{"id":1325,"date":"2016-09-16T09:00:17","date_gmt":"2016-09-16T14:00:17","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1325"},"modified":"2016-09-16T09:00:17","modified_gmt":"2016-09-16T14:00:17","slug":"scott","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Scott"},"content":{"rendered":"

LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/p>\n

Nom<\/strong>: Scott\u00a0 L'\u00e2ge<\/strong>: 48 ans\"LGMD2L<\/a><\/p>\n

Pays<\/strong>: \u00c9tats-Unis<\/p>\n

LGMD Sous-type<\/strong>: LGMD 2L - \u00e9galement connue sous le nom d'anoctaminopathie<\/p>\n

\u00a0<\/strong><\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

Bien que ma maladie ait commenc\u00e9 il y a environ 15 ans, on m'a r\u00e9cemment diagnostiqu\u00e9 une maladie des ceintures de type 2L. Jusqu'\u00e0 pr\u00e9sent, les m\u00e9decins m'avaient seulement inform\u00e9 qu'il s'agissait d'une LGMD.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

J'ai commenc\u00e9 \u00e0 avoir des difficult\u00e9s \u00e0 monter les escaliers et \u00e0 courir.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ? <\/strong><\/p>\n

Non<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

J'ai toujours \u00e9t\u00e9 une personne ind\u00e9pendante. Comme je suis fille unique, j'ai toujours fait les choses par moi-m\u00eame. Derni\u00e8rement, j'ai d\u00fb compter de plus en plus sur ma famille et mes amis. De plus, le temps qu'il me faut pour faire les choses me rend folle.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

Je suis fier d'avoir termin\u00e9 l'universit\u00e9 et d'avoir obtenu mon dipl\u00f4me.<\/p>\n

Je suis \u00e9galement heureux d'avoir travaill\u00e9 30 ans pour la m\u00eame entreprise avant de devoir d\u00e9missionner parce que je luttais contre la polyarthrite rhumato\u00efde.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ? <\/strong><\/p>\n

J'essaie encore d'acqu\u00e9rir de la patience. Je suis fier d'accomplir des t\u00e2ches que je consid\u00e9rais autrefois comme allant de soi.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

Nous vous invitons \u00e0 continuer \u00e0 soutenir les associations caritatives locales et nationales de MD, que ce soit financi\u00e8rement ou en consacrant du temps \u00e0 ceux qui en ont besoin. Votre soutien est tr\u00e8s appr\u00e9ci\u00e9.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

Marcher sans aide au bord de l'oc\u00e9an sur l'une des plages de ma r\u00e9gion.<\/p>\n

 <\/p>\n

Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire en vue d'une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

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