f4\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Forums th\u00e9matiques<\/span><\/a><\/h5><\/div><div id=\"0b8f012729ea0c2f4\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_0b8f012729ea0c2f4\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<p><strong>Un forum sp\u00e9cifique pour les personnes&nbsp;<span class=\"text_exposed_show\">qui pr\u00e9sentent une faiblesse des ceintures et&nbsp;<\/span>un sous-type non diagnostiqu\u00e9 de dystrophie musculaire \u00e0<span class=\"text_exposed_show\">&nbsp;partager les ant\u00e9c\u00e9dents, les sympt\u00f4mes<\/span><\/strong><span class=\"text_exposed_show\"> a<\/span><span class=\"text_exposed_show\">nd<\/span><strong><span class=\"text_exposed_show\"> d'autres informations dans le but d'obtenir un diagnostic g\u00e9n\u00e9tique confirm\u00e9.&nbsp;<\/span><\/strong><span class=\"text_exposed_show\"><em>(Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9... les personnes doivent faire une \"demande d'adh\u00e9sion\").<\/em><\/span><\/p>\n<ul>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/498452196969988\" target=\"_blank\" rel=\"noopener noreferrer\">Dystrophie musculaire Sous-type inconnu<\/a><\/strong><\/li>\n<\/ul>\n<p><strong>Un forum sp\u00e9cifique pour les conjoints et\/ou les aidants.<\/strong>&nbsp;<em>(Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9... les personnes doivent faire une \"demande d'adh\u00e9sion\").<\/em><\/p>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/1558112021089263\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Les conjoints luttent contre la maladie<\/strong><\/a><\/li>\n<\/ul>\n<p><strong><span class=\"x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xi81zsa x1yc453h\" dir=\"auto\"><span class=\"x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x6prxxf xvq8zen xo1l8bm xzsf02u\">Un forum pour partager le soutien et les r\u00e9flexions sur la vie avec la dystrophie musculaire des ceintures (LGMD) au fur et \u00e0 mesure que nous vieillissons (50+).&nbsp; <\/span><\/span><\/strong><span class=\"x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xi81zsa x1yc453h\" dir=\"auto\"><span class=\"x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x6prxxf xvq8zen xo1l8bm xzsf02u\"><em>(Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9... les personnes doivent faire une \"demande d'adh\u00e9sion\").<\/em><\/span><\/span><strong><span class=\"x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xi81zsa x1yc453h\" dir=\"auto\"><span class=\"x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x6prxxf xvq8zen xo1l8bm xzsf02u\"><br \/><\/span><\/span><\/strong><\/p>\n<ul>\n<li><strong><span class=\"x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x676frb x1lkfr7t x1lbecb7 x1s688f xzsf02u x1yc453h\" dir=\"auto\"><a class=\"x1i10hfl xjbqb8w x6umtig x1b1mbwd xaqea5y xav7gou x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz x1heor9g xt0b8zv x1s688f\" tabindex=\"0\" role=\"link\" href=\"https:\/\/www.facebook.com\/groups\/lgmdplatinumclub\/\">LGMD Platinum Club pour les 50 ans et plus<\/a><\/span><\/strong><\/li>\n<\/ul>\n<p><strong>Un forum de discussion sur des sujets sexosp\u00e9cifiques en rapport avec la LGMD.<\/strong>&nbsp;<em>(Il s'agit de groupes Facebook \"priv\u00e9s\" pour des raisons de confidentialit\u00e9... les personnes doivent demander \u00e0 en faire partie.)<\/em><\/p>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/826773790697958\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Les femmes vivant avec la maladie&nbsp;<\/strong><\/a>- pour les femmes uniquement<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/1290888244261882\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>MUJERES CON DISTROFIA MUSCULAR&nbsp;<\/strong><\/a>- pour les femmes uniquement (<span class=\"UFICommentActorAndBody\"><span data-ft=\"{'tn':'K'}\"><span class=\"UFICommentBody _1n4g\">Langue espagnole)<\/span><\/span><\/span><\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/820731771303994\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Les gars MD<\/strong><\/a>&nbsp;- pour les hommes uniquement<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/898513986885551\" target=\"_blank\" rel=\"noopener noreferrer\">Femmes atteintes d'un handicap neuromusculaire<\/a><\/strong>&nbsp;- pour les femmes uniquement<\/li>\n<\/ul>\n<p><strong>Un forum pour les adolescents vivant avec une dystrophie musculaire.<\/strong>&nbsp;<em>(Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9... les personnes doivent faire une \"demande d'adh\u00e9sion\").