Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\nNos premiers sympt\u00f4mes ont \u00e9t\u00e9 des difficult\u00e9s \u00e0 se tenir sur la pointe des pieds et la n\u00e9cessit\u00e9 de s'accrocher \u00e0 une rampe apr\u00e8s avoir gravi deux \u00e9tages.<\/p>\n
Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\nNous sommes un couple de jumeaux identiques atteints de dystrophie musculaire des ceintures. Il n'y a pas d'ant\u00e9c\u00e9dents familiaux dans les 5 derni\u00e8res g\u00e9n\u00e9rations.<\/p>\n
Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\nNotre plus grand d\u00e9fi est de surmonter nos difficult\u00e9s, de grandir avec cette maladie progressive et de rester positifs. Gitika a d\u00fb abandonner sa brillante carri\u00e8re et devenir femme au foyer. Gopika continue de donner des cours de soutien dans un centre d'\u00e9ducation. Elle enseignait auparavant aux classes sup\u00e9rieures d'une \u00e9cole r\u00e9put\u00e9e.<\/p>\n
Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\nNotre plus grande r\u00e9ussite a \u00e9t\u00e9 d'accepter de vivre avec cette maladie et de nous acquitter de nos t\u00e2ches quotidiennes avec un enthousiasme constant, malgr\u00e9 plusieurs \u00e9checs.<\/p>\n
Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\nNous sommes tous deux devenus plus tol\u00e9rants \u00e0 l'\u00e9gard des personnes et des situations, car nous avons d\u00fb nous lib\u00e9rer de nos inhibitions et demander de l'aide \u00e0 plusieurs reprises.<\/p>\n
Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\nSouvent, en l'absence de tout retour visuel externe, il est difficile pour les gens de comprendre le niveau de handicap (\u00e0 moins d'utiliser un fauteuil roulant \u00e9lectrique) li\u00e9 \u00e0 cette maladie. Nous voulons que le monde se passionne \u00e9galement pour les patients atteints de LGMD et qu'il leur offre les m\u00eames avantages qu'aux autres malades.<\/p>\n
Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\nGitika aimerait reprendre sa carri\u00e8re et partir \u00e0 la plage.<\/p>\n
Gopika souhaite courir sur un tapis roulant et recommencer \u00e0 faire de l'exercice \u00e0 la salle de sport.<\/p>\n
Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire pour une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : https:\/\/www.lgmd-info.org\/spotlight-interviews.<\/p>","protected":false},"excerpt":{"rendered":"
09\/17\/2015 NAME:\u00a0 Gitika & Gopika \u00a0\u00a0AGE: \u00a0\u00a038 yrs old COUNTRY:\u00a0 […]<\/p>","protected":false},"author":1,"featured_media":1014,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[30,23],"class_list":["post-1013","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-india","tag-lgmd2b"],"acf":[],"yoast_head":"\n
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