{"id":1529,"date":"2017-08-08T08:00:34","date_gmt":"2017-08-08T13:00:34","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1529"},"modified":"2017-08-08T08:00:34","modified_gmt":"2017-08-08T13:00:34","slug":"ben","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2017\/08\/08\/ben\/","title":{"rendered":"INDIVIDU AVEC LGMD : Ben"},"content":{"rendered":"

LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/p>\n

\u00a0<\/strong><\/p>\n

Nom<\/strong>: Ben\u00a0 L'\u00e2ge<\/strong>: 23 ans\"\"<\/a><\/p>\n

Pays<\/strong>: Hong Kong<\/p>\n

LGMD Sous-type<\/strong>: LGMD2A \/ Calpa\u00efnopathie<\/p>\n

 <\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 21 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

J'ai d\u00e9velopp\u00e9 des contractures bilat\u00e9rales de la corde du talon qui m'ont fait marcher sur les orteils.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\n

Mon fr\u00e8re pr\u00e9sente des sympt\u00f4mes similaires, mais il n'a pas encore \u00e9t\u00e9 officiellement diagnostiqu\u00e9.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

\u00c0 l'heure actuelle, les d\u00e9fis les plus importants pour moi sont la difficult\u00e9 \u00e0 monter les escaliers et \u00e0 marcher sur de longues distances.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

Ne pas laisser cette maladie affecter mes \u00e9tudes.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Le fait d'\u00eatre atteint de LGMD m'a rendu plus fort, avec une volont\u00e9 et une pers\u00e9v\u00e9rance \u00e0 toute \u00e9preuve.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

Je veux que le monde sache que la LGMD peut toucher des personnes de tout \u00e2ge - enfants, adolescents, jeunes adultes et adultes. Il est important qu'un plus grand nombre de personnes connaissent la LGMD.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

Si ma LGMD pouvait \u00eatre gu\u00e9rie demain, la premi\u00e8re chose que je voudrais faire serait de participer \u00e0 des activit\u00e9s sportives, car la LGMD m'en emp\u00eache actuellement.<\/p>\n

 <\/p>\n

**** Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire en vue d'une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d \u00a0 Name:\u00a0 Ben\u00a0 Age:\u00a0 23 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1530,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[79],"class_list":["post-1529","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-hong-kong"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Ben - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2017\/08\/08\/ben\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Ben - 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