<\/em><\/p>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/167711816760176\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Adolescents muscl\u00e9s<\/strong><\/a><a href=\"https:\/\/www.facebook.com\/groups\/167711816760176\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>ular Dystrophy<\/strong><\/a>&nbsp;- pour les adolescents uniquement (13-19 ans)<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/836173260416617\/\"><b>Adolescents en fauteuil roulant<\/b><\/a><\/li>\n<\/ul>\n<p><strong>Un forum pour les adolescents dont l'un des parents est atteint de LGMD.<\/strong>&nbsp;<em>(Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9... les personnes doivent faire une \"demande d'adh\u00e9sion\").<\/em><\/p>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/390176791508263\/\" target=\"_blank\" rel=\"noopener noreferrer\"><b>Un lieu sp\u00e9cial pour les enfants dont les parents ont&nbsp;<\/b><\/a><a href=\"https:\/\/www.facebook.com\/groups\/390176791508263\/\" target=\"_blank\" rel=\"noopener noreferrer\"><b>Dystrophie musculaire des ceintures<\/b>&nbsp;<\/a>- Vous devez avoir moins de 18 ans pour vous inscrire.<\/li>\n<\/ul>\n<p><strong>Un forum pour les mamans, les belles-m\u00e8res, les mamans adoptives et les futures mamans vivant avec une dystrophie musculaire.<\/strong>&nbsp;- ou m\u00eame les femmes atteintes de DM qui aimeraient avoir des enfants un jour et \u00e0 qui il serait utile de poser des questions.&nbsp;<em>(Il s'agit d'un groupe Facebook \"ferm\u00e9\" pour des raisons de confidentialit\u00e9... les personnes doivent faire une \"demande d'adh\u00e9sion\").<\/em><\/p>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/1398590840390738\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Mamans avec MD<\/strong><\/a><\/li>\n<\/ul>\n<p><strong>Un forum pour les m\u00e8res dont les enfants ont \u00e9t\u00e9 diagnostiqu\u00e9s avec une dystrophie musculaire.<\/strong>&nbsp;<em>(Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9... les personnes doivent faire une \"demande d'adh\u00e9sion\").<\/em><\/p>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/587037391364582\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Mamans MD<\/strong><\/a><\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/414181812312514\/\">M\u00e8res d'enfants atteints de&nbsp;<\/a><a href=\"https:\/\/www.facebook.com\/groups\/414181812312514\/\">Dystrophie musculaire des ceintures<\/a>&nbsp;-&nbsp;<\/strong>sp\u00e9cifique au LGMD<\/li>\n<\/ul>\n<div>\n<p><b>Un forum pour les personnes ayant des besoins sp\u00e9cifiques en mati\u00e8re de bien-\u00eatre mental<\/b><\/p>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/242966167749403\/\"><b>Sant\u00e9 mentale avec MD<\/b><\/a>&nbsp;(Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9... les personnes doivent faire une \"demande d'adh\u00e9sion\").<\/li>\n<\/ul>\n<\/div>\n<p><strong>Un forum o\u00f9 les personnes atteintes de dystrophie musculaire peuvent poser des questions et partager leurs exp\u00e9riences sur l'obtention de prestations d'invalidit\u00e9, y compris l'assurance invalidit\u00e9 de la s\u00e9curit\u00e9 sociale (SSDI),<span class=\"text_exposed_show\">), le revenu de s\u00e9curit\u00e9 compl\u00e9mentaire (SSI) et l'assurance invalidit\u00e9 priv\u00e9e (LTD).<\/span><\/strong><\/p>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/1734120193508208\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Atelier sur les prestations d'invalidit\u00e9 li\u00e9es \u00e0 la dystrophie musculaire<\/strong><\/a><\/li>\n<\/ul>\n<p><strong>Un forum pour discuter de la d\u00e9fense des droits et d'autres questions et pr\u00e9occupations concernant la vie avec une dystrophie musculaire.<\/strong><\/p>\n<ul>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/30234512047\/\" target=\"_blank\" rel=\"noopener noreferrer\">La Fondation Speak<\/a>&nbsp;-&nbsp;<\/strong><em>Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9. Les personnes doivent \"demander \u00e0 participer\".<\/em><\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/livingwithmd\/\"><strong>Vivre avec une M.D.<\/strong><\/a><strong><em>&nbsp;-<\/em><\/strong><em>&nbsp;Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9. Les personnes doivent \"demander \u00e0 participer\".