{"id":1335,"date":"2016-09-27T10:02:53","date_gmt":"2016-09-27T15:02:53","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1335"},"modified":"2016-09-27T10:02:53","modified_gmt":"2016-09-27T15:02:53","slug":"kelci","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Kelci"},"content":{"rendered":"

LGMD \"Spotlight interview\" (en anglais)<\/strong><\/p>\n

Nom<\/strong>: Kelci \u00a0\u00a0L'\u00e2ge<\/strong>: 23 ans\"lgmd2j-kelci\"<\/a><\/p>\n

Pays<\/strong>: Australie<\/p>\n

LGMD Sous-type<\/strong> (si connu) : LGMD2J - Titinopathie<\/p>\n

 <\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e r\u00e9cemment, \u00e0 l'\u00e2ge de 23 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

Au d\u00e9but, j'ai remarqu\u00e9 que je devais penser consciemment \u00e0 monter sur le trottoir ou sur les rebords. J'ai ensuite remarqu\u00e9 qu'il \u00e9tait de plus en plus difficile de monter les escaliers et de parcourir les distances \u00e0 pied.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ? <\/strong><\/p>\n

Oui, c'est le cas d'un fr\u00e8re ou d'une s\u0153ur.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

Le plus grand d\u00e9fi de la vie avec la LGMD est de trouver difficile les activit\u00e9s quotidiennes telles que marcher sur des distances ou monter des escaliers, car ce sont des choses auxquelles je n'avais pas pens\u00e9 auparavant. Un autre d\u00e9fi pour moi est d'avoir une forme rare de dystrophie musculaire, car il n'y a pratiquement pas d'informations sur lesquelles je puisse m'appuyer ou pr\u00e9voir ce qui peut arriver.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

J'essaie encore de m'adapter et de comprendre ce que la vie avec la dystrophie musculaire va signifier pour mon avenir. Ma plus grande r\u00e9ussite est simplement d'avoir appris \u00e0 rester positive et \u00e0 int\u00e9grer la dystrophie musculaire dans ma vie.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ? <\/strong><\/p>\n

Je crois que j'ai appris \u00e0 ne rien tenir pour acquis et \u00e0 appr\u00e9cier ce que l'on a, tant qu'on l'a. Il est si important de rester positif !<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

Je pense qu'il est important de r\u00e9aliser que nous sommes toujours la m\u00eame personne que nous avons \u00e9t\u00e9. Les gens doivent \u00e9galement savoir que les jours ne sont pas tous les m\u00eames pour une personne atteinte de LGMD, certains jours nous sommes meilleurs que d'autres et ce que nous pouvons faire un jour, nous ne pourrons peut-\u00eatre pas le faire le lendemain.<\/p>\n

 <\/p>\n

 <\/p>\n

Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire pour une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : https:\/\/www.lgmd-info.org\/spotlight-interviews.<\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight interview\u201d Name:\u00a0 Kelci \u00a0\u00a0Age: 23 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1334,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,66],"tags":[51,67],"class_list":["post-1335","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2j","tag-australia","tag-lgmd2j"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSpotlight interview\u201d Name:\u00a0 Kelci \u00a0\u00a0Age: 23 yrs. old Country: […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2016-09-27T15:02:53+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Kelci\",\"datePublished\":\"2016-09-27T15:02:53+00:00\",\"dateModified\":\"2016-09-27T15:02:53+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\"},\"wordCount\":350,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"Australia\",\"LGMD2J\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2J\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\",\"name\":\"INDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2016-09-27T15:02:53+00:00\",\"dateModified\":\"2016-09-27T15:02:53+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Kelci\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","og_locale":"fr_FR","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation","og_description":"LGMD \u201cSpotlight interview\u201d Name:\u00a0 Kelci \u00a0\u00a0Age: 23 yrs. old Country: […]","og_url":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2016-09-27T15:02:53+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Kelci","datePublished":"2016-09-27T15:02:53+00:00","dateModified":"2016-09-27T15:02:53+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/"},"wordCount":350,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage"},"thumbnailUrl":"","keywords":["Australia","LGMD2J"],"articleSection":["Individuals with LGMD - Interviews","LGMD2J"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","url":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","name":"INDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage"},"thumbnailUrl":"","datePublished":"2016-09-27T15:02:53+00:00","dateModified":"2016-09-27T15:02:53+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Kelci"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts\/1335","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/comments?post=1335"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts\/1335\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/media?parent=1335"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/categories?post=1335"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/tags?post=1335"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}