L'un des d\u00e9fis de la vie avec une maladie rare comme la dystrophie musculaire des ceintures (DMG) est de trouver des m\u00e9decins et d'autres sp\u00e9cialistes de la sant\u00e9 qui ont une bonne compr\u00e9hension du processus de la maladie.<\/p>\n<\/div><\/div><\/div><\/div><\/div>
Le G<\/strong>en\u00e9tique R<\/strong>esolution et A<\/strong>\u00e9valuations S<\/strong>olving P<\/strong>henotypes in LGMD (GRASP-LGMD<\/strong>) consortium was created in 2018 and includes sites in the United States and abroad. The overarching mission of the GRASP-LGMD consortium is to hasten therapeutic development in the LGMDs. The consortium includes:<\/p><\/div> California<\/strong>: University of California in Irvine \u2014 Dr. Tahseen Mozaffar MD<\/p>\n<\/div><\/li> Colorado<\/strong>: University of Colorado Health In Aurora – Dr. Stacy Dixon, MD<\/p>\n<\/div><\/li> Florida<\/strong>: University of Florida in Gainesville \u2013 Dr. Sub Subramony, MD<\/p>\n<\/div><\/li> Indiana<\/strong>: The Community Health Clinic in Shipshewana – Dr. Zineb Ammous, MD<\/p>\n<\/div><\/li> Iowa<\/strong>: University of Iowa in Iowa City \u2014 Dr. Katherine Mathews, MD<\/p>\n<\/div><\/li> Kansas<\/strong>: Kansas University Medical Center in Kansas City \u2014 Dr. Jeffrey Statland, MD<\/p>\n<\/div><\/li> Maryland<\/strong>: Kennedy Krieger Institute in Baltimore \u2014 Dr. Doris Leung, MD<\/p>\n<\/div><\/li> Minnesota<\/strong>: University of Minnesota in Minneapolis \u2014 Dr. Peter Kang, MD<\/p>\n<\/div><\/li> Missouri<\/strong>: Washington University in St. Louis \u2014 Dr. Conrad Weihl, MD, PhD<\/p>\n<\/div><\/li> North Carolina<\/strong>: Atrium Health in Charlotte \u2013 Dr. Urvi Desai, MD<\/p>\n<\/div><\/li> Ohio: Nationwide Children\u2019s Hospital in Columbus \u2014 Lindsay Alfono, PT, DPT, PCS<\/p>\n<\/div><\/li>