{"id":1265,"date":"2016-07-10T09:30:49","date_gmt":"2016-07-10T14:30:49","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1265"},"modified":"2016-07-10T09:30:49","modified_gmt":"2016-07-10T14:30:49","slug":"jonathan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/07\/10\/jonathan\/","title":{"rendered":"INDIVIDUAL WITH LGMD: Jonathan"},"content":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW<\/strong><\/p>\n

07\/10\/2016<\/p>\n

Nam<\/strong>e: Jonathan \u00a0\u00a0Ag<\/strong>e: 54 yrs. old\"Unknown<\/a><\/p>\n

Countr<\/strong>y : England<\/p>\n

LGMD Sous-type <\/strong>: \u00a0Not known<\/p>\n

AT WHAT AGE WERE YOU DIAGNOSED?<\/strong><\/p>\n

Initially when I was 11 (1973), I was diagnosed with Congenital Muscular Myopathy. No further action was taken or attempt made to identify what type of Muscle condition.<\/p>\n

Finally, following a mini breakdown in 1988, further tests were done and I was diagnosed with Limb Girdle Dystrophy. Sub Type unknown, and at that time it was not suggested that further investigation would help or be necessary.<\/p>\n

As I had always done, I adapted and learned how to deal with it.<\/p>\n

QUELS ONT \u00c9T\u00c9 LES PREMIERS SYMPT\u00d4MES ? <\/strong><\/p>\n

When I was a baby, my mother noticed that I could not lift my head up. Whilst I walked at a normal age, she said I found it hard, fell a lot and seemed a lot weaker than other toddlers of a similar age. Later on, trouble walking, falls and other issues flagged up warning signs.<\/p>\n

DO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE LGMD?<\/strong><\/p>\n

No, although it\u2019s possible a maternal great Aunt had a Muscle condition \u2026.but that is historical.<\/p>\n

WHAT DO YOU FIND TO BE THE GREATEST CHALLENGES IN LIVING WITH LGMD?<\/strong><\/p>\n