{"id":1004,"date":"2015-09-08T10:17:31","date_gmt":"2015-09-08T15:17:31","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1004"},"modified":"2015-09-08T10:17:31","modified_gmt":"2015-09-08T15:17:31","slug":"shelley","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Shelley"},"content":{"rendered":"

09\/08\/2015<\/p>\n

 <\/p>\n

Nom<\/strong>: Shelley AGE : 50\"LGMD2A<\/a><\/p>\n

PAYS<\/strong>: Canada<\/p>\n

LGMD Sous-type<\/strong>: LGMD2A \/ Calpa\u00efnopathie<\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 11 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

Mes premiers sympt\u00f4mes ont \u00e9t\u00e9 de marcher sur la pointe des pieds et d'avoir des difficult\u00e9s \u00e0 monter les escaliers.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\n

Oui, tous mes fr\u00e8res et s\u0153urs sont atteints. Ma s\u0153ur Michele et mon fr\u00e8re John sont tous deux atteints de LGMD2A.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

L'un des plus grands d\u00e9fis de ma vingtaine a \u00e9t\u00e9 de me sentir physiquement plus faible et incapable d'avoir des enfants, d'accoucher et de porter l'enfant.<\/p>\n

Il a \u00e9galement \u00e9t\u00e9 difficile de trouver un emploi int\u00e9ressant malgr\u00e9 un dipl\u00f4me universitaire et coll\u00e9gial. Les employeurs et les employ\u00e9s refusant de comprendre les besoins des personnes handicap\u00e9es ont \u00e9galement constitu\u00e9 un d\u00e9fi.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

L'une de mes plus grandes r\u00e9ussites a \u00e9t\u00e9 d'\u00e9crire mes m\u00e9moires sur la vie avec le LGMD et d'aider les autres \u00e0 surmonter leurs diversit\u00e9s. L'obtention de mon dipl\u00f4me universitaire a \u00e9galement \u00e9t\u00e9 un accomplissement.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Je ne consid\u00e8re pas les choses que je peux faire comme acquises. Je me sers de mon handicap pour \u00e9duquer les autres par le biais de mes m\u00e9moires et de mes discours inspirants.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

La LGMD prive les individus de la force de leurs muscles volontaires mais n'affecte pas leur intellect. Avoir un handicap physique peut \u00eatre tr\u00e8s frustrant, mais \u00eatre jug\u00e9 par les autres \u00e0 cause d'un handicap peut \u00eatre bien pire.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

J'enfilais une paire de patins artistiques et je patinais pendant des heures. Lorsque j'ai \u00e9t\u00e9 diagnostiqu\u00e9e il y a 39 ans, les tendons de la corde du talon s'\u00e9taient allong\u00e9s (en raison du d\u00e9veloppement de contractures) et je ne pouvais plus patiner. Cela m'a bris\u00e9 le c\u0153ur !<\/p>\n

Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire en vue d'une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

09\/08\/2015   Name:\u00a0 \u00a0 Shelley \u00a0\u00a0\u00a0AGE:\u00a0 50 COUNTRY: \u00a0\u00a0\u00a0Canada LGMD […]<\/p>","protected":false},"author":1,"featured_media":1005,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,38,15],"class_list":["post-1004","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-canada","tag-lgmd2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Shelley<\/title>\n<meta name=\"description\" content=\"Shelley, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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