{"id":1195,"date":"2016-05-14T12:19:56","date_gmt":"2016-05-14T17:19:56","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1195"},"modified":"2016-05-14T12:19:56","modified_gmt":"2016-05-14T17:19:56","slug":"dave","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/","title":{"rendered":"INDIVIDU AVEC LGMD : Dave"},"content":{"rendered":"

05\/14\/2016:<\/p>\n

LGMD \"Spotlight Interview\" (en anglais)<\/p>\n

Nom<\/strong>: Dave\u00a0\u00a0\u00a0 L'\u00e2ge<\/strong>: 27 ans\"LGMD2A<\/a><\/p>\n

Pays<\/strong>: Australie<\/p>\n

LGMD Sous-type<\/strong>: LGMD 2A \/ Calpa\u00efnopathie<\/p>\n

 <\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

Je pense que j'ai \u00e9t\u00e9 diagnostiqu\u00e9e vers l'\u00e2ge de 14 ans, mais je sais que c'\u00e9tait pendant que j'\u00e9tais au lyc\u00e9e.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

J'allais jouer au golf tous les samedis et quand je rentrais \u00e0 la maison, je devais aller dormir quelques heures. J'avais mal partout. Ma m\u00e8re m'a donc emmen\u00e9 chez le m\u00e9decin pour savoir pourquoi j'\u00e9tais tout le temps fatigu\u00e9.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ? <\/strong><\/p>\n

Je suis le seul membre de ma famille \u00e0 \u00eatre atteint d'une forme quelconque de dystrophie musculaire.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

Mon plus gros probl\u00e8me a \u00e9t\u00e9 d'expliquer ma dystrophie musculaire aux gens (famille, amis et \u00e9trangers) sans qu'ils me croient compl\u00e8tement. Ils pensaient simplement que j'\u00e9tais fatigu\u00e9e parce que j'\u00e9tais paresseuse.<\/p>\n

J'ai pass\u00e9 une nuit \u00e0 l'h\u00f4pital avec des crampes massives dans la jambe que je n'arrivais pas \u00e0 calmer. Je n'ai pas pu marcher correctement pendant trois semaines et j'ai d\u00fb continuer \u00e0 travailler dans la douleur. J'ai toujours eu du mal \u00e0 monter les escaliers et \u00e0 porter des objets lourds pendant de longues p\u00e9riodes.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

Mon plus grand accomplissement est mon mariage en f\u00e9vrier avec ma femme Rebecca. Elle est devenue ma force et ma motivation pour continuer \u00e0 avancer. Je suis un conducteur de camion de deuxi\u00e8me g\u00e9n\u00e9ration en Australie et j'en suis tr\u00e8s fier ! Cependant, mon travail peut parfois devenir assez physique et cela me p\u00e8se. Ma femme, Rebecca, m'aide \u00e0 surmonter tout cela. C'est ma femme merveilleuse.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

J'ai appris \u00e0 \u00e9couter les gens parler de leur maladie. Je me suis fait beaucoup de bons amis sur Facebook avec lesquels je reste en contact. J'\u00e9coute leurs pr\u00e9occupations et leurs probl\u00e8mes et je leur demande \u00e9galement des conseils. Surtout, j'ai appris qu'il n'y a pas de mal \u00e0 demander de l'aide quand j'en ai besoin, au lieu d'essayer de tout faire tout seul.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

Je veux que le monde entier sache que la dystrophie musculaire des ceintures existe ! C'est incroyable le nombre de fois o\u00f9 j'ai d\u00fb expliquer ma maladie \u00e0 des gens qui ne me croyaient presque pas. Ils ne comprennent pas que la dystrophie musculaire des ceintures ne peut pas \u00eatre soign\u00e9e ou gu\u00e9rie en allant \u00e0 la salle de sport. Il n'y a pas de rem\u00e8de ou de traitement pour la LGMD. Nous n'avons aucun contr\u00f4le sur notre \u00e9tat, c'est une partie de nous....une partie avec laquelle nous luttons, mais c'est ce qui fait de nous ce que nous sommes.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

Mon objectif personnel, outre la fondation d'une famille, serait de rejouer au basket-ball. J'ai ador\u00e9 ce sport dans mon enfance. Je retournerais certainement sur le terrain et je courrais aussi longtemps que possible.<\/p>\n

 <\/p>\n

Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire pour une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : https:\/\/www.lgmd-info.org\/spotlight-interviews.<\/p>","protected":false},"excerpt":{"rendered":"

05\/14\/2016: LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Dave\u00a0\u00a0\u00a0 Age: \u00a027 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1196,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[51,12,15],"class_list":["post-1195","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-australia","tag-calpainopathy","tag-lgmd2a"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Dave - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Dave - 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