<\/em><\/li>\n<li><strong><span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Muscular Dystrophy Awareness of Kenya (MUDAK)\" data-text=\"Muscular Dystrophy Awareness of Kenya (MUDAK)\" data-type=\"ent:group\" data-uid=\"170042099673908\" data-si=\"true\"><a href=\"https:\/\/www.facebook.com\/groups\/musculardystrophy.musculardyst\/\" target=\"_blank\" rel=\"noopener noreferrer\">Sensibilisation \u00e0 la dystrophie musculaire au Kenya (MUDAK)<\/a>&nbsp;<\/span><\/strong><span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Muscular Dystrophy Awareness of Kenya (MUDAK)\" data-text=\"Muscular Dystrophy Awareness of Kenya (MUDAK)\" data-type=\"ent:group\" data-uid=\"170042099673908\" data-si=\"true\">- Il s'agit d'un groupe public<\/span><\/li>\n<\/ul>\n<p><strong>Un forum pour discuter de la perte de poids chez les personnes atteintes de dystrophie musculaire telle que la LGMD.<\/strong><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/1904439826513151\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Weight Watchers pour les personnes atteintes de dystrophie musculaire<\/strong><\/a>&nbsp;-&nbsp;<em>Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9. Les personnes doivent \"demander \u00e0 participer\".<\/em><\/li>\n<li><strong><a href=\"http:\/\/www.facebook.com\/groups\/1023672800999223\" target=\"_blank\" rel=\"noopener noreferrer\">Dystrophie musculaire Perte de poids<\/a><\/strong>&nbsp;-&nbsp;<em>Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9. Les personnes doivent \"demander \u00e0 participer\".<\/em><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><strong>Un forum pour discuter des probl\u00e8mes pulmonaires et d'autres probl\u00e8mes respiratoires li\u00e9s \u00e0 la vie avec une dystrophie musculaire.&nbsp;<\/strong><em>Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9. Les personnes doivent \"demander \u00e0 participer\".<\/em><\/p>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/BreathewithMDSupportGroup\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Respirer avec MD&nbsp;<\/strong><\/a>- Un groupe de soutien pour les patients atteints de DM, les parents et\/ou les soignants afin de discuter de sujets li\u00e9s au d\u00e9clin de la fonction pulmonaire et pour les personnes sous ventilation non invasive et invasive afin de partager des conseils et des id\u00e9es.<\/li>\n<\/ul>\n<p><strong>La page Facebook suivante offre un groupe de soutien \"priv\u00e9\" - r\u00e9serv\u00e9 aux membres et sur invitation - \u00e0 la communaut\u00e9 des personnes atteintes de dystrophie musculaire.<\/strong>&nbsp;Pour en savoir plus, consultez le site<\/p>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/pages\/The-Speak-Foundation\/335923590784\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Groupe de patients sur les maladies neuromusculaires MD<\/strong><\/a>&nbsp;(sponsoris\u00e9 par la Speak Foundation) - Ce programme priv\u00e9 ou \u00e0 but non lucratif est destin\u00e9 aux personnes qui ont besoin d'une aide financi\u00e8re pour se rendre \u00e0 l'\u00e9tranger.&nbsp;<em>secret<\/em>&nbsp;est un groupe de partage pour les personnes atteintes de dystrophie musculaire. Ce groupe est r\u00e9serv\u00e9 aux personnes atteintes de la maladie, car certains sujets sont tr\u00e8s personnels. Contactez la Speak Foundation pour participer \u00e0 leur groupe priv\u00e9 de soutien par les pairs.<\/li>\n<\/ul>\n<p><strong>A forum <\/strong><span class=\"x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h\" dir=\"auto\"><strong>for individuals who have received systemic gene therapy for muscular dystrophy or other neurological conditions.<\/strong> Parents of children are permitted to join. <em>Il s'agit d'un groupe Facebook \"priv\u00e9\" pour des raisons de confidentialit\u00e9. Les personnes doivent \"demander \u00e0 participer\".<\/em><\/span><\/p>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/687994507235397\/\" target=\"_blank\" rel=\"noopener\"><strong>Gene Therapy Recipients<\/strong><\/a><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-729d6e4548c6ca5ac fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_729d6e4548c6ca5ac\"><a aria-expanded=\"false\" aria-controls=\"729d6e4548c6ca5ac\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#729d6e4548c6ca5ac\" href=\"#729d6e4548c6ca5ac\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Groupes LGMD par r\u00e9gion, langue ou pays<\/span><\/a><\/h5><\/div><div id=\"729d6e4548c6ca5ac\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_729d6e4548c6ca5ac\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/881641131914687\/\" target=\"_blank\" rel=\"noopener noreferrer\">Ceinture de membre Muskeldystrofi Norv\u00e8ge<\/a><\/strong>\u00a0- un groupe norv\u00e9gien pour le LGMD (<em>un groupe \"public<\/em>)<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/876411602393117\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>LGMD Norge<\/strong><\/a>\u00a0- un groupe de soutien norv\u00e9gien pour le