{"id":1016,"date":"2015-09-22T08:01:32","date_gmt":"2015-09-22T13:01:32","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1016"},"modified":"2015-09-22T08:01:32","modified_gmt":"2015-09-22T13:01:32","slug":"binh","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/09\/22\/binh\/","title":{"rendered":"INDIVIDUS AVEC LGMD : Binh"},"content":{"rendered":"

09\/22\/2015:<\/strong>\u00a0<\/strong><\/p>\n

NOM<\/strong>: B\u00ecnh \u00a0AGE<\/strong>: 30\"LGMD2A<\/a><\/p>\n

Pays :<\/strong> Vietnam<\/p>\n

LGMD Sous-type<\/strong>: LGMD2A \/ Calpa\u00efnopathie<\/p>\n

 <\/p>\n

\u00c0 QUEL \u00c2GE AVEZ-VOUS \u00c9T\u00c9 DIAGNOSTIQU\u00c9 ?<\/strong>:<\/p>\n

On m'a diagnostiqu\u00e9 une LGMD \u00e0 l'\u00e2ge de 14 ans.<\/p>\n

QUELS ONT \u00c9T\u00c9 VOS PREMIERS SYMPT\u00d4MES : \u00a0<\/strong><\/p>\n

J'ai \u00e9prouv\u00e9 des difficult\u00e9s \u00e0 marcher, \u00e0 courir et \u00e0 monter les escaliers.<\/p>\n

AVEZ-VOUS D'AUTRES MEMBRES DE VOTRE FAMILLE QUI SONT ATTEINTS DE LA LGMD :\u00a0<\/strong><\/p>\n

Non, je suis la seule personne de ma famille \u00e0 avoir re\u00e7u ce diagnostic.<\/p>\n

QUELS SONT, SELON VOUS, LES PLUS GRANDS D\u00c9FIS \u00c0 RELEVER POUR VIVRE AVEC LA LGMD :\u00a0<\/strong><\/p>\n

Le plus grand d\u00e9fi pour moi est que je ne peux pas faire certaines choses comme marcher ou courir. J'ai essay\u00e9 de contr\u00f4ler mon cerveau pour avoir assez d'\u00e9nergie pour faire les activit\u00e9s que je veux.<\/p>\n

QUELLE EST VOTRE PLUS GRANDE R\u00c9ALISATION ?<\/strong>:<\/p>\n

L'une de mes plus grandes r\u00e9ussites est d'avoir une famille, des amis et des voisins qui m'encouragent \u00e0 mener une vie plut\u00f4t optimiste.<\/p>\n

COMMENT LA LGMD VOUS A-T-ELLE INFLUENC\u00c9 POUR QUE VOUS DEVENIEZ LA PERSONNE QUE VOUS \u00caTES AUJOURD'HUI :\u00a0<\/strong><\/p>\n

Je suis pr\u00eat \u00e0 relever tous les d\u00e9fis !<\/p>\n

QUE VOULEZ-VOUS QUE LE MONDE SACHE \u00c0 PROPOS DE LA LGMD :\u00a0<\/strong><\/p>\n

Je veux que le monde sache qu'un rem\u00e8de est n\u00e9cessaire pour traiter et gu\u00e9rir tous les patients atteints de LGMD \ud83d\ude42 .<\/p>\n

SI VOTRE LGMD POUVAIT \u00caTRE \"GU\u00c9RIE\" DEMAIN, QUELLE SERAIT LA PREMI\u00c8RE CHOSE QUE VOUS SOUHAITERIEZ FAIRE ?<\/strong>:<\/p>\n

Si j'\u00e9tais gu\u00e9rie demain, je courrais et ferais tout ce que je n'ai jamais pu faire !<\/p>\n

Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire en vue d'une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

09\/22\/2015:\u00a0 NAME: B\u00ecnh \u00a0AGE: 30 Country: Vietnam LGMD Sub-Type:\u00a0LGMD2A \/ […]<\/p>","protected":false},"author":1,"featured_media":1017,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[15,53],"class_list":["post-1016","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a","tag-vietnam"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Binh<\/title>\n<meta name=\"description\" content=\"Bihn, diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/09\/22\/binh\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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