LGMD<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/GILGMD\/\" target=\"_blank\" rel=\"noopener noreferrer\">T\u00e9l\u00e9thon - Groupe d'int\u00e9r\u00eat LGMD Myopathies des Ceintures<\/a><\/strong>\u00a0- un groupe de soutien fran\u00e7ais pour le LGMD<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/gilgmd\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>LGMD - Myopathies des Ceintures<\/strong><\/a>\u00a0- un groupe de soutien fran\u00e7ais pour le LGMD<\/li>\n<li><strong><span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Limb Girdle Muscular Dystrophy Andhrapradesh\" data-text=\"Limb Girdle Muscular Dystrophy Andhrapradesh\" data-type=\"ent:group\" data-uid=\"560253220750664\" data-si=\"true\"><a href=\"https:\/\/www.facebook.com\/Limb-Girdle-Muscular-Dystrophy-Andhra-Pradesh-1480804252163921\/\" target=\"_blank\" rel=\"noopener noreferrer\">Dystrophie musculaire des ceintures Andhrapradesh<\/a>\u00a0<\/span><\/strong><span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Limb Girdle Muscular Dystrophy Andhrapradesh\" data-text=\"Limb Girdle Muscular Dystrophy Andhrapradesh\" data-type=\"ent:group\" data-uid=\"560253220750664\" data-si=\"true\">- Groupe indien pour le LGMD (<em>un groupe \"public<\/em>)<\/span><\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/533795430014169\/\" target=\"_blank\" rel=\"noopener noreferrer\">Dystrophie musculaire des ceintures Inde<\/a><\/strong>\u00a0- Groupe indien pour le LGMD<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/1033839906656345\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>LGMD Inde<\/strong><\/a>\u00a0- un groupe indien pour la LGMD\u00a0<span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Limb-Girdle Muscular Dystrophy\" data-text=\"Limb-Girdle Muscular Dystrophy\" data-type=\"ent:group\" data-uid=\"40099549382\" data-si=\"true\">(<em>un groupe \"public<\/em>)<\/span><\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/479339678747907\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>LGMD Skandinavie<\/strong><\/a>\u00a0- un groupe scandinave pour le LGMD<\/li>\n<li><strong><a href=\"http:\/\/www.facebook.com\/groups\/782066318622757\/\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD Support Group Afrique du Sud<\/a><\/strong>\u00a0- un groupe de soutien \u00e0 la LGMD en Afrique du Sud<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/imiogroup\" target=\"_blank\" rel=\"noopener noreferrer\">Ma vie de Mio<\/a><\/strong>\u00a0- un groupe de soutien \u00e0 la Russie et \u00e0 l'Europe de l'Est pour le LGMD (<em>un groupe \"public<\/em>)<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/lgmdsarco\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Ceinture musculaire des membres Distorfi T\u00fcrkiye<\/strong><\/a>\u00a0- un groupe turc pour le LGMD<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/922277547892786\/\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD Gliederg\u00fcrteldystrohpie<\/a>\u00a0<\/strong>- un groupe allemand pour le LGMD<\/li>\n<li><strong><a href=\"https:\/\/www.facebook.com\/groups\/1171919936211367\/\" target=\"_blank\" rel=\"noopener noreferrer\">LGMD Sud de la Nouvelle-Angleterre<\/a>\u00a0<\/strong>- un groupe de r\u00e9sidents du sud de l'\u00c9tat de la Nouvelle-Angleterre (\u00c9tats-Unis)<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/477483332431351\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Dystrophie musculaire des ceintures Australie<\/strong><\/a>\u00a0- Groupe australien pour la LGMD<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/341529969893954\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>LGMD Polska<\/strong><\/a>\u00a0- Groupe polonais pour le LGMD<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/125145014760590\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Inconnu Dystrophie musculaire Pakistan<\/strong><\/a>\u00a0- Groupe pakistanais pour le LGMD<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/1290888244261882\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>MUJERES CON DISTROFIA MUSCULAR\u00a0<\/strong><\/a>- pour les femmes uniquement (<span class=\"UFICommentActorAndBody\"><span data-ft=\"{'tn':'K'}\"><span class=\"UFICommentBody _1n4g\">Langue espagnole)<\/span><\/span><\/span><\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-4204e037558f2f286 fusion-toggle-no-divider fusion-toggle-boxed-mode\" style=\"--awb-title-font-family:var(--awb-custom_typography_2-font-family);--awb-title-font-weight:var(--awb-custom_typography_2-font-weight);--awb-title-font-style:var(--awb-custom_typography_2-font-style);--awb-title-font-size:var(--awb-custom_typography_2-font-size);--awb-title-letter-spacing:var(--awb-custom_typography_2-letter-spacing);--awb-title-line-height:var(--awb-custom_typography_2-line-height);--awb-title-text-transform:var(--awb-custom_typography_2-text-transform);--awb-title-color:var(--awb-color4);\"><div class=\"panel-heading\"><h5 class=\"panel-title toggle\" id=\"toggle_4204e037558f2f286\"><a aria-expanded=\"false\" aria-controls=\"4204e037558f2f286\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4578-1\" data-target=\"#4204e037558f2f286\" href=\"#4204e037558f2f286\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Autres groupes g\u00e9n\u00e9raux du LGMD<\/span><\/a><\/h5><\/div><div id=\"4204e037558f2f286\" class=\"panel-collapse collapse\" aria-labelledby=\"toggle_4204e037558f2f286\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/550704938338975\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Groupe sur la dystrophie musculaire des ceintures<\/strong><\/a><em>\u00a0-\u00a0<span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Limb-Girdle Muscular Dystrophy\" data-text=\"Limb-Girdle Muscular Dystrophy\" data-type=\"ent:group\" data-uid=\"40099549382\" data-si=\"true\">ou toutes les formes de LGMD\u00a0<\/span>(un groupe \"public\")<\/em><\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/580859505341357\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Groupe de soutien pour la dystrophie musculaire des ceintures<\/strong>\u00a0<\/a>- pour toutes les formes de LGMD\u00a0<em>(un groupe \"public\")<\/em><\/li>\n<li><strong><span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Limb-Girdle Muscular Dystrophy\" data-text=\"Limb-Girdle Muscular Dystrophy\" data-type=\"ent:group\" data-uid=\"40099549382\" data-si=\"true\"><a href=\"https:\/\/www.facebook.com\/groups\/Limb.Girdle.Muscular.Dystrophy\" target=\"_blank\" rel=\"noopener noreferrer\">Dystrophie musculaire des ceintures<\/a>\u00a0<\/span><\/strong><span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Limb-Girdle Muscular Dystrophy\" data-text=\"Limb-Girdle Muscular Dystrophy\" data-type=\"ent:group\" data-uid=\"40099549382\" data-si=\"true\">- pour toutes les formes de LGMD (<em>un groupe \"public<\/em>)<\/span><\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/151132214962795\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Dystrophie musculaire des ceintures<\/strong>y<\/a>\u00a0-\u00a0<span class=\"entity _4v1s\" data-icon=\"null\" data-select=\"group\" data-group=\"all\" data-fulltext=\"Limb-Girdle Muscular Dystrophy\" data-text=\"Limb-Girdle Muscular Dystrophy\" data-type=\"ent:group\" data-uid=\"40099549382\" data-si=\"true\">pour toutes les formes de LGMD (<em>un groupe \"public<\/em>)<\/span><\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/Living.with.LGMD\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Vivre avec une dystrophie musculaire des ceintures<\/strong><\/a>\u00a0- pour toutes les formes de LGMD<\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/1698876503662486\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Des amis qui aiment Journ\u00e9e de sensibilisation \u00e0 la dystrophie musculaire des ceintures<\/strong><\/a><\/li>\n<\/ul>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-3 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1456px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_2_3 2_3 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:66.666666666667%;--awb-margin-top-large:0px;--awb-spacing-right-large:2.88%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:2.88%;--awb-width-medium:66.666666666667%;--awb-order-medium:0;--awb-spacing-right-medium:2.88%;--awb-spacing-left-medium:2.88%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div ><a class=\"fusion-button button-flat fusion-button-default-size button-default fusion-button-default button-1 fusion-button-default-span fusion-button-default-type\" target=\"_self\" href=\"\/fr\/knowledge-base\/community-network\/lgmd-related-blogs\/\"><span class=\"fusion-button-text\">Blogs, \u00e9missions et cha\u00eenes YouTube li\u00e9s au LGMD<\/span><\/a><\/div><\/div><\/div><\/div><\/div><\/p>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":6675,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-4578","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>On-line LGMD Support Groups on Facebook: - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/knowledge-base\/community-network\/on-line-lgmd-support-groups-on-facebook\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"On-